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I haven't been here on the board for awhile & miss reading it. My mother has been diagnosed (at 86) with Parkinsonism, then Lewey Bodies, a dementia that sometimes goes along w/ Parkinson's, so I've been staying w/ her lots and not coming home to the computer much. This started about a yr or so after my husband died, so I've had a busy year and a half.
On New Years Eve some friends insisted I at least go out to eat with them, their treat. We went to a favorite restaurant of our's, w/ lots of smoked meats.... and I ate a smoked pork chop, baked potato (no bread), but did indulge in a salad & salad dressing for a change. Salads caused a bad reaction for me, so I felt I was stretching it, but indulged probably because I was feeling sorry for myself.
After eating I was going back to mom's, but felt a big reaction coming on, so had to stop at home first, which was a good thing, as I had a horrible reaction.....almost as bad as the one that started all of this big D with me. I'd been gluten free for I think almost a year due to the micro. colitis.....anyway shortly after I joined this group. Ever since that night I have not had any reactions. I even pushed it last night & ate a hamburger on a regular bun to see if I'd have one. None. Did I push it, anyone think? I have no idea what's going on, but am enjoying it however long this will last. Anyone else experience this? You'd think with the stress I'm under right now that it would be worse. I'll be back to see if there is any insight to this tomorrow sometime. Thanks.
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Have Any of You Experienced This?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Have Any of You Experienced This?
You can't change the wind, but you can adjust the sails.
more info on the above post
Will add to my post that the only thing I've changed lately is added selenium and cat's claw to my vitamin regimen.
You can't change the wind, but you can adjust the sails.
Hi Lulu,
They don't occur for very many of us, but a few people with MC occasionally are lucky enough to experience periods of spontaneous remission, just like patients who have Crohn's disease. It's impossible to predict how long such asymptomatic periods will last, when they do occur. Enjoy it while it lasts.
Obviously, you have a choice of continuing to follow a careful diet, and remaining in remission indefinitely, or abandoning your diet, and going back to square one, when the episode of spontaneous remission ends.
Tex
They don't occur for very many of us, but a few people with MC occasionally are lucky enough to experience periods of spontaneous remission, just like patients who have Crohn's disease. It's impossible to predict how long such asymptomatic periods will last, when they do occur. Enjoy it while it lasts.
Obviously, you have a choice of continuing to follow a careful diet, and remaining in remission indefinitely, or abandoning your diet, and going back to square one, when the episode of spontaneous remission ends.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Tex. I guess I'd better pretty much then, stick w/ the diet, as I would love to gain some weight & feel some energy for a change. I'd never heard of spontaneous remission. Any info on that anywhere? The only thing is that I absolutely craved greens, which I always ate a lot of & worried so much about not getting in my diet w/ the D. I wonder if I can at least return to some of them? Fruit too....I missed so much of the fruit.
You can't change the wind, but you can adjust the sails.
Spontaneous remission is much more common with the other IBDs, and it's usually a regular part of their progress. A patient will have symptoms for a while, and then they will suddenly disappear for a while, for no known reason, only to reappear later, again, for no known reason. If you check out any Crohn's discussion boards, that topic will probably be discussed somewhat regularly there. They usually just call it remission, though, and leave off the "spontaneous" term. The GI docs are familiar with it, also.
If you are truly having a period of spontaneous remission, then you should be able to eat greens and fruit, without any problems. The main thing to avoid is gluten, because it can cause major damage to the intestines, that takes a long time to heal, which means that if/when the remission comes to an end, it will take much longer to get back to remission, because most of the worst damage to the intestines will have to heal before the D will stop. Other foods, such as greens and fruit, don't cause the production of any antibodies, so if/when the remission ends, discontinuing those foods should result in a relatively prompt recovery, because your intestines haven't been accumulating any T-cell-related damage. At least, that's how I see the issue.
Enjoy.
Tex
If you are truly having a period of spontaneous remission, then you should be able to eat greens and fruit, without any problems. The main thing to avoid is gluten, because it can cause major damage to the intestines, that takes a long time to heal, which means that if/when the remission comes to an end, it will take much longer to get back to remission, because most of the worst damage to the intestines will have to heal before the D will stop. Other foods, such as greens and fruit, don't cause the production of any antibodies, so if/when the remission ends, discontinuing those foods should result in a relatively prompt recovery, because your intestines haven't been accumulating any T-cell-related damage. At least, that's how I see the issue.
Enjoy.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Tex. Was afraid of that. May as well stick to what I've been doing, but add fruit & greens. They are much more important than gluten & am sure my body needs them much more. I was just reading about this spontaneous remission. Interesting stuff. Boy, we sure can get in messes w/ our bodies.
You can't change the wind, but you can adjust the sails.