Visit the Microscopic Colitis Foundation Website
Hi,
My name is Dawn and I just turned 40 in January. January 3rd I became ill and havent been able to recover since. I cannot keep food in me, and a lot of times liquids go straight through me as well. It took 2 1/2 months for DR's to finally do a colonoscopy and upper GI to diagnose me. I am on disability now and am going through a very rough time trying to get meds that do anything for me. When I was diagnosed I was put on Asacol, but that actually made things worse. I am now on 50 mg of prednisone a day and Hyoscyamine for the terrible cramping, Zofran to control the vomitting and nausea and Tramadol for pain. They had me on Lomotil for the Diahrea, which helped for a while but doesnt help anymore. I have now been put on Cholesturamine to help wiht the Big D but have not seen any improvemnet. I just started on that yesterday.
I cannot eat anything with out it going straight through me. I have lost 30 pounds since January 4th. I am no t big person, at 5'2" and now weigh 103. I was 133.
I am exhausted. I feel like a prisoner in my own home. When I try to get up and out with my family the pain in my right side and back are too much.
I want my life back!!
Any thoughts or ideas or help would be greatly appreciated. The doctors all seem to be stumped.
Thanks in advance,
Dawn
REcently diagnosed with Microscopic colitis
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Dawn,
Welcome to the board. I'm sorry to hear that you have such severe symptoms