MICROSCOPIC COLITIS SUPPORT

Hi Tex,

I wanted to update you and get your feedback. I have undergone an abdominal MRI, colonoscopy and endoscopy. The MRI showed normal results, no problems indicated. This is the results on the colonoscopy and endoscopy:

SURGICAL PATHOLOGY REPORT ...

Hi Tex,

I'm making a little progress. I've upped Colestipol as well as the Creon at dinnertime. Today for the first time in 6 1/2 weeks I had a soft but formed BM. I take 4 Colestipol at bedtime on an empty stomach. I take 4 Creon capsules 12,000 units at breakfast and lunch and 6 Creon capsules 12 ...

Tex,

Thank you for your reply. You gave me a lot of information to digest. I wondered if the Entyvio or the covid vaccine was what triggered this mess. I will up the Colestipol tonight. I can take up to 6 pills. I had been down to 1 pill. The Creon for the EPI, 24,000, is doing absolutely nothing ...

Hi,

It's been a while. I have MC and Bam. I've been on Entyvio infusions for 3 1/2 years and I take Colestipol for BAM. My symptoms were under control for a long while, however that changed on 10-6. All of a sudden I have watery diarrhea since October 6th. My stool test showed calprotectin was ...

Hi Laine,

I don't know if I have a total success story for you but I am so much better. I was originally prescribed Colestipol, 6 pills a day to be taken 2 with each meal and I had a mediocre response to the treatment, I was about to give up. I joined a Facebook group for BAM and they told me I was ...

Hi Marta,

My MC was refractive, it wasn't responding to treatment. I had been on Colestipol for quite a while for BAM, taking it as directed by Drs, 2 with each meal. I found a support group for BAM and it was advised that for Colestipol to be most effective to take at bedtime on and empty stomach ...

Hi Tex,

Thanks so much. I'm not inclined to go through an endoscopy so they can test. Wouldn't I have to ingest gluten before the test?

It might be too soon after the colonoscopy but today my bm was "normal" and it actually sunk to the bottom of the bowl! That hasn't happened in years. I stopped ...

Hi Tex,

Thank you for your explanation. I have found several products marked like that and they are now gone. I also recently changed my toothpaste, my Dr wanted me to use Sensodyne, when I googled it, it's not guaranteed gluten free, so I went back to Colgate sensitive toothpaste. I rarely go out ...

Hi Tex,

Sorry, I didn't see that you responded before now. I'm in the process of checking supplements, medications, and personal hygiene for any gluten, soy, egg & casein ingredients. A question, if a food is marked certified gluten free but is processed in a facility that handles soy, milk, wheat ...

Hi,

I continue to be a mess. I continue to be on Entyvio infusions, Colestipol and I just had to start budesonide again, I'm in a flare. I saw the GI PA this week and stool test was done. My pancreatic elastase was 177 ug/g, low, and Calprotectin was 1350 ug/g, high. I was prescribed Creon and will ...

Hi Amy,

Thanks so much for your suggestion. I'm going to look into that. I visited an acupuncturist when I lived in New Jersey who was wonderful. I don't remember exactly why I went to him though. I live in South Carolina now and I'll ask around for a recommendation.

Thanks again,
Susanne

Hi all,

Somehow I've managed to have mostly normal stools, for a few weeks, but my belly always feels unsettled and a lot of gas. I stopped the budesonide last week, I was only supposed to take it for the month of November while I was traveling. I'm taking 6 colestipols a day, digestive enzymes ...

Hi all,

I finished the Pepto Bismol in mid-August and I was good for about a month, still taking 6 colestipol's a day. Mid-September I felt like things were slowly starting to change. That brings me to now, the stool just isn't right and I have to travel for 10 days to NJ for Thanksgiving, which is ...

Hi Daniel,

I'm currently dealing with a colitis flare. I started Pepto Bismol (pink pills) on July 7th, 9 pills a day. I take it with Colestipol, 6 pills a day and I get Entyvio infusions. On about July 17th I started having "normal" bm's. I'm entering week 6 of the 9 Pepto's a day and I average 1 ...

Hi, I'm glad your staying cool. I have been staying inside, I can't take the humidity. The feel like here earlier was over 100+, not my favorite. I'm in SC.
You don't have the humidity, right? Glad your staying cool.

I'm going to hold off on adding anything until this is under control. I was ...