feeling dodgy

scrowley · Post by **scrowley** » Fri Nov 11, 2011 11:36 am

I have been on entocort for 8 weeks and just finished it after being diagnosed just this summer.
anyway, now as everyone said i am off them and the dodgy stomach is back!
i dont feel l ike eating anything.
i am compltely GF and DF now but i still feel the same.
I have yet to do the enterolab testing once i come up with the money.

anyway, does anyone have any ideas what other foods maybe i should avoid to be on the safe side.
any help would be GREATLY APPRECIATED.
thanks,
sheila

Post by **tex** » Fri Nov 11, 2011 11:41 am

In case you overlooked my response to your duplicate post in Dee's Kitchen:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=15009

Tex

scrowley · Post by **scrowley** » Fri Nov 11, 2011 4:09 pm

tex,
i didnt realise my post was there, thanks for the advice.
i am not eating anything with soy or eggs.
only rice chez with almond milk for bfast, turkey meat (primo taglio GF one) with GF bread for lunch.
bananas and just rice, overcooked veg and beef/chicken for dinner with nothing else.
every other day i feel crappy.
today surprisingly i feel o.k.
tommorow, it will come back.
i feel just like i did before entocort.
as in some days in the week fine, others stomach very dodgy no appetite so go back to BRATdiet, then D at least once a week.
hope it doesnt get more than that.
i never seem to get a week where i feel great.
it sucks...........

Gloria · Post by **Gloria** » Fri Nov 11, 2011 10:52 pm

scrowley wrote:i feel just like i did before entocort.

I'm so sorry that you're back at square 1. This condition is extremely frustrating, isn't it?

Eight weeks isn't nearly enough time to taper off Entocort slowly enough so that you can test foods. Entocort should be used as a tool to help you determine what is bothering you as you slowly reduce it. I have a feeling that you have been following your doctor's timetable. GIs don't understand that Entocort masks our symptoms; it doesn't heal our gut.

i feel just like i did before entocort.

Trust me, I know exactly how you're feeling. What has helped me a great deal is to maintain a food/symptoms diary. If you are having problems every other day, that's a valuable clue. Try eating similar meals two days and see if you still have problems every other day. Usually the foods that we eat and cherish the most are the ones to suspect. Is your GF bread free of eggs? Perhaps the yeast in the bread is a problem. We are amateur detectives when dealing with our MC intolerances.

Gloria

draperygoddess · Post by **draperygoddess** » Fri Nov 11, 2011 11:21 pm

Not to throw too much at you, but are you taking any other medications?

Hope you figure this out and get to feeling better soon!

scrowley · Post by **scrowley** » Tue Nov 15, 2011 5:18 pm

thanks for the replies, there is egg and yeast in my bread and i do take supplements with soy in them.
i really need my GF bread though.............
good points though.

sarkin · Post by **sarkin** » Tue Nov 15, 2011 5:49 pm

Sheila,

The easiest thing, till you find the magical GF bread with *no* suspect ingredients, is just to take a break from you supplements. Just a week, maybe two. If it helps, then you can research soy-free supplements (there are lots). If it doesn't help... let the search for a GF bread commence!

Good luck. We are all 'works in progress' on the MC road, to some degree or another.

MICROSCOPIC COLITIS SUPPORT

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