Enterolab results - frustrating
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Lisa,
Most of us who have taken Entocort have needed to be on it for at least 6 months to a year. Some have been on it longer at a reduced dosage. It depends upon the individual and how many food intolerances one must eliminate in order to achieve remission. The fewer intolerances, the quicker you can get off Entocort.
Gloria
Most of us who have taken Entocort have needed to be on it for at least 6 months to a year. Some have been on it longer at a reduced dosage. It depends upon the individual and how many food intolerances one must eliminate in order to achieve remission. The fewer intolerances, the quicker you can get off Entocort.
Gloria
You never know what you can do until you have to do it.
Lisa,
Most GI specialists prescribe Entocort for 6 to 8 weeks, (because the label specifies 6 weeks, as I recall, for the treatment of Crohn's disease). However, it is also labeled for treatment up to 6 months at a reduced dosage, (6mg per day). To date, there are absolutely no drugs labeled for the treatment of MC, so all drugs prescribed to treat MC, are prescribed for off-label use.
As Gloria has pointed out, most members here, who use Entocort, have found that it virtually always takes longer than 6 months, (typically, a year or more), before they are able to successfully taper the dosage and stop using it, without relapsing. Most GI specialists don't have the foggiest idea how long it takes for the intestines to heal, from the damage caused by MC.
They prescribe it for 6 to 8 weeks, the patient improves, they advise the patient to taper the dose and stop taking it, and after a week or so, the patient relapses. They prescribe it again, or try other drug, and the cycle continues, on and on, and the patient's intestines never get a chance to heal, because about the time they start healing, the doctor cuts off the Entocort.
Tex
Most GI specialists prescribe Entocort for 6 to 8 weeks, (because the label specifies 6 weeks, as I recall, for the treatment of Crohn's disease). However, it is also labeled for treatment up to 6 months at a reduced dosage, (6mg per day). To date, there are absolutely no drugs labeled for the treatment of MC, so all drugs prescribed to treat MC, are prescribed for off-label use.
As Gloria has pointed out, most members here, who use Entocort, have found that it virtually always takes longer than 6 months, (typically, a year or more), before they are able to successfully taper the dosage and stop using it, without relapsing. Most GI specialists don't have the foggiest idea how long it takes for the intestines to heal, from the damage caused by MC.
They prescribe it for 6 to 8 weeks, the patient improves, they advise the patient to taper the dose and stop taking it, and after a week or so, the patient relapses. They prescribe it again, or try other drug, and the cycle continues, on and on, and the patient's intestines never get a chance to heal, because about the time they start healing, the doctor cuts off the Entocort.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
No, but you can probably buy a generic version online, much, much cheaper than what it will cost you in this country. At the following link, you can buy a 90 day supply, (270 capsules), for $121.50, plus shipping. That's probably the same product sold in this country, at an inflated price. When ordering from alldaychemist, you don't even need a prescription, (because prescriptions written by U. S. doctors are only valid within the boundaries of this country).Lisa wrote:anyone heard of it?
http://www.alldaychemist.com/1283_Entocort-EC
Another member reported buying a generic domestically, at a ridiculously high price.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Have you all seen this? Maybe generic? I am going to pick it up soon and will let you all know.
http://www.prnewswire.com/news-releases ... 61083.html
http://www.prnewswire.com/news-releases ... 61083.html
I see what you mean. Darn - that means that they aren't giving a price break for the generic version. They want to rip us off, too.
I pay $50 for 270 Entocort tablets, or a 3-month supply at 3 pills/day. My insurance pays $4012.62, for a total cost of $4062.62. That translates to $1354 for a 30-day supply, assuming the charge per pill would be the same. At that rate, the generic is actually more expensive than Entocort!
I would order it from Alldaychemist if I were you. If I have to take it after DH retires and I'm on Medicare, that's where I'll get it. Assuming that the U.S. government doesn't clamp down on pharmaceutical imports.
Gloria
I pay $50 for 270 Entocort tablets, or a 3-month supply at 3 pills/day. My insurance pays $4012.62, for a total cost of $4062.62. That translates to $1354 for a 30-day supply, assuming the charge per pill would be the same. At that rate, the generic is actually more expensive than Entocort!
I would order it from Alldaychemist if I were you. If I have to take it after DH retires and I'm on Medicare, that's where I'll get it. Assuming that the U.S. government doesn't clamp down on pharmaceutical imports.
Gloria
You never know what you can do until you have to do it.

Visit the Microscopic Colitis Foundation Website




