Visit the Microscopic Colitis Foundation Website
http://todayhealth.today.msnbc.msn.com/ ... h-suggests
Tex, you need to put your input in the readers replies!
Mandy
Wow. Anybody see this article on MSN? Tex?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
My favorite part of the article 
Yeah, this should work just fine......
The best-known diagnostic method, Fasano and Corazza say, is a double-blind oral “challenge.” Patients are given drinks with and without gluten and then asked how they feel. Neither the patient nor the doctor knows which is which at the time of the testing. Such tests are expensive and time-consuming, though, Corazza says.
Yeah, this should work just fine......The best-known diagnostic method, Fasano and Corazza say, is a double-blind oral “challenge.” Patients are given drinks with and without gluten and then asked how they feel. Neither the patient nor the doctor knows which is which at the time of the testing. Such tests are expensive and time-consuming, though, Corazza says.
Mandy,
Ever notice that all the articles claiming that the gluten-free diet is a fad, and all that BS, are written by people who firmly believe that they are not adversely affected by gluten. Probably a lot of them subconsciously believe that if it doesn't bother them, it must be safe. And even if it does bother them, they're not about to admit it, because wheat is the staff of life, so they know it must be safe. (After all, their doctor says it's safe).
You'll never see an article promoting that conclusion, written by someone who actually realizes that they are gluten-sensitive, and they don't qualify for a celiac diagnosis, because the doctors don't know how to diagnose it. Consider the following pathetic quote from that article:
I couldn't help but cover that topic in the book, too, the medical attitude toward the diagnosis of celiac disease, really sucks. If they were in any other profession, that kind of incompetence wouldn't be tolerated.
The oral challenge that you mentioned is a typical example of their ignorance of the topic. That test will reveal wheat allergy, not gluten-sensitivity. Duh!
Tex
Ever notice that all the articles claiming that the gluten-free diet is a fad, and all that BS, are written by people who firmly believe that they are not adversely affected by gluten. Probably a lot of them subconsciously believe that if it doesn't bother them, it must be safe. And even if it does bother them, they're not about to admit it, because wheat is the staff of life, so they know it must be safe. (After all, their doctor says it's safe).
You'll never see an article promoting that conclusion, written by someone who actually realizes that they are gluten-sensitive, and they don't qualify for a celiac diagnosis, because the doctors don't know how to diagnose it. Consider the following pathetic quote from that article:
Well, they've been parroting that phrase for many years now - why don't the dumbasses get off their overpaid butts and figure out what it is. Is that asking too much. Duh!The problem, Corazza and Dr. Antonio Di Sabatino write in an opinion piece in the Annals of Internal Medicine, is that no one is quite sure what gluten sensitivity is.
I couldn't help but cover that topic in the book, too, the medical attitude toward the diagnosis of celiac disease, really sucks. If they were in any other profession, that kind of incompetence wouldn't be tolerated.
The oral challenge that you mentioned is a typical example of their ignorance of the topic. That test will reveal wheat allergy, not gluten-sensitivity. Duh!
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MaggieRedwings
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Wow! The comments, and I read them all, are quite interesting. Seems that some of the people just want to post to get attention and the others are so serious. If the 2 of them were in any other profession they would be fired for ineptitude.
Love, Maggie
Love, Maggie
Maggie Scarpone
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Here's a more in-depth article about this "news", posted on a government website:
http://www.healthfinder.gov/news/newsst ... ovdelivery
I like this suggestion:
http://www.healthfinder.gov/news/newsst ... ovdelivery
I like this suggestion:
What could it be??Levy said there's no question that some people appear to have what the researchers dubbed nonceliac gluten sensitivity. "Some people, when you remove gluten, have less gas, belly aches and nausea," he said.
But, he added that it might not be the gluten that's the problem, and could instead be something else in foods containing gluten.
One thing about the MSN article - at least it pinpoints the problem with the celiac diagnosis debacle. The problem is not at the office of all the GI docs out in the field, trying to diagnosis the disease, according to the rules - the problem is right at the top, with the good old boys who make the rules that the "troops" have to follow. IOW, as always, it's all about money and power and prestige. (Hmmmmm, that makes it sound sort of political, doesn't it? 
)
Tex
)Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
This compounds a problem that is already starting to emerge for me. I found out only a week ago that I am non-celiac gluten intolerant (plus eggs, soy, milk. etc.). I have already been challenged: how do you know? Was the test FDA approved?
I have no reason to doubt the test results based on my research and experience, but it's difficult to explain. I sometimes feel like I'm being seen as a dupe, but I can tell without any doubt that my symptoms are related to what I eat, and I am the one living in this body and in a position to really know. Now this article hints I may just be part of a silly fad.
Do you all have experiences with telling family and dinner partners? How do you handle it? Any tips?
Thank for your advice!
I have no reason to doubt the test results based on my research and experience, but it's difficult to explain. I sometimes feel like I'm being seen as a dupe, but I can tell without any doubt that my symptoms are related to what I eat, and I am the one living in this body and in a position to really know. Now this article hints I may just be part of a silly fad.
Do you all have experiences with telling family and dinner partners? How do you handle it? Any tips?
Thank for your advice!
Someone didn't even know enough about it to ask an intelligent question. The FDA has no authority over physicians, and they have no authority over labs that perform medical tests. The FDA doesn't approve lab tests, nor do they approve labs. Lab tests are patented, (if they're valid), and labs are registered with the U. S. Department of Health and Human Services, and licensed by the state in which they are located. I would assume that they are also regulated by the state health department. Enteorolab is fully registered and accredited:tnelson wrote:how do you know? Was the test FDA approved?
Anyone who wants, can check online with the Texas State Board of Medical Examiners to see if there are any sanctions against Dr. Fine. Trust me, if his operation wasn't on the level, there would be plenty of sanctions, and his license would be revoked, if the complaints were serious enough. The last time I checked, he had zero actions against him by the Board of Medical Examiners. You can also check his patents online, if you want. You can't patent a process, unless it's unique, you're the inventor, and it works. Here's one of them, for example:EnteroLab is registered with the U.S. Government's Department of Health and Human Services department as part of the Clinical Laboratory Improvement Amendments (CLIA). This agency oversees clinical laboratory standards and quality. We have also opted for (at our own expense) third-party accreditation from COLA, a non-profit national laboratory accreditation organization. EnteroLab passed this accreditation inspection in 2001 and re-accreditation in 2003, 2005, 2008 and 2010 with the highest standards. COLA accreditation is given only to laboratories that apply rigid standards of quality in day-to-day operations and pass a rigorous on-site laboratory survey. COLA is approved by the federal government and sponsored by the American Medical Association, the American College of Physicians-American Society of Internal Medicine, the American Academy of Family Physicians, the College of American Pathologists, and the American Osteopathic Association.
http://www.freepatentsonline.com/6667160.html
Too many people are judgmental, and if we don't look sick, they feel obligated to convince us that it's all in our head. They don't stop to think how cruel, (and how inconsiderate), they actually are. May the bird of paradise fly up their nose.
Almost all of us have either friends or family members who choose to be a PITA about the issue. I just tell them they can believe whatever they want, if it makes them happy, but it won't change anything. If any of them ever turn up with a similar disease, I'll be the first in line to give them a dose of their own medicine.
(Just joking - I'm not that cruel).Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
