MICROSCOPIC COLITIS SUPPORT

Has anyone here had success managing MCAS?

Thanks Laine for all this information! Good to know about Walgreens.

Hi All-
I've been taking Sandoz Orange Flavor for BAM for over a year with great success! However I'm finding it very difficult to find in our pharmacies in the Pacific North West. Compounded it's expensive, $100 per month.

Are you able to find the Sandoz brand? Is it less expensive with your mail ...

THANKS TEX!

I seem to remember this has been discussed here before but can't find it in the Archives.

I'm in a flare but it seems to be different this time with a thin layer of grease floating on top of the WD.

Good Morning Tex-yes to both your questions. I take the cholestyramine at lunch, meds and supplements at breakfast and dinner.
So lunch is at least 4 hours away from all sups and meds. I do eat quite a lot. Three meals of 5-6 oz of protein and a good serving of
veggies. I've been eating rice the ...

A check in about Cholestyramine, I've been on it 5 weeks, had normal BM's from day 4. Titrated down to a half packet by day 7, which works just fine. I may try reducing to 1/2 packet every other day. It is an amazing med! Wish I'd had tried it sooner! My only concern is that I'm continuing to lose ...

Thanks Tex! I'll pass the information about this website on to the family.

Thanks Carol, two good ideas. I did ask if any doc had suggested eliminating gluten and of course the answer was "only in passing".

Hello MC-ers-

This is off topic but I'm hoping someone here has had experience with this disease or a family member has. I had a call recently from
a father whose daughter has endometriosis. She's 27 has had the disease since she was in her early teens, she has had 4 surgeries
for it and is still ...

Tex good to hear you are doing well! Thanks for the additional info on Cholestyramine.

Lee-thanks for that bit about using capsules, I probably wouldn't have thought of that. I think I read a thread about you using a compounding pharmacy.
I do too, very sensitive to capsules from bovine and porcine ...

Thanks Tex, I so appreciate your insights! It's good to eliminate Mast Cell Issues, I don't have any of those symptoms.
I get 500 MG of Mag and 4000 Iu's of Vitamin D daily, so I think I'm good there. I have your first book which was very helpful.
It must be time to try the Cholestyramine.

I hope ...

A little bit of my history, I'm 4 years in to this CC journey and will be 73 in a couple of days. I worked on methylation cycle in 2017 and had 10 months of remission in 2018. I was able to expand my diet and gained 10lbs which I sorely needed. I have been in a flare
most of this year. My diet is ...

Thank you for your help locating my information to log in. I've written it down this time so I wont make that mistake again.
Happy Thanksgiving!
Christina

Teri-are you by chance in Bend? I noticed you're in the foothills of the Cascades.
Christina

THANKS Wayne!! Worked like a charm!
Christina