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i have a question, its hard for me to figure out what i am intolerant to?
If i eat something that doesnt agree with me, should i have D 24 hours later, 48 hours later or anytime.
its sometimes hard to pinpoint what i ate or when?
any advice would be great.
i am now GF and DF and tapering off entocort.
how soon after eating would bowel movement indicate intolera
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
We are all a little different, of course... the gluten reaction, for me, typically shows up the next day, with D and achiness and fatigue, which can last for quite a few days. When I was first sick, even eating GF grains (rice) sometimes caused me to bloat very soon after eating. But the antibody-driven reaction only happens later, when the food reaches the small intestines.
It does get hard to figure out which thing is causing which reaction, for sure. The easiest way to narrow things down is to start with a super-simple diet. For me, that was homemade chicken soup, and not much else, till things settled down. I cut out all supplements, too, and that's how I figured out I needed to use a different brand for at least two of them.
Some people have slower or faster times between eating and reacting, and some reactions can take place considerably later, which is why it's important to go slow and simple, and take careful notes, when doing an elimination diet. I found this difficult and frustrating, I must admit. But not as frustrating as horrible symptoms...
Many here are better at maintaining their "Winning the Poo" journal than I am. Basically, you write down everything you eat, and make a note of how you're feeling (not just digestive - headache, itchiness, really anything). After a little practice, you get more confident in your ability to notice the patterns.
Hope this helps, and hope you're feeling good,
Sara
It does get hard to figure out which thing is causing which reaction, for sure. The easiest way to narrow things down is to start with a super-simple diet. For me, that was homemade chicken soup, and not much else, till things settled down. I cut out all supplements, too, and that's how I figured out I needed to use a different brand for at least two of them.
Some people have slower or faster times between eating and reacting, and some reactions can take place considerably later, which is why it's important to go slow and simple, and take careful notes, when doing an elimination diet. I found this difficult and frustrating, I must admit. But not as frustrating as horrible symptoms...
Many here are better at maintaining their "Winning the Poo" journal than I am. Basically, you write down everything you eat, and make a note of how you're feeling (not just digestive - headache, itchiness, really anything). After a little practice, you get more confident in your ability to notice the patterns.
Hope this helps, and hope you're feeling good,
Sara
I think I was "glutened" the day before yesterday, and despite my use of vicoden, which constipates me horribly, and my propensity for C, I had a really bad D day yesterday, starting at 5 am. So for me it seem to take less than 24 hours.
Bloating? All the time. I feel I always look 6 months pregnant even though I am 66!
Not ready to try eating gluten again to prove it's effect - at least not knowingly!
Because I lean towards C my diet is different from others on this board. I don't want the D, but the C is also bad, so I do try to eat foods that will help it.
I am doing the enterolab tests to find out to what I am sensitive, and will go from there.
Bloating? All the time. I feel I always look 6 months pregnant even though I am 66!
Not ready to try eating gluten again to prove it's effect - at least not knowingly!
Because I lean towards C my diet is different from others on this board. I don't want the D, but the C is also bad, so I do try to eat foods that will help it.
I am doing the enterolab tests to find out to what I am sensitive, and will go from there.
Amen to that! For me, almost always, I wake up knowing I've been sick. I may get to sleep till 8am, unlike your 5am "wakeup call" - but the morning will be the worst, and it will gradually improve, but it's not going to be a fun day. I think it's gotten a little better - when I first got glutened after about 6 weeks GF, I felt ill for the better part of a week, though the worst D was still in the first day or so. But I was greenish-gray and felt as bad as I looked, and the fatigue, wow.Lesley wrote: Not ready to try eating gluten again to prove it's effect - at least not knowingly!
Unfortunately, I'll know tomorrow whether a few more months of healing will make a difference, because I got glutened at breakfast. Very, very disappointed about that.
You're not alone in having C - it's a hundred times rarer for me, but some folks here have it more often. I've certainly had it enough to sympathize - it's a different kind of miserable, but it's no fun regardless.
Has your D from being glutened kept on into the following day? And do you have any other symptoms - or maybe it's hard to tell, because you have so much going on in your healing and recovery. Wishing you no more gluten, and speedy recovery,
Sara
Sheila,
We all react differently. Some can't even finish a meal if it contains gluten, before they have to run for the "John", while others have all sorts of "transit times". IOW, times can vary from 10 minutes to as long as 2 or 3 days, depending on the individual, and depending on the food-sensitivity.
That's why the food diary that Sara suggested can be very helpful for connecting food-sensitivities with reactions. Once you figure out your typical transit time, then it's much easier to tell what you're doing.
Probably, if there's such a thing as a "typical" gluten reaction, it occurs within a few hours, for most of us. Many of us react with some bloating, an hour or so after ingesting gluten, followed by D, approximately 6 hours after eating it. My reaction time seems to be shorter than that - gluten cleans me out in about 3 hours, more or less, (I may be a celiac, though). On the other hand, it usually took a day or two for dairy or one of the other food-sensitivities to cause me to have D, though the other symptoms, (bloating, headache, etc.), would usually show up much sooner.
Tex
We all react differently. Some can't even finish a meal if it contains gluten, before they have to run for the "John", while others have all sorts of "transit times". IOW, times can vary from 10 minutes to as long as 2 or 3 days, depending on the individual, and depending on the food-sensitivity.
That's why the food diary that Sara suggested can be very helpful for connecting food-sensitivities with reactions. Once you figure out your typical transit time, then it's much easier to tell what you're doing.
Probably, if there's such a thing as a "typical" gluten reaction, it occurs within a few hours, for most of us. Many of us react with some bloating, an hour or so after ingesting gluten, followed by D, approximately 6 hours after eating it. My reaction time seems to be shorter than that - gluten cleans me out in about 3 hours, more or less, (I may be a celiac, though). On the other hand, it usually took a day or two for dairy or one of the other food-sensitivities to cause me to have D, though the other symptoms, (bloating, headache, etc.), would usually show up much sooner.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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In early stages (ie just after diagnosis) when there was still inflammation i used to react to gluten contamination within 30 mins,
as the inflammation reduced and the leaky gut healed the time between ingestion and reaction lengthened.
now if i have the gluten the BM reaction is about 10 - 12 hours.
it is the joint aches and fatigue reaction that lasts 2 - 5 days.
as the inflammation reduced and the leaky gut healed the time between ingestion and reaction lengthened.
now if i have the gluten the BM reaction is about 10 - 12 hours.
it is the joint aches and fatigue reaction that lasts 2 - 5 days.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes - joint aches and fatigue I have all the time. I was diagnosed with FMS and Lupus (I think mistakenly) and they were attributed to those diagnoses, but I am pretty sure it's the MC causing them. At least I hope so. That means when my gut heals they will go away, and I will have a day free of that and with some energy for the frst time I can remember.
*I got glutened at breakfast* - AGAIN? What rotten luck. I hope it doesn't last as long again.
It's very unfair that meds that constipate don't work to stop the D for you. Vicoden does constipate me, and i have to struggle against it all the time. It's really hard because taking anything can trigger the D. Norman never seems to visit me, ever!
*I got glutened at breakfast* - AGAIN? What rotten luck. I hope it doesn't last as long again.
It's very unfair that meds that constipate don't work to stop the D for you. Vicoden does constipate me, and i have to struggle against it all the time. It's really hard because taking anything can trigger the D. Norman never seems to visit me, ever!
foods causing intolerance
thanks, that helps.
does anyone also find that intolerances to other foods go away with time as in once you are in remission?
does anyone also find that intolerances to other foods go away with time as in once you are in remission?
Lactose intolerance will go away, (but probably not casein intolerance), yeast intolerance will go away, and fiber, sugar, citric acid, etc., will no longer be a problem after your intestines heal, but sensitivity to the foods that cause autoimmune reactions, (such as gluten, casein, soy, etc.), will probably last forever, unless something changes your genes.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
That's a helpful way to look at it, thanks!
Sheila,
We have had members who have been able to resume eating the occasional egg, though they had reacted previously to them (and this is giving me hope for myself!); also lettuce, not only from members who have had difficulty with the fiber, but even from at least one person who tested as reactive via the MRT test - and yet has been able to re-add it to her diet, cautiously and prudently.
My early experience was that *everything* made me sick, and I know I am not alone. You know - breathing, sleeping, air, water - everything. I am now able to eat a highly varied diet; figuring out the "true" intolerances from the reactions that are just because we are so inflamed we can hardly manage - that takes some time. I am assuming the Worst Offender foods are out for me, forever, but do hope that occasional eggs can be a part of my diet in time, among other things. But for me, gluten and dairy are not worth it, forever. I know not everyone feels that way, but (as my best friend says) I have "crossed the divide."
If you have temporary trouble with applesauce, for example - that could be the fiber, or the fruit sugar, or just a coincidence. If that problem persists over time, you have reason to be concerned about apples themselves.
I realize in some ways this is confusing, but it is true - there are reactions that are immunological, as Tex has said, and others that are more 'mechanical' like fiber, which is kind of like a scrub brush on an internal sunburn when we are really irritated, and still others that may decline in time for different reasons. But hopefully you'll build a varied diet that works for you, and also regain some foods you may now prefer to avoid till you're feeling better...
That's a helpful way to look at it, thanks!
Sheila,
We have had members who have been able to resume eating the occasional egg, though they had reacted previously to them (and this is giving me hope for myself!); also lettuce, not only from members who have had difficulty with the fiber, but even from at least one person who tested as reactive via the MRT test - and yet has been able to re-add it to her diet, cautiously and prudently.
My early experience was that *everything* made me sick, and I know I am not alone. You know - breathing, sleeping, air, water - everything. I am now able to eat a highly varied diet; figuring out the "true" intolerances from the reactions that are just because we are so inflamed we can hardly manage - that takes some time. I am assuming the Worst Offender foods are out for me, forever, but do hope that occasional eggs can be a part of my diet in time, among other things. But for me, gluten and dairy are not worth it, forever. I know not everyone feels that way, but (as my best friend says) I have "crossed the divide."
If you have temporary trouble with applesauce, for example - that could be the fiber, or the fruit sugar, or just a coincidence. If that problem persists over time, you have reason to be concerned about apples themselves.
I realize in some ways this is confusing, but it is true - there are reactions that are immunological, as Tex has said, and others that are more 'mechanical' like fiber, which is kind of like a scrub brush on an internal sunburn when we are really irritated, and still others that may decline in time for different reasons. But hopefully you'll build a varied diet that works for you, and also regain some foods you may now prefer to avoid till you're feeling better...
varied diet
that is so nice to hear, because right now i feel there is alot of things i cant eat, fruit, fiber, chocolate, wine, caffeine, nuts dairy, wheat, gluten etc...
so i am so happy to hear i maybe able to eat these in the future.
thanks,
sheila
so i am so happy to hear i maybe able to eat these in the future.
thanks,
sheila
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draperygoddess
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mzh
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Great question; I was wondering the same thing.
Sometimes it's a matter of transit time, other times it's immediate b/c one is SO allergic to something.
FWIW, I had a barium motility study last year. It showed very slow transit in the esophagus and a very quick transit time in the intestine, which I expected. So, food can be fast and slow-moving in the same person, making it hard to tell how long it takes something to go through.
Sometimes it's a matter of transit time, other times it's immediate b/c one is SO allergic to something.
FWIW, I had a barium motility study last year. It showed very slow transit in the esophagus and a very quick transit time in the intestine, which I expected. So, food can be fast and slow-moving in the same person, making it hard to tell how long it takes something to go through.
Sheila,
Of the foods you listed, I can now eat (in moderation) fruit, fiber, chocolate, wine, caffeine, and *some* nuts (mostly I eat pistachios, which are technically a seed). You may have a different list, but I hope this gives you some optimism. My husband considers chocolate to be a daily essential, and we have found some really good DF/SF bars, some of which are even affordable without a second mortgage. (Lindt 85% is one option...)
Having said that I got slightly glutened yesterday at breakfast, and though I had heartburn by the end of the day (and all night), gurgling and LLQ pain, and lots of non-digestive symptoms like headache, insomnia, visual effects (like what I imagine a migraine aura would be like), and dizziness, I have not had catastrophic D this time. This is very different from what Kari recently experienced, when inadvertently glutened after a long time of GF success - it made her pretty ill, for quite some time. I don't think this means I can eat gluten (that is a *lot* of unpleasant symptoms, and just not having horrible D is not the same as feeling good)! I believe it would be worse if I had eaten more before I realized there was gluten in it, and much worse if I continued eating it regularly. So that adds a little to the confusion - that's why paying attention over time is so important. (As I said, I find that very difficult to do with perfect diligence - for a long time, it was mentally easier for me to eat a super-restricted list than to take any chances at all.)
Of the foods you listed, I can now eat (in moderation) fruit, fiber, chocolate, wine, caffeine, and *some* nuts (mostly I eat pistachios, which are technically a seed). You may have a different list, but I hope this gives you some optimism. My husband considers chocolate to be a daily essential, and we have found some really good DF/SF bars, some of which are even affordable without a second mortgage. (Lindt 85% is one option...)
Having said that I got slightly glutened yesterday at breakfast, and though I had heartburn by the end of the day (and all night), gurgling and LLQ pain, and lots of non-digestive symptoms like headache, insomnia, visual effects (like what I imagine a migraine aura would be like), and dizziness, I have not had catastrophic D this time. This is very different from what Kari recently experienced, when inadvertently glutened after a long time of GF success - it made her pretty ill, for quite some time. I don't think this means I can eat gluten (that is a *lot* of unpleasant symptoms, and just not having horrible D is not the same as feeling good)! I believe it would be worse if I had eaten more before I realized there was gluten in it, and much worse if I continued eating it regularly. So that adds a little to the confusion - that's why paying attention over time is so important. (As I said, I find that very difficult to do with perfect diligence - for a long time, it was mentally easier for me to eat a super-restricted list than to take any chances at all.)