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Doctors?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Reneeknits
- Posts: 11
- Joined: Thu Feb 24, 2011 9:37 am
- Location: Cary, NC
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Reneeknits
- Posts: 11
- Joined: Thu Feb 24, 2011 9:37 am
- Location: Cary, NC
Thank you, JLH! You have made me smile! At first I was stunned, nearly started to cry and then it just made me angry. It's not like he's the one running to the bathroom all times of the day and night. He's wanted me to return in 3 weeks but I just left w/o making the appt. If I'm going to the trouble to leave the house, and for me it is a well-planned, well thought out experience, I'm not going to waste that much effort on seeing him again.
I'm not super familiar with this site yet, is there a listing of doctors anywhere?
I'm not super familiar with this site yet, is there a listing of doctors anywhere?
WOW, Renee. Glad you got mad - he deserved it, and it seems like a pretty good state to get to. You may as well request your records from him, so you can get your new doctor up to speed, whenever you find him/her. I totally agree, no point in going back there. What. A. Jerk.
I am debating whether I should go back to the GI doc who diagnosed me many years ago, in the hopes that he's more up to speed with the diet connection, or start with my PCP. I did the Enterolab testing on my own, and it showed elevated antibodies to gluten, dairy, and eggs. I do feel as though I should bring my regular doctor into the picture, and get those lab results into my file. I know the GI doc will be pushing for a colonoscopy (because they told me so on the phone, and I am overdue for my first, at 55yo), and I don't want to do anything to upset my gut while I'm still healing.
I hope you both get doctor recommendations in your area, and even more important, I hope you both start feeling better soon,
Sara
I am debating whether I should go back to the GI doc who diagnosed me many years ago, in the hopes that he's more up to speed with the diet connection, or start with my PCP. I did the Enterolab testing on my own, and it showed elevated antibodies to gluten, dairy, and eggs. I do feel as though I should bring my regular doctor into the picture, and get those lab results into my file. I know the GI doc will be pushing for a colonoscopy (because they told me so on the phone, and I am overdue for my first, at 55yo), and I don't want to do anything to upset my gut while I'm still healing.
I hope you both get doctor recommendations in your area, and even more important, I hope you both start feeling better soon,
Sara
Nancy,
I went through 3 GI doctors and one PCP in 8 months. I finally found a GI doctor that I like thanks to Joe on this forum. He doesn't make a connection with food intolerances, but at least put me on Entocort. The other 3 doctors just kept telling me that it will go away, stay away from dairy and fiber until it does. The only thing they recommended was Pepto Bismol, which made me worse.
Good luck finding a new doctor. Hopefully, there is someone on this forum that can help you with it.
Sara, I think I would be pretty nervous about having a colonoscopy too if I were stable.
Nancy
I went through 3 GI doctors and one PCP in 8 months. I finally found a GI doctor that I like thanks to Joe on this forum. He doesn't make a connection with food intolerances, but at least put me on Entocort. The other 3 doctors just kept telling me that it will go away, stay away from dairy and fiber until it does. The only thing they recommended was Pepto Bismol, which made me worse.
Good luck finding a new doctor. Hopefully, there is someone on this forum that can help you with it.
Sara, I think I would be pretty nervous about having a colonoscopy too if I were stable.
Nancy
Nancy and Renee,
Unfortunately, there are precious few GI specialists in the world, who understand this disease well enough to be able to do a good job of treating it. One of the best, Dr. Lewey, (the Food Doc), is located in Colorado, but unfortunately, he only accepts Colorado residents as patients. Even world class, (and famous), celiac specialists, (such as Dr. Fasano, at the University of Maryland Medical Center), have a rather poor track record at treating MC, because most of them are unwilling to "think out of the box", and recommend any treatment that is not in the "textbooks", (which are all woefully out of date, as far as MC is concerned).
Many of us have found that if we can just find a GI specialist who is willing to actually listen to what the patient has to say, and who is willing to learn about the disease along with the patient, we can establish a working relationship that will allow us to effectively deal with the disease. Doctors who are closed-minded are usually of little value in treating MC.
I'm sorry that we can't be more helpful, but doctors who truly understand this disease are still quite rare, in the real world. The good news is that they are slowly learning, so we are hopeful that some day most of them will be qualified to treat the disease.
In the meantime, that's the reason for the existence of this discussion board - it allows us to compare notes, and learn from each other about what works, and what doesn't work, so that we can take control of our own treatment, and get on with our lives.
Tex
Unfortunately, there are precious few GI specialists in the world, who understand this disease well enough to be able to do a good job of treating it. One of the best, Dr. Lewey, (the Food Doc), is located in Colorado, but unfortunately, he only accepts Colorado residents as patients. Even world class, (and famous), celiac specialists, (such as Dr. Fasano, at the University of Maryland Medical Center), have a rather poor track record at treating MC, because most of them are unwilling to "think out of the box", and recommend any treatment that is not in the "textbooks", (which are all woefully out of date, as far as MC is concerned).
Many of us have found that if we can just find a GI specialist who is willing to actually listen to what the patient has to say, and who is willing to learn about the disease along with the patient, we can establish a working relationship that will allow us to effectively deal with the disease. Doctors who are closed-minded are usually of little value in treating MC.
I'm sorry that we can't be more helpful, but doctors who truly understand this disease are still quite rare, in the real world. The good news is that they are slowly learning, so we are hopeful that some day most of them will be qualified to treat the disease.
In the meantime, that's the reason for the existence of this discussion board - it allows us to compare notes, and learn from each other about what works, and what doesn't work, so that we can take control of our own treatment, and get on with our lives.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Nancy. We lived in Omaha for 15 years but we've been away for over that amount of time. I've "only" had my LC diagnosis for about 3 years. Good luck in your search for a good doctor.Renee, I just love to raise the BS flag. I'm glad it made you smile. Things really will get better if you stick around here and listen to Tex and the Potty People. You can learn almost anything you need to know. I went at this with the help of the PP, not my GI. I really disliked her at first but then she started listening to me. At one visit, I even hugged her!
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan