Visit the Microscopic Colitis Foundation Website
Just as a side note, I received my results while sitting in my dad's hospital room. He'd had a heart attack on Saturday and was rushed by ambulance to Kansas City. Turned out he had a couple of blockages and received 2 stents. The doctor said the narrowing was from hardening of the arteries. My Dad has rhuematoid arthritis, osteoarthritis, fibromyalgia and the same allergies I do, plus diabetes and high blood pressure (in spite of being a slender guy). I thought it ironic that I received my results while sitting in the hospital. Another reminder of where our health can go if we don't make the changes we need to. I couldn't concentrate well enough so I didn't read up on the actual gene results. But I will do that soon.
I haven't talked to my Dad about gluten sensitivity and at 81 I'm not sure how many changes he'll want to make. However, my daughter and I DID talk about my results and the fact that she will have at least one gene. She was very open to it and said "I'm down with being gluten free" and smiled. She is very disciplined with her diet. These results are going to be very valuable to all of us. As you can see there are plenty of autoimmune conditions in my family. I'm so glad I did the tests and the $149 looks like a bargain now. I'm very eager to get the food sensitivity testing done.
Thanks again for the information and feedback,
Carol
My Enterolab results will be no surprise to most of you.
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Wow, Carol, your daughter sounds wise indeed!
I'm sorry you've been balancing the concurrent stress of your father's health crisis and your own MC concerns. Looking back (with my double DQ2 genes), both my husband and I are a little guilt-ridden about the amount of my late mother's diet in her last days that was muffins or cookies or madeleines or waffles... we were desperate to provide enough calories that she would eat, and her last days were a miracle of sweetness and blessing. Had the timing been different, I'd have been trying to push a very different regime - which might or might not have helped, and she might even have accepted my efforts.
I'm wishing your father a speedy and graceful recovery - I was very involved in my parent's late-life ailments, but that was at a time when my own MC was lying low. You must be wondering what all these things mean for you, and I hope your MC learning keeps many of these potential consequences at bay for you. (For me, too...) It seems a little too easy to blame *everything* on gluten, but it doesn't seem entirely out of the question, either!
Thanks for this update, at such a challenging time. Heartfelt wishes for health to all the generations of your family,
Sara
I'm sorry you've been balancing the concurrent stress of your father's health crisis and your own MC concerns. Looking back (with my double DQ2 genes), both my husband and I are a little guilt-ridden about the amount of my late mother's diet in her last days that was muffins or cookies or madeleines or waffles... we were desperate to provide enough calories that she would eat, and her last days were a miracle of sweetness and blessing. Had the timing been different, I'd have been trying to push a very different regime - which might or might not have helped, and she might even have accepted my efforts.
I'm wishing your father a speedy and graceful recovery - I was very involved in my parent's late-life ailments, but that was at a time when my own MC was lying low. You must be wondering what all these things mean for you, and I hope your MC learning keeps many of these potential consequences at bay for you. (For me, too...) It seems a little too easy to blame *everything* on gluten, but it doesn't seem entirely out of the question, either!
Thanks for this update, at such a challenging time. Heartfelt wishes for health to all the generations of your family,
Sara
Sara, Lesley, and Martha,
Martha he was at Overland Park Regional Medical Center and received good care there too. I have had other family members at KU Med in the past and you are right, it's a good place to be as well.
Based on what you've all suggested I'll talk to my dad about gluten sensitivity and of course I'll let him know I'll be willing to help him sort it out. Right now sorting his 9 prescriptions was a major accomplishment- what they do, what they look like, when to take them. We did get it organized. :) I'm thinking I was a groggy as he was.
My daughter is 19 and a college sophomore. This would be an ideal time for her to be gluten aware. Maybe it will help her to avoid the same ailments we are having now... I hope.
Thanks for the good wishes,
Carol
Martha he was at Overland Park Regional Medical Center and received good care there too. I have had other family members at KU Med in the past and you are right, it's a good place to be as well.
Based on what you've all suggested I'll talk to my dad about gluten sensitivity and of course I'll let him know I'll be willing to help him sort it out. Right now sorting his 9 prescriptions was a major accomplishment- what they do, what they look like, when to take them. We did get it organized. :) I'm thinking I was a groggy as he was.
My daughter is 19 and a college sophomore. This would be an ideal time for her to be gluten aware. Maybe it will help her to avoid the same ailments we are having now... I hope.
Thanks for the good wishes,
Carol
Carol,
I had the exact same Enterolab genetic results as you did! Five months after diagnosis with CC and being GF and DF since then, I'm finally "better", and now am starting to reintroduce foods that I'd avoided, like beans, peanuts, and tiny amounts of lettuce and cheese. I even tried a Baby Ruth bar on Halloween, and got a dermatitis herpetiformis rash on my neck, even though Baby Ruths are supposed to be gluten-free. The awful, explosive D has not returned since I've been taking probiotics, though.
One of the "proofs" of celiac is DH, supposedly, and in the past I've had it even on my buttocks, but my genetic results showed no actual "celiac" gene, just the gluten intolerance genes. So I'm not sure if I have actual celiac, but I'm remaining GF even without the diagnosis. I feel almost normal again!
Thanks to all of you on this forum! What would I do without you?
I had the exact same Enterolab genetic results as you did! Five months after diagnosis with CC and being GF and DF since then, I'm finally "better", and now am starting to reintroduce foods that I'd avoided, like beans, peanuts, and tiny amounts of lettuce and cheese. I even tried a Baby Ruth bar on Halloween, and got a dermatitis herpetiformis rash on my neck, even though Baby Ruths are supposed to be gluten-free. The awful, explosive D has not returned since I've been taking probiotics, though.
One of the "proofs" of celiac is DH, supposedly, and in the past I've had it even on my buttocks, but my genetic results showed no actual "celiac" gene, just the gluten intolerance genes. So I'm not sure if I have actual celiac, but I'm remaining GF even without the diagnosis. I feel almost normal again!
Thanks to all of you on this forum! What would I do without you?
Pat C.
"Don't sweat the small stuff.
P.S. (It's all small stuff!)"
"Don't sweat the small stuff.
P.S. (It's all small stuff!)"