Visit the Microscopic Colitis Foundation Website
Well, for now I will just start with hello. Hopefully I will learn how to get around here soon and will get to know some of you better.
Paula
New Here - Today
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
New Here - Today
I just found this web site today, and am still having a very difficult time finding my way around it. I decided I'd start by saying "hi" to everyone. I was diagnosed with LC in June of 2010, but have had my symptoms since August of 2009. I never thought there would be a support web site for this type of health issue. I was SO frustrated today so just typed it in and this is what I found. I "guess" I am glad I found you, but the real truth would be to say I never had to look for you guys.
Well, for now I will just start with hello. Hopefully I will learn how to get around here soon and will get to know some of you better.
Paula
Well, for now I will just start with hello. Hopefully I will learn how to get around here soon and will get to know some of you better.
Paula
Hello Paula,
Welcome aboard. I'm sorry that you had to find this website, but glad you did. You will find so much help, advise, support, love, and best of all, lots of shoulders to cry on when needed.
Just browse around and you will find lots of information or ask away and someone will answer your questions.
Nancy
Welcome aboard. I'm sorry that you had to find this website, but glad you did. You will find so much help, advise, support, love, and best of all, lots of shoulders to cry on when needed.
Just browse around and you will find lots of information or ask away and someone will answer your questions.
Nancy
-
Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Well Paula hello from New Hampshire and welcome to the group. You have found the best site and best group of people anywhere. This is the place for help with MC.
I won't dive into all the details right now, but for LC (lymphocytic Colitis) LC a form of (Microscopic Colitis) MC the best treatment around is to adjust your diet to avoid foods that we tend to as a group be sensitive to and might not even know it.
I believe over 95% of those here have a reaction to gluten (the stuff found in wheat and flour) even though our blood tests come out negative for celiac disease. The blood tests cannot predict how our digestive systems react to gluten. Slowly the medical community is catching on that this is the key issue
Many of us also react to Soy products and a Dairy products as well. We are all differrent but there are a lot of common issues.
I'm sure others will be by soon to welcome you and give you their information as well. Overall with some dietary adjustments and meds if needed, you can turn this around.
Welcome again Paula you have found the best place around for help and support.
Take care and best wishes
Joe
I won't dive into all the details right now, but for LC (lymphocytic Colitis) LC a form of (Microscopic Colitis) MC the best treatment around is to adjust your diet to avoid foods that we tend to as a group be sensitive to and might not even know it.
I believe over 95% of those here have a reaction to gluten (the stuff found in wheat and flour) even though our blood tests come out negative for celiac disease. The blood tests cannot predict how our digestive systems react to gluten. Slowly the medical community is catching on that this is the key issue
Many of us also react to Soy products and a Dairy products as well. We are all differrent but there are a lot of common issues.
I'm sure others will be by soon to welcome you and give you their information as well. Overall with some dietary adjustments and meds if needed, you can turn this around.
Welcome again Paula you have found the best place around for help and support.
Take care and best wishes
Joe
Joe
Dear Paula,
I'm sorry you have LC, but you have indeed found the best place for information and encouragement.
As Joe said, most of us, maybe all, have found that the best way to deal with MC is to change our diet to exclude gluten (found in wheat, rye, and barley). Many of us also have to exclude dairy and soy. That sounds hard, but it makes such a difference in the disease that it is completely worth it.
As you look around the site, you'll find lots more information on why that is important, how to go about eliminating those foods, why doctors probably are going to tell you that diet isn't involved in MC, etc. Feel free to ask any questions that might come to mind. There is a huge amount of collective experience of this board. It takes time and patience, but you can get your life back.
Martha
I'm sorry you have LC, but you have indeed found the best place for information and encouragement.As Joe said, most of us, maybe all, have found that the best way to deal with MC is to change our diet to exclude gluten (found in wheat, rye, and barley). Many of us also have to exclude dairy and soy. That sounds hard, but it makes such a difference in the disease that it is completely worth it.
As you look around the site, you'll find lots more information on why that is important, how to go about eliminating those foods, why doctors probably are going to tell you that diet isn't involved in MC, etc. Feel free to ask any questions that might come to mind. There is a huge amount of collective experience of this board. It takes time and patience, but you can get your life back.
Martha
Martha
Welcome Paula.
I also wish I had no reason to be looking for this subject on the internet. However, I am so glad, once dx'd, that I found it.
I am far from having my diet under control. I am still in the beginning stages of figuring it out. The people here are terrific. Knowledgeable, supportive, kind, everything you want your doctor to be but generally isn't.
