New to gluten free

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helenejg
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Joined: Wed Feb 15, 2012 1:38 pm
Location: USA

New to gluten free

Post by helenejg »

I'm new to gluten free, so getting lots of information here. I'm just wondering--do most of you follow dairy free also. I've had a problem getting my MC under control and eating both gluten and dairy free. Was wondering if I can gradually start working my way back to a more normal diet as the inflammation settles and I go into a remission (been struggling since Sept but just began the GF diet). Thanks for any input you can give.
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tex
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Post by tex »

Hi,

Welcome to the board. I would guess that about 80 to 85% of those of us who are gluten-sensitive, are also sensitive to casein, (the primary protein in all dairy products), and about half of us are also sensitive to soy, and all or most legumes. We're all lactose-intolerant, until we get the inflammation under control, but after we get the inflammation under control, those of us who are not casein-sensitive, will usually be able to add dairy products back into our diet, because our ability to produce lactase enzyme, will usually return, again.

Everyone reacts somewhat differently, so some of us take longer to recover, before we can try adding back any foods. You can review food-sensitivity test results for some of us by clicking here, if you are interested.

Again, welcome aboard, and I hope you can find your solutions here, so that you can get your life back.

tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
helenejg
Posts: 3
Joined: Wed Feb 15, 2012 1:38 pm
Location: USA

Post by helenejg »

thanks for that information. What is the best test for gluten intolerance? I don't seem to be sensitive except when I'm having a flare up. but then, maybe that is why I keep having flare ups. this is all so new to me. I am going to ask the doctor to test me.
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tex
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Post by tex »

helenejg wrote:What is the best test for gluten intolerance?
Unless you also have fully developed celiac disease, (which only a few of us have), the classic celiac blood tests are worthless. They won't detect non-celiac gluten-sensitivity, even though we're just as sensitive to gluten as the average celiac. The only lab tests that will reliably detect food sensitivities are the stool tests offered by EnteroLab, in Dallas, Texas.

http://www.enterolab.com/StaticPages/TestInfo.aspx

Most GI docs are still unaware that food-sensitivities are the cause of the inflammation associated with MC, and they will argue until they are blue in the face, that diet has nothing to do with MC, so they won't order these stool tests for a patient. They were trained in med school, to believe that if a patient doesn't have celiac disease, then they can't be gluten-sensitive, (which is incorrect, of course). Here and there, a few GI docs are beginning to catch on, but most of us aren't lucky enough to be able to find one who's up to date on treating this disease - that's why this discussion board was created. We order the sample kits ourselves, and send the samples back to the lab, and they e-mail us our results.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
helenejg
Posts: 3
Joined: Wed Feb 15, 2012 1:38 pm
Location: USA

Post by helenejg »

Thanks for the link. I'll look into that. Wouldn't it be nice if my doctor turns out to be an enlightened one. I won't hold my breath, though.
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