Visit the Microscopic Colitis Foundation Website
another small step of progress to acknowledge MC properly.....
http://www.news-medical.net/news/201111 ... Index.aspx
Mayo Clinic researchers have developed a new way to assess a common cause of chronic diarrhea, microscopic colitis, using the Microscopic Colitis Disease Activity Index. A study describing the index was released today during the American College of Gastroenterology 2011 Annual Scientific Meeting and Postgraduate Course in Washington. The index provides a consistent way to assess the condition's severity.
"Until now, physicians have not had a way to objectively and consistently score the severity of a patient's disease beyond simply counting the number of bowel movements per day," says author Darrell Pardi, M.D., a Mayo Clinic gastroenterologist. The assessment also accounts for symptoms other than diarrhea, such as abdominal pain, urgency, and incontinence.
"This assessment is a significant step forward, as it correlates a patient's symptoms with the physicians' understanding of the severity of microscopic colitis," Dr. Pardi says. Using the assessment index in future studies, researchers will more easily compare treatments for this condition.
they have seen the light
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Gabes-Apg
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they have seen the light
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
well I am not really impressed if the only include urgency and incontinence, what is new, when you talk about diarrhea? Abdominal pain I consider a step forward, but what about the foggy head, the fatigue, the fat in the stools (is another word for can't remember it right now), bloating, joint pain, undigested food, , etc, etc, etc
if they come up with a new list that include these symptoms and more, yes than we can talk.
and sorry not my best day I guess, but the Mayo clinic is considered as one of the top clinics in the US?? And these people are well trained and educated doctors (at least that is what they claim to be considering the amount of money the earn) and than they come up with things as "urgency" and "incontinence". Well anybody with a little common sense could have come up what that and gosh since it is a BOWEL disease, maybe there also may be some abdominal pain. And than if you have real urgency, you're incontinent and have abdominal pain, your MC is more severe??? For me the fatigue has been by far the hardest thing to deal with.
if they come up with a new list that include these symptoms and more, yes than we can talk.
and sorry not my best day I guess, but the Mayo clinic is considered as one of the top clinics in the US?? And these people are well trained and educated doctors (at least that is what they claim to be considering the amount of money the earn) and than they come up with things as "urgency" and "incontinence". Well anybody with a little common sense could have come up what that and gosh since it is a BOWEL disease, maybe there also may be some abdominal pain. And than if you have real urgency, you're incontinent and have abdominal pain, your MC is more severe??? For me the fatigue has been by far the hardest thing to deal with.
"As the sense of identity shifts from the imaginary person to your real being as presence awareness, the life of suffering dissolves like mist before the rising sun"
Harma,
I agree with you that the Mayo doctors still have a long way to go, to get to the point where they understand this disease, but I'll give them credit for trying. At least they're taking baby steps. I think they will eventually figure it out, but right now, their biggest hurdle is overcoming the mental block that they have against non-celiac gluten-sensitivity. If they can ever get past that issue, they will probably be able to recognize all the other symptoms associated with MC.
They have finally recognized that food-sensitivities play a role in the disease, but they're not quite ready to admit that gluten is the main problem:
Tex
I agree with you that the Mayo doctors still have a long way to go, to get to the point where they understand this disease, but I'll give them credit for trying. At least they're taking baby steps. I think they will eventually figure it out, but right now, their biggest hurdle is overcoming the mental block that they have against non-celiac gluten-sensitivity. If they can ever get past that issue, they will probably be able to recognize all the other symptoms associated with MC.
They have finally recognized that food-sensitivities play a role in the disease, but they're not quite ready to admit that gluten is the main problem:
http://www.mayoclinic.com/health/collag ... is/DS00824Treatment for collagenous colitis and lymphocytic colitis often begins with lifestyle changes. In many cases, adjusting your diet will be enough to resolve your symptoms. If not, your doctor can suggest a number of effective medications for collagenous colitis and lymphocytic colitis. In rare cases, surgery is necessary.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
If my doctor is anything to go by MC is painless. No pain, no fatigue, nothing except "urgency". If it is less than 20 times a day or alternating with C, and you have bloating, pain and anything else it's IBS.
And diet doesn't help.
Will the Mayo clinic break this belief? I have seen how slow docs are to accept anything new. Just what they learned in med school.
Maybe a new generation of docs in 10 or 20 years will be taught new things, but not this one.
And diet doesn't help.
Will the Mayo clinic break this belief? I have seen how slow docs are to accept anything new. Just what they learned in med school.
Maybe a new generation of docs in 10 or 20 years will be taught new things, but not this one.
