I was diagnosed with Idiopathic Hypersomnia, which is very similar to narcolepsy. Basically, I sleep very poorly, but I can fall asleep anywhere and anytime. I was diagnosed a few years before my colon symptoms began.
Suspected sleep apnea is not the only reason people have sleep studies. I had my ...
Search found 27 matches
- Wed Aug 10, 2011 1:32 pm
- Forum: Polls Related to Microscopic Colitis and Treatment Options
- Topic: I Wonder How Many Of Us Have A Sleep Disorder
- Replies: 46
- Views: 27577
- Sat Jun 25, 2011 12:34 pm
- Forum: Discussions About MRT Testing
- Topic: Hit a Speed Bump
- Replies: 12
- Views: 9120
- Sat Jun 25, 2011 7:34 am
- Forum: Discussions About MRT Testing
- Topic: Hit a Speed Bump
- Replies: 12
- Views: 9120
- Fri Jun 24, 2011 12:37 pm
- Forum: Discussions About MRT Testing
- Topic: Hit a Speed Bump
- Replies: 12
- Views: 9120
Thank you so much for the information. I’m thinking I should probably scrap my Phase 1 diet and start over with foods that have a higher probably of being safe. I’m going to need to go through my results and highlight those things that are either high histamine or high tyramine and see if I can come ...
- Fri Jun 24, 2011 9:01 am
- Forum: Discussions About MRT Testing
- Topic: Hit a Speed Bump
- Replies: 12
- Views: 9120
Actually I have Mastocytic Enterocolitis, not MC. I don’t know if that makes any difference. I’ve had issues with fruit most of my life and never regularly consumed any fruit. Since the Phase 1 diet is so limited, I decided I should try to eat the allowed fruit. Maybe that’s a bad idea. In any case ...
- Thu Jun 23, 2011 11:32 am
- Forum: Discussions About MRT Testing
- Topic: Hit a Speed Bump
- Replies: 12
- Views: 9120
- Wed Jun 22, 2011 9:24 am
- Forum: Discussions About MRT Testing
- Topic: Hit a Speed Bump
- Replies: 12
- Views: 9120
Hit a Speed Bump
It took me a little longer than I had hoped to become stable enough on my Phase 1 diet to begin adding new foods. My bowels are still not quite normal, but I’m down to one loose stool a day with no bloating or cramping. My dietitian thought it was safe for me to begin adding one new food a day 5 ...
- Fri May 27, 2011 5:00 pm
- Forum: Discussions About MRT Testing
- Topic: Received My Results
- Replies: 4
- Views: 5585
Nancy - My previous allergy testing was done by US BioTek Labs. It was an ELISA/IgG/IgE test. I know that testing was for a different mechanism, but I still expected there would be more of an overlap between the two tests. The severity of the reactions didn't correlate as much as I expected either ...
- Fri May 27, 2011 11:00 am
- Forum: Discussions About MRT Testing
- Topic: Received My Results
- Replies: 4
- Views: 5585
Received My Results
After all my difficulties getting tested, I finally received my MRT results yesterday. I was pleasantly surprised to see very few reds. I’ve had some allergy testing done in the past, so I wasn’t surprised by some of my reactions. Some will be hard for me to eliminate, but most I won’t miss much ...
- Tue May 24, 2011 8:32 am
- Forum: Main Message Board
- Topic: my father has lupus
- Replies: 7
- Views: 1754
I’m sorry your dad is dealing with lupus. My dad was diagnosed with systemic lupus when he was 68. I believe his was caused by chemo treatments for stage 3 colon cancer when he was 61. He was always in excellent health prior to having cancer. The chemo cured the cancer but triggered a steady decline ...
- Thu Apr 21, 2011 4:22 pm
- Forum: Discussions About MRT Testing
- Topic: Getting tested shouldn't be this hard
- Replies: 11
- Views: 9230
I couldn’t get another kit today. There is only one person at my doctor’s office that can prepare a kit and she had a family emergency today. Since the lab never called me back to tell me if they were able to intercept the package, I stopped by to see if it could still be stopped. The lady I talked ...
- Thu Apr 21, 2011 9:00 am
- Forum: Discussions About MRT Testing
- Topic: Getting tested shouldn't be this hard
- Replies: 11
- Views: 9230
Good thought, Mary Beth. I called them again and found out they are open. They take the same holidays FedEx takes.
I talked with them a little more extensively and now I’m not sure how they are going to run the rest of the panel. It sounds like they don’t have a standard procedure for what to do ...
I talked with them a little more extensively and now I’m not sure how they are going to run the rest of the panel. It sounds like they don’t have a standard procedure for what to do ...
- Thu Apr 21, 2011 7:35 am
- Forum: Discussions About MRT Testing
- Topic: Getting tested shouldn't be this hard
- Replies: 11
- Views: 9230
This is just unbelievable! I went back yesterday for the second blood draw. Everything seemed to go so smoothly. Different people were there and they didn’t charge me a second draw fee. Since I didn’t need to send in the starter booklet, I decided to have them ship it for me. Once again I thought ...
- Wed Apr 20, 2011 2:37 pm
- Forum: Discussions About MRT Testing
- Topic: Getting tested shouldn't be this hard
- Replies: 11
- Views: 9230
- Wed Apr 20, 2011 11:28 am
- Forum: Discussions About MRT Testing
- Topic: Getting tested shouldn't be this hard
- Replies: 11
- Views: 9230
Getting tested shouldn't be this hard
I’m frustrated and need to vent. I sent my MRT kit to Signet last Tuesday. Getting my blood drawn was not as simple as I had hoped (long story involving a couple of arguments with a receptionist and a phlebotomist both of whom tried to insist on doing things the way they always do things even if it ...

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