MICROSCOPIC COLITIS SUPPORT

Hi Carol - you mentioned eating sweet potatoes. I am also doing an elimination diet; sounds a little different from yours, but I bought sweet potato chips and they gave me some GI issues. Also agree that an abrupt change can cause problems...when I started this diet, I felt awful, anxious, foggy ...

Thanks Gabe and Tex. IFM = Institute for Foundational Medicine. It's so strange to me that all inflammatory GI issues don't respond to the same treatment -- I would think inflammation is inflammation. Ughhh.

I noticed there is a post about doctors who treat MC, but there was no one near me. Any ...

Hi,

Quick history..Diagnosed with lymphocytic MC 2 years ago. Initially took budesonide and it helped. MC came back and I wanted to try to control it with diet. Got enterolab results and cut out gluten and dairy and it seemed to help for a while. In the last 6-9 months, issues have gotten worse and ...

Thanks for the info, Tex. I'll check out those breads you mention. Probably won't be eating alligator meat though

Thanks Erica!

Relieved that your numbers are similar to mine. The gluten one was a little shocking. What's funny is that I used to be such a carb, starch, bread and pasta person and didn't make the connection with gluten until I found this board. I'm totally fine with gluten free pasta - tastes ...

Wow - thanks Tex and Gabes, this is hugely helpful information. You guys are the best. Will keep you posted.

Hi all,

I posted in May or June when I got my diagnosis and was put on budesonide for about 6 weeks. At first, I was fine, then the symptoms came back a few months later. Rather than calling my doctor, I tried going gluten-free and that has done the trick. Which makes a lot of sense in light of the ...

Thanks Tex!

Hi all,

A questions about taking budensonide for 3-6 months...Yes, this is very vain of me, but, since it's a steroid, I understand that eventually one gets that bloated face side effect if taking this long-term. Is this likely to happen if I'm on it for up to 6 months?

Thanks!

Thanks Gabes! I will check out that section. I'm so glad I found this board.

Thanks Tex. I do notice a difference between the lactose free milk and regular milk (symptom wise), but I'll keep what you said in mind. Not a big fan of the nut milks, but I had a coconut milk latte today and I think it can grow on me :)

Oh, also, I took a quick look at the Enterolab website and there seem to be a lot of tests to order. Is there one that's standard for people with MC?

Never mind - just read the part of the site that tells people with MC what to get. thx.

Ugh... disappointed to hear that 1) apparently my doctor doesn't know what he's doing and 2) I would have to be on budesonide for that long. I have to figure out what I'm going to do. I'd rather not take a steroid for so long (especially such an expensive one).

Thanks everyone for the wisdom and ...

Hi Martha,

Thanks for your reply! The enterolab test sounds like a good idea. I'll look into that. I didn't think a month on budensonide sounded like enough either, although I'm not enjoying the side effects (starving all the time).

I know I have to eliminate dairy, and I will also try no-gluten ...

I was diagnosed with lymphocytic MC after a colonoscopy (I am a 48 y/o woman). The doctors office prescribed budesonide for 2 weeks, then taper down for another 2. This was all left as a phone message without a word about dietary changes, and I didn't bother calling the office to get more info ...