Wouldn't it be wonderful if we could get this site or information from this site to that doctor at the Mayo Clinic? Like you said, at least they are looking into it which is progress in itself. But, they may need a little help, and who better than all of us? Does anyone have any insiders there?
Nancy
Nancy
Nancy,
The GI department at the Mayo is unlikely to pay any attention to anything that happens on this board, because we rely heavily on Enterolab testing, and Dr. Pardi and his colleagues have adopted a position that not only does not recognize the validity of the testing that goes on at Enterolab, but they choose to make fun of Dr. Fine's work, as well. It's sad that such highly-educated and well-respected doctors have apparently become victims of such a petty vice as professional snobbery. Evidently, that's one of the risks associated with power and professional success.
Tex
The GI department at the Mayo is unlikely to pay any attention to anything that happens on this board, because we rely heavily on Enterolab testing, and Dr. Pardi and his colleagues have adopted a position that not only does not recognize the validity of the testing that goes on at Enterolab, but they choose to make fun of Dr. Fine's work, as well. It's sad that such highly-educated and well-respected doctors have apparently become victims of such a petty vice as professional snobbery. Evidently, that's one of the risks associated with power and professional success.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes they can. We have more than a few members who have attained remission by diet, and gone back to tell their GI doc the good news, and he or she merely rolled his or her eyes, laughed at them, and advised them that diet has nothing to do with MC, and they should go back to eating all those foods that they are avoiding.Lesley wrote:Maybe they deny the testing, but they can't deny results!
Doctors can be plenty dense, when they want to be. 
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Right after I was diagnosed with MC I was "invited" to participate in a Mayo study for MC (they are my primary physicians). I filled out the initial forms and agreed to respond to the follow-up ones. It has been over a year now and I haven't heard back from them. I was excited to think that maybe I could share my results with them. Maybe it's not going to happen (but I've noticed a lapse in others I've participated in). You can bet my PCP will be getting an earful though! I will be seeing her next year.
Five years ago I went to the Mayo clinic in Minn. (my Aunt lived there). Dr. Loftus is suppose to be very very knowledgeable about IBD's. My Aunt beg me to come up and she would take me. WELL!!! Let me tell you he had the WORST bed side manner and as for having knowledge about IBD's.....my dog new more! So I chalked up to having a nice long weekend with my Aunt. Last year once again she tells me she has another MD who is very knowledgeable in the treatment of Crohns and Colitis (Remember I still have not been Dx with anything other than a virus, flu, IBS or a parasite which wasnt showing up on any test etc. etc. etc.). So off I go again! This time at least the idiot did blood test! He told me that I had IBS and that I was under to much stress and RX Imoduim and XANAX!!!! Yes your reading right xanax! So I dont trust the Mayo clinic anymore! I use to work for Sloan Kettering, here in NY (25 years ago). They had the best reputation for taking care of cancer patients. Now I would never work for them! Times have changed. The insurance companies and pharmaceutical companies decide what doctors can and cannot do. They get HUGE kick backs and incentives!!!! Thats why doctors dont like labs like Dr Fines! He gets NO kick backs or incentives from out side sorces that are runned by our Goverment. Dr Fine does it out of compassion for what he believes is right and will really help people.
It all looks good on paper but when I see some results on real people I will believe it!
Sorry! But I am not having a good day! UGH!
Hopefully all of you are,
Robin
It all looks good on paper but when I see some results on real people I will believe it!
Sorry! But I am not having a good day! UGH!
Hopefully all of you are,
Robin
Robin,
Whoa! That knocks my opinion of the Mayo doctors down an additional notch or two.
I hope you'll be feeling much better by tomorrow.
Hugs,
Tex
Whoa! That knocks my opinion of the Mayo doctors down an additional notch or two.
I hope you'll be feeling much better by tomorrow.
Hugs,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Sorry Tex, I shouldn't say that so strongly about the Mayo Clinic. There are some world renown doctors there! I went there for a second opinion on my enlarged heart and he was GREAT! My Aunt saw many of them! She had cancer and she was taken very very good care of too. I never thought I would ever find a good Gastro (I went through 6) but i finally have! I just think that for most doctors these days wont think out of the box because of Government regulations. Most doctors today want to push meds so you can have return visits (Ah drug companies benefit). Insurance companies don't want the doctors to preform certain test ( Ah insurance companies benefit). God help you if you need to go to a hospital (Ah insurance companies and pharmaceutical companies benefit). When do we as human beings get to benefit? Finding good doctors are like finding a needle in haystack! I guess that no matter where you live or go!
Hugs,
Robin
Hugs,
Robin