Just saying hello from the uk

[jmc09]

Hello all.

I had this site recommended to me through the IBS forum that I regularly post on.

I was diagnosed in '92 with non specific colitis and sulfasalazine controlled my symptoms until about 2006 and since then I've used and become resistant to imodium and I'm now on codeine phosphate for my symptoms.

Since 2006,Ive been diagnosed with IBS as no further inflammation has been found in colonoscopies since '92.
I still experience the symptoms that I did back in 92 but cannot prove colitis still exists in my colon.

I see a professor who believes IBS D is caused by either inflammation or an inflammatory response at least so I am under a more forward thinking medical professional.

I came hear to read up on maybe asking my consultant to prescribe steroids to me,he offered me this option only very recently but I wanted to research various steroids out there.

I like the sound of Entocort/Budesonide and may ask for this over prednisone as a treatment option.

Thanks for listening.

[tex]

Hi JMC,

Welcome to the board. The problem with your current medical advisor's theory, (about IBS D being caused by an inflamatory response), is that, (as you pointed out), no inflammation has been found in your biopsies since '92. Or are those guys doing colonoscopies without taking biopsy samples? If they're not taking biopsies, then they're completely missing the inflammation, and you still have active microscopic colitis. If they are taking biopsies, then you need to change pathologists, because the one who is examining your biopsy slides is obviously missing the inflammation. Misdiagnoses of MC are very, very common. Many GI specialists and pathologists, unfortunately, don't know how to properly diagnose the disease, so they mistakenly diagnose the patient with IBS, by default.

By definition, an inflammatory bowel disease is caused by chronic inflammation. The reverse is also true - long-term chronic inflammation is connected with an inflammatory bowel disease, not with IBS.

Yes, Entocort/budesonide is a much safer choice, if you're going to use a corticosteroid for long-term treatment. It has far fewer side effects, and far fewer serious long-term health risks.

Again, welcome aboard, and please feel free to ask anything.

Tex

[Robbie]

Hi JMC,

Welcome to The Greatest Forum on the Internets. I wish you the best

[MaggieRedwings]

Welcome JMC to another UK poster from the MIL of British dwellers.

So sorry you are dealing with this and do hope our forum is of help to you.

Maggie

[jmc09]

Thanks for your welcoming responses.

I've just asked my specialist to allow me to try budesonide as I'm really struggling with my bowel problem just lately and dont want to continue upping my codeine dose,I currently take 6 30mg pills, 2x3 times a day,its not very pleasant at that dose.

[tex]

I hope your request is approved. Keep us informed on how well the treatment goes.

Tex