Visit the Microscopic Colitis Foundation Website
Lesley, clearly your mind as someone who has worked with children like this professionally and my mind as a grandma followed different paths on the 'are they getting help' issue.
Yes, they do have a physical therapist who works with Abigail once a week. This is through the Early Childhood Intervention (is that right? ECI?) program. The therapist is concentrating on upper body strength--arms, and head and neck control. She says that Abigail's hip joints are really loose, so the parents have to pay attention to keeping her legs together and not just letting them flop open all the time. The therapist has also taught them some techniques of massaging Abigail's lips. I presume that at some point there will be speech therapy, and the lip exercises are supposed to help eventually with speech. That's another reason why DIL really wants to try to get Abigail to nurse, because that strengthens the mouth muscles used in speech more than feeding from a bottle does.
You speak fluent Hebrew, huh? My husband is playing a rabbi in our church's Christmas pageant. He has several lines in Hebrew. He got drafted for the part on the basis of having studied Hebrew in grad school. We have a Hebrew-English Tanakh sitting on our dining room table right now! He doesn't speak it, but he can wade his way through reading familiar passages.
Love,
Martha
gluten and breast milk
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As you probably know, it should be greenish, or greenish-grey, if she is having a celiac reaction, so she doesn't appear to have a gluten issue, at least not at the moment.Martha wrote:I don't change her diapers, but what I see that has leaked out on her clothes is yellow.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
As you probably know, it should be greenish, or greenish-grey, if she is having a celiac reaction, so she doesn't appear to have a gluten issue, at least not at the moment. Let's hope that continues.Martha wrote:I don't change her diapers, but what I see that has leaked out on her clothes is yellow.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.