MICROSCOPIC COLITIS SUPPORT

Thank you Tex! I'm not looking forward to the process of solving all these challenges but am grateful to have a roadmap of where I'm going. It's better to have some answers. The weight is becoming an issue since I'm having trouble going day to day energy wise.

I saw an endocrine specialist some ...

Hi all. Wanted to update you. Have been dx with chronic pancreatitis. Was admitted to the hospital for 2 days following EUS of pancreas for pain control. The entire pancreas is involved and I've begun Creon. It's helping immensely with that pain. I say THAT pain because pain persisted and I ...

Tex,
Thank you! I've been scheduled for 2 specialized pancreas tests. I'll let you know how they turn out. I've lost more weight so when I see the GI Monday the battle over the PEG will begin anew. I do like him and he is following an algorithm for dx of refractory celiac from what I can see. We'll ...

Thank you guys so much!

It looks like some of the original bxs may be colitis. The recent ones are inconclusive because the path report is subpar per review by staff and my own review.

We are also looking into chronic pancreatitis now because of some other indicators, a CT scan in the past, and ...

Tex,
Thanks for the links. My friend had a colonoscopy a month ago and they did no bx either. She is 65yo. Said everything looked good. If you're in there and someone is having issues, why would you not at least take a couple of bxs? She was so irritated after going through the clean out. Like you ...

Blueberry,
Thank you! I will look into this! Thank you very much!

Tex,
So sad to hear about your experience! I can't believe they didn't take biopsies. I can believe they failed to tell you about test results. I've ran into that too. It sounds like you went thru a long and arduous journey. Your commitment to figuring out what was happening to yourself is to be ...

Thank you Gabes! I'm appreciative of your time and experience. Luckily the hospital I go to has an integrative medicine section with alternative medicine such as biofeedback and acupuncture. I'm hoping this means they are open to the ideas presented here.

I'm a scientist at heart so I can't ...

Jean, that mantra is so familiar! :)

When I was told I had Celiac Disease it explained so much. I have other autoimmune things as well. I feel for all those who can't eat without getting sick here whatever the reasons.

I remember sitting in the ER waiting to be admitting for surgery and watching ...

Thank you Jean! Very limited diet for you. Wow!

I've mostly eaten whole foods for the past 5 years. I followed clean eating (you can Google if you're interested). However, I definitely eat casein protein, eggs, dairy, veggies. I may find I need to cut that. I have a registered dietitian at work so ...

Jean,
Thank you! I'm going to check it out. My doctor will order it if I ask. They do alternative medicine where I'm at too so it shouldn't be an issue.

How was this helpful for you? How long did it take to see results?

I follow a strict GF diet and have for over 3 yrs so that's no problem. When ...

Tex,
Thank you so much!

Having worked in medicine myself, and now working with Docs my own health, I am wondering what your experience has taught you about communication about these tests and the results when they say normal and we think they indicate something more?

You mentioned that magnesium ...

Jean would you share more about Enterolab testing? Thank you! I'm glad you're doing better. Thank you for sharing your experience!

Tex,
Has anyone ever looked into organ function with MC? When I was younger I had to have my gallbladder removed because it stopped functioning. I'm wondering if there isn't something similar going on with the pancreas now. With the lack of gastrin, there may be a downstream affect with secretin or ...

Thanks so much everyone! Although I was in competition shape for body building, and thank God I was, I seemed to fall off a cliff in October last year. It hit hard. I look like an emaciated person now and it only took 3 months! Hopefully the colonoscopy will shed light on MC. (Part of why I made the ...