I hope you get control of your illness quickly. Some people do.
I also wish I had no reason to be looking for this subject on the internet. However, I am so glad, once dx'd, that I found it.
I am far from having my diet under control. I am still in the beginning stages of figuring it out. The people here are terrific. Knowledgeable, supportive, kind, everything you want your doctor to be but generally isn't.
I hope you get control of your illness quickly. Some people do.
Hi Paula,
Welcome to our internet family. We consider ourselves a family, because no one truly understands this disease unless they actually have it. Here, we understand exactly what you're dealing with, because we've walked the same path, and we've agonized over the same issues. By comparing notes, and sharing experiences, as Martha mentioned, we've learned how to get our life back, when our doctors couldn't help us.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our internet family. We consider ourselves a family, because no one truly understands this disease unless they actually have it. Here, we understand exactly what you're dealing with, because we've walked the same path, and we've agonized over the same issues. By comparing notes, and sharing experiences, as Martha mentioned, we've learned how to get our life back, when our doctors couldn't help us.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
draperygoddess
- Rockhopper Penguin
- Posts: 558
- Joined: Mon Aug 29, 2011 6:49 am
- Location: Tennessee
Hi, Paula! 
Welcome to our happy home! Having MC is the pits sometimes, but this forum is wonderful. Everything I know about MC, I learned here, because my doctor didn't know diddley-squat. Many of our more knowledgeable members (like Tex) are so generous with their time and patient, too. Don't be afraid to ask questions--I guarantee we've all asked them before, too!
Hope you're on the road to getting better!
Welcome to our happy home! Having MC is the pits sometimes, but this forum is wonderful. Everything I know about MC, I learned here, because my doctor didn't know diddley-squat. Many of our more knowledgeable members (like Tex) are so generous with their time and patient, too. Don't be afraid to ask questions--I guarantee we've all asked them before, too!
Hope you're on the road to getting better!
Cynthia
"Can we fix it? YES WE CAN!" -Bob the Builder
"Can we fix it? YES WE CAN!" -Bob the Builder
Welcome, Paula, and I totally sympathize that it takes a little time to find your way around this site, which is almost overwhelming with help. It took me quite a few days just to post my first message...
You can start with the Main Message Board (see link up at the top). And if you go to the "Forum Index" you will find a list of the different topic areas (Dee's Kitchen is recipes, for example).
As you're hearing from so many of us - our motto is, "You can get your life back" - and please let us know how we can help you figure out what you need to know to get there. We each have our own unique circumstances, but we do have a lot to share. I feel so fortunate that I've been able to manage my MC and bring about remission via diet alone (after a brief course of Pepto Bismol early on), and I am not alone; on the other hand, many of our members have found certain medications to be important tools in helping to stabilize or eliminate their symptoms, and to provide some relief while diet change slowly starts to bring about healing.
Keep us posted, ask whatever you need to ask,
Sara
You can start with the Main Message Board (see link up at the top). And if you go to the "Forum Index" you will find a list of the different topic areas (Dee's Kitchen is recipes, for example).
As you're hearing from so many of us - our motto is, "You can get your life back" - and please let us know how we can help you figure out what you need to know to get there. We each have our own unique circumstances, but we do have a lot to share. I feel so fortunate that I've been able to manage my MC and bring about remission via diet alone (after a brief course of Pepto Bismol early on), and I am not alone; on the other hand, many of our members have found certain medications to be important tools in helping to stabilize or eliminate their symptoms, and to provide some relief while diet change slowly starts to bring about healing.
Keep us posted, ask whatever you need to ask,
Sara
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Overwhelmed by kindnesses....
I just got online to look around this web site before turning in to bed tonight. I have been crying since reading all your posts. Thank you for taking the time to greet me. Since I wrote my initial "hello" post, I wondered what type of comments I would get (if any). There are really people out there like me!
Well, I am tired and have to work tomorrow. As you are all aware, this type of disease does take its toll on you physically as well as emotionally at times. And as I said in my initial post, I was "SO frustrated today." Thank you - I needed a good cry.
Goodnight and God bless you.
Paula
Well, I am tired and have to work tomorrow. As you are all aware, this type of disease does take its toll on you physically as well as emotionally at times. And as I said in my initial post, I was "SO frustrated today." Thank you - I needed a good cry.
Goodnight and God bless you.
Paula
Awww Paula. I have cried so many times since finding this place. I always find a shoulder offered, or a comforting pat on the head, and, just as important, knowledge to help me understand what I am going through and that I am not alone.
And even more important, that it is possible to get one's life back.
And even more important, that it is possible to get one's life back.