MICROSCOPIC COLITIS SUPPORT

Thanks everyone! Happy Thanksgiving!

Good Morning All,

Its been a while since I have checked in. I wanted to let you all know that I am well on my way to being "normal" again :-) I was finally told that I have Celiac, which made a lot of since. SO I am now Gluten free and mostly dairy free as well, and doing much better. I have flare ...

Mandy,

I would def do the miralax/gatorade over the moviprep for sure!

My primary Dr ordered the HIDA scan and the nurse told me those results but nothing else. The GI Dr wants to look over the test himself and give me more of an answer.

So the Moviprep was aweful! The pain was excrutiating! Got through it and did the colonoscopy yesterday.

I have yellowish/white excudate, which he told me is the signs of a certain kinf od colitis, cant remember the name he told me. He took several biopsies and cultures and did blood work as well ...

Oh yes I remember Leah. Thats a good idea, I think I will. This is supposed to be gentler and only have you going for about an hour and a half but I dont want to take too many chances.

Thanks! :-)

Thank you Sondra. I live in Sheridan, IN but grew up in Kokomo, IN.
Polly, Yes I am going to ask for that specific test. I have written it down so I wont forget, which is something I do a lot here lately, Im very forgetful. Not normal for me. Anyway, I had a colonoscopy done about 5 weeks ago and ...

Clear liquids tomorrow to prep for the colonoscopy Thursday. Clear broth is on the list so I will be doing that. :-)

So this doctor listened to me and actually agreed with a lot of what I had to say. He stopped all meds except the prednisone because that needs to be weaned off of. He doesn't want to start anything new till he does another colonoscopy, which is set for thursday and a full blood work up. He says the ...

Thanks for all the info Lesley. I guess I need to just do it and stop everything.
I have a huge list of things to take with me to the new GI Dr today. Maybe I can educate him! LOL Im gonna give him the link to this website so he can see exactly all the good information from people who has this ...

I forgot to add that my primary told me to eat as much yogart as possible and also prescribed ensure. I have some generic ensure that says it is lactose/gluten free. I tried eating the yogart, but it was almost instant run to the bathroom. The ensure goes through me pretty quickly as well but stays ...

Hi Polly,

First I am going to put a list of my daily meds and suppliments that I am taking:

Prednisone 60 mg a day for 2 weeks now. The first week I was taking 25mg
Hyoscyamine .125 mg 2 pills every 4 hours
Prilosec one in the morning and one at night
Zofran 4 mg 1 tablet every 6 hours as needed ...

Hi Polly,

Yes I know about tapering the prednisone, I HATE the stuff!!

I would like to taper the prednisone and go to the Entocort, b/c that seems to be the med that seems to helping people. I have a new DR to go to tomorrow and I am going to discuss that with him. I have a list of questions form ...

Hi all, hope everyone had a wonderful Easter weekend!

So I've been on the doubled prednisone for 3 weeks now nd today I think it finally decided to kick in. BUT I am now bloated and miserable. I cannot get comfortable sitting, or lying down and my stomach is hard and distended. I go to the new GI ...

Thank you for the link guys. I will check it out. Im basically living on ensure right now so I will go ahead and try the diet you suggested Brandy.

Thank you all I so appreciate all the support and knowledge.

Im not usually this emotional or whiney :-)

Thanks Brandy.
The pharmacy just called and it is going to cost $400 with my insurance!! I cant afford that right now so I guess I stay on the prednisone till I go to the 2nd GI DR.

I hate this so much I feel so hopeless right now!

Is there a cheaper way to get it fast??