Enterolab results - frustrating

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quesada
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Post by quesada »

I listed my dr here before, but I am going to take her name down. I would not recommend her.
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sarkin
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Post by sarkin »

Lisa,
Thanks for sharing her info.

Arlene, good luck tomorrow - hope Lisa's doctor-luck is contagious. And I hope the Entocort helps.

All my best,
Sara
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Gloria
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Post by Gloria »

Hi Lisa,

Most of us who have taken Entocort have needed to be on it for at least 6 months to a year. Some have been on it longer at a reduced dosage. It depends upon the individual and how many food intolerances one must eliminate in order to achieve remission. The fewer intolerances, the quicker you can get off Entocort.

Gloria
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tex
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Post by tex »

Lisa,

Most GI specialists prescribe Entocort for 6 to 8 weeks, (because the label specifies 6 weeks, as I recall, for the treatment of Crohn's disease). However, it is also labeled for treatment up to 6 months at a reduced dosage, (6mg per day). To date, there are absolutely no drugs labeled for the treatment of MC, so all drugs prescribed to treat MC, are prescribed for off-label use.

As Gloria has pointed out, most members here, who use Entocort, have found that it virtually always takes longer than 6 months, (typically, a year or more), before they are able to successfully taper the dosage and stop using it, without relapsing. Most GI specialists don't have the foggiest idea how long it takes for the intestines to heal, from the damage caused by MC.

They prescribe it for 6 to 8 weeks, the patient improves, they advise the patient to taper the dose and stop taking it, and after a week or so, the patient relapses. They prescribe it again, or try other drug, and the cycle continues, on and on, and the patient's intestines never get a chance to heal, because about the time they start healing, the doctor cuts off the Entocort. :roll:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
quesada
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Post by quesada »

Ugh. I hate to hear this - don't want to have to try to convince her that I need to be on it for 6 months when she thinks 30 days is enough.... Also, she's putting me on some generic version - I will find out the name but I think it starts with a D - anyone heard of it?
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tex
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Post by tex »

Lisa wrote:anyone heard of it?
No, but you can probably buy a generic version online, much, much cheaper than what it will cost you in this country. At the following link, you can buy a 90 day supply, (270 capsules), for $121.50, plus shipping. That's probably the same product sold in this country, at an inflated price. When ordering from alldaychemist, you don't even need a prescription, (because prescriptions written by U. S. doctors are only valid within the boundaries of this country).

http://www.alldaychemist.com/1283_Entocort-EC

Another member reported buying a generic domestically, at a ridiculously high price.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
quesada
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Post by quesada »

Have you all seen this? Maybe generic? I am going to pick it up soon and will let you all know.

http://www.prnewswire.com/news-releases ... 61083.html
quesada
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Post by quesada »

It is not generic - don't know why I thought it was. Sigh.....
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Gloria
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Post by Gloria »

quesada wrote:It is not generic - don't know why I thought it was.
The article implies that it's generic. I'm confused. Why isn't it generic? Did it cost an arm and a leg?

Gloria
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quesada
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Post by quesada »

Yes - 1570 for a 30 day supply of 9 mg a day. But it is the Mylan brand. How does that compare to Entocort (I just realized I have been spelling it wrong!).
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Gloria
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Post by Gloria »

I see what you mean. Darn - that means that they aren't giving a price break for the generic version. They want to rip us off, too.

I pay $50 for 270 Entocort tablets, or a 3-month supply at 3 pills/day. My insurance pays $4012.62, for a total cost of $4062.62. That translates to $1354 for a 30-day supply, assuming the charge per pill would be the same. At that rate, the generic is actually more expensive than Entocort!

I would order it from Alldaychemist if I were you. If I have to take it after DH retires and I'm on Medicare, that's where I'll get it. Assuming that the U.S. government doesn't clamp down on pharmaceutical imports.

Gloria
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quesada
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Post by quesada »

Thanks! Took my first dose this morning. Hope it works.
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