MICROSCOPIC COLITIS SUPPORT

Hi Paul,
I'm rarely on this board any more because I'm doing so well, but two years I was in your spot -- unable to get out of the house and struggling intensely!


I worked closely with my GI and decided to go the biologic route (Humira) which I know is controversial, but today I feel fantastic ...

Hi BethEEA,
I'll share a slightly different (and probably unpopular) perspective. Zoloft and another psych med contributed to my MC. Psych medications can certainly be tricky to manage while you have MC, but I don't think it's impossible. My best advice is to work with a psychiatrist who can also ...

Hi Miley,

I tried Lialda, which is a brand name of Mesalamine and found it to be somewhat helpful. My doctor presented it as a "mild" medication and I was lucky in that I experienced no side effects from the medication. Of course, everyone is different and I would encourage you to stay in close ...

Hi David,
Unfortunately, I know very little about this but I will offer one resource. Dr. Mark Hyman is the Director of Functional Medicine at the Cleveland Clinic and he puts out a weekly podcast that I really enjoy. He covers toxic exposure in his podcast and I'd be willing to bet that he has an ...

Paul,

I'm so glad that you're feeling better and that you've found something that works for you!

Take care,
Lisa

Hi Amanda,

Sorry to hear that you’re struggling with both LC and your mood! I’ve struggled with a mood disorder for years and have been able to get on a good combo of meds. One med that doesn’t impact my MC is Abilify. It’s a fairly strong psych med but it has helped me.

My best recommendation ...

Paul,

I’m glad it’s helpful and I hope the appointment with your GI goes well!

I take Topiramate and Celexa to treat Bipolar Disorder. The medications have kept my mood stable, but my doctor has a strong suspicion that the Topiramate caused my MC. I still have days where I question all the meds ...

Paul,
Biologic medications are typically saved for the most severe disease. So a “step-up” approach of treating MC typically looks like this:
Step 1: Steroids (Entocort and Uceris)
Step 2: Immunomodulators (Methotrexate and Imuran – there might be others, I’m not sure)
Step 3: Biologics (Entyvio ...

Paul,
I responded to your other post with some of my experiences regarding medications. I did want to address the thrush. I also got oral thrush after long-term Budesonide use (I was on and off Budesonide for 9 months).

You can get a RX for mouthwash (Nystatin) that helps. Your GI or primary care ...

Hi Paul,

I take Humira and couldn't be happier with the results. It was a big decision for me but it's been life changing. My doc and I originally wanted to trial Entyvio but the insurance didn't approve it.

Most docs use the "step-up" approach, which is steroids (which work for most people). If ...

Jeanine,
Just reading your posting again -- so it looks like you're at the stage of blood test #2 (which is typical if you have IGA deficiency). If it were me I would write back and tell her you don't want to do anything until you get the results of bloods test #2.

Just my 2 cents!

Hi Jeanine,

This doesn't sounds right to me....I have an IGA deficiency and Celiac disease. When I was first getting tested, my primary care did the blood work, noticed my IGA deficiency, and looped in a GI. At that time, the GI ordered another blood test. With IGA deficiency, the blood work for ...

Hi Zoey,
Obviously we're all different and you need to find what works for your body, but I will say that I took turmeric and boswellia for some time and had no negative side effects. I still take a high dose of turmeric (1.5g twice a day) and believe it helps.

I've stopped the Boswellia - but ...

Hi Deb,
I'm sorry to read that you're struggling. Like you, I tried many medications for my MC and was unable to get it under control even with major diet modifications. Eventually, I decided to try Humira and it's been a successful treatment option for me. I realize it's a radical approach and it ...

Hi Dorothy,

I don't personally know any doctors in Georgia, but here are a couple of ideas:

--You could email your state's chapter of the Crohn's and Colitis Foundation and tell them that you're looking for a list of doctors who specialize in Microscopic Colitis. I bet they would have a few names ...