no entocort for a whole week now (and doing well)

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brandy
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Post by brandy »

Hi Harma,

Feel for you.....we're all a work in progress. Brandy
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Post by harvest_table »

Harma,

I'm sure your disappointed. :sad: Keep the faith.

Have you ever tried an every other day regime with Entocort? If not, it might be worth a try.

Love,

Joanna
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Gloria
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Post by Gloria »

I really was hoping it would work for you, Harma. One of the hardest things to deal with are the ups and downs, the anticipation and then the disappointment. You still sound optimistic; good for you!

Gloria
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Post by harma »

Well I had no D this morning, so I decided to go for another day without medication. So still going ok.
"As the sense of identity shifts from the imaginary person to your real being as presence awareness, the life of suffering dissolves like mist before the rising sun"
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DebE13
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Post by DebE13 »

Thanks for sharing Harma,

I'd really like to go with diet alone but I know I won't achieve that any time soon. I fear budesonide will be a companion for a while. It's good to know that there's hope for improvement. I'm only a few months into this so I'm very interested in those with experience. Will the 2mg dose work or will you have to start higher and taper down again?
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Post by harma »

I am back on medication I do one every other day now. It is not that the D is back, but I got other stomach/bowel problems, nauseous (really for the first time) and cramping during night in the upper belly (which cost me my night sleep) This last symptom I know from my pre MC time and than always had something to do with what I ate. But now, well I could be the thickeners of the rice milk.

Another reason to go back on medication is, I experience a lot of stress at the moment. And not the fun stress. My house in Holland is still not sold and the market is real bad. There is an offer, but that would leave me with (almost) nothing. When I started the selling I expected to make a nice profit on it. But well it turned out totally different. It is empty and every month it cost me money. I have been waiting too long a miracle to happen, but it does not seem to happen. Also with a house in Holland (and costing me money every month), it puts everything on hold. So really, I feel time has come to make a choice. Or I go back to Holland, stay there for another 6 months or maybe a year, go working again and hopefully in that time I will sell it for a good price and go back to Jordan. Or I just take my loss and take the risk and 100% totally go for it.

And how to make choices, talked to different people and they all came up with different advices. One says "god still has a plan for you in Holland, you should go back first to maybe come back later" the other one says "you know very well what you want go for it, make it happen". It is really so confusing, some people make choices with advantages and disadvantages, but for me that has never worked. And also thinking long and deep about it, I only get more lost in myself and go in more circles.

Well I have decided to go for that last option "go for it and make it happen". I sent the real estate office an email this morning to accept the offer (lets hope the offer is still valid). What worked was how both options would make me feel, going back to holland stay in my house again, go working again in Holland, it feels like "well if i have to, if there are no other options, I will do my time there". Also it feels save, I know it will work out and I know what I will get. The other options selling and no idea how everything will end up and how it will develop, scares the hell out of me, but it also gives me so much energy and an alive feeling. Through my head goes, no idea how I have organize it all and how it will work out, but well yes it is clear that is what I want.

So I have emailed this morning the real estate office to accept the offer. Of course today it is Sunday, so I don't expect any movement today, but it seems finally I have made my final choice and let go of my life in Holland.

So that is why for now I am back on entocort.

I
"As the sense of identity shifts from the imaginary person to your real being as presence awareness, the life of suffering dissolves like mist before the rising sun"
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nancyl
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Post by nancyl »

Hi Harma,
Well, now you have made your decision and it's done and will be behind you soon. Hopefully, you will begin to feel better and can move on and do whatever your plans are for Jordan. That was a big decision to make and can understand that you would feel stressed.

I wish you well and keep us posted.

Nancy
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Post by brandy »

Hi Harma,

Agree with Nancy....some decisions are tough but at least you can move forward. Brandy
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Post by Lesley »

Good for you Harma! That's wonderful! Just your description of feeling alive again is justification enough for you to do it. Nothing can move until YOU do.
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