MC Diagnosis

desertrat · Post by **desertrat** » Wed Nov 23, 2011 5:42 pm

Hey, guys, when you were given your MC diagnosis by your doc, did you receive the pathologist report? I didn't, my GI said, oh, you have MC, and gave me a script for Entocort. Is it important to see what is on the report? Is there info there that would give me more insight, numbers that are important to know? Thanks!
Mandy

Post by **tex** » Wed Nov 23, 2011 7:45 pm

Most patients have to ask for a copy, if they want to see it. They're written in pathologyspeak, so you may not get much out of it, unless you're somewhat familiar with the language. LOL. Normally, if your GI doc actually told you that you have MC, there's probably not much reason to review the report.

Those of us who were told that there's nothing wrong with us, however, or those who were told that they have "IBS", can often find the information they need, (IOW, the truth), in the pathology report, (if they know how to interpret it, that is). Normally, there are no numbers mentioned in the path report, except for the number of biopsy samples that were submitted, and their respective ID numbers.

Tex

Robin.booboo · Post by **Robin.booboo** » Wed Nov 23, 2011 10:50 pm

I actually learned a little bit more than I knew from just having my GI's office call me. Actually I called them, exactly a week after my colonoscopy, because that is how long they said it took to get the results. So, when I called, they said, "Oh yes, you have positive results for a benign condition - micro-colitis."

I started bouncing around my cubical and high-fiving things, and then I said, "wait a minute, 'benign' my Aunt Fannie! This thing is affecting the heck out of my life!" to which she replied, "well, 'benign' just means it isn't going to turn into cancer."

So that is great news, for the long term, but what about the current situation?

What I learned when I got the actual results was:

They didn't *just* sample here and there and get a positive result. What actually happened is that my GI took six samples up the right side of my intestines, as far up as they measure during colonoscopy, and six samples up the left side. ALL of the biopsy samples were positive. This is great news for me, because that can pretty much shut up all my well-meaning relatives who would so much love me to believe it is all in my head.

On the down side, I didn't have any area biopsied that was un-damaged. :(
So maybe I should shut the heck up, as being healthy but embarrassed ought to outweigh being unhealthy and...well...unhealthy. So yeah, I guess I pretty much shut down my own Victory Parade.

Gloria · Post by **Gloria** » Thu Nov 24, 2011 6:46 pm

It's always amazing to me that people think this problem is in our heads (no, it's in our butts!) On the other hand, when I was pregnant and constantly visiting the commode, people hinted that it was in my head, too. Right, I wanted to throw up constantly, just like we can make ourselves have D all day.

Gloria

JLH · Post by **JLH** » Thu Nov 24, 2011 9:59 pm

http://www.dailymotion.com/video/x14xho ... g_creation

Lesley · Post by **Lesley** » Thu Nov 24, 2011 10:48 pm

All my life I have been told it was in my head. All that happened is I always feel guilty when I feel bad, and I find it difficult to ask for help. Push on regardless. And then lose it because it hurt, and because I was so, so tired. And then I felt, and still feel, really guilty because of my kids.

I don't know how old you are, Robin, but it's NOT in your head. Don't let them make you feel guilty. It's hard enough to BE sick. Just concentrate on getting well. That's your job now.

Gabes-Apg · Post by **Gabes-Apg** » Fri Nov 25, 2011 1:09 pm

To go back to the original question

having the results of the pathology report is not 'everything'

we have no way of knowing if all the specialists are doing sampling the same. the report is only an indicator of that point in time on that day, and it is only showing an indicator of the digestion. It is not talking about all the other organs and areas of the body that react.
Polly achieved MC remission and then within about 3 months via stress went back into a flare.

I stand by my theory of 'listen to your body' and 'there is no right way or wrong way there is your way'
each of us have to spend the time to figure out what works (and what doesnt work)
know what our reactory symptoms are, and if they occur what foods can be used to nuture the digestion if it is inflammed.
If i believe my recent report then my MC is in remission, D & C are no longer the main symptoms BUT there are still inflammatory/toxic reactions to things like anesthetic.

having the pathology report doesnt change this

draperygoddess · Post by **draperygoddess** » Fri Nov 25, 2011 8:11 pm

JLH--

Gabes--agreed, bottom line (no pun intended) is what works for us. I would have gone on thinking I had "IBS" had I not asked for a copy of the report, though. Since I now know my doctor didn't tell me the whole truth, I am more likely to trust my instincts. It was a good lesson to learn.

Robin.booboo · Post by **Robin.booboo** » Sat Nov 26, 2011 7:23 pm

Hi Lesley - I am 43. I know it's not in my head - It was just great to be able to tell that to my family and have physical results to back that up.

You should be able to call and request a copy of the results. I also requested a copy to be sent to my primary care physician. I hope this helps. :)

Lesley · Post by **Lesley** » Sat Nov 26, 2011 11:56 pm

Glad you have something to shut them up with. It's vindicating, isn't it.

You are a year younger than my daughter. I am so glad you know what it is and can get it under control while you are young.

MICROSCOPIC COLITIS SUPPORT

MC Diagnosis

MC Diagnosis

This thread reminded me of this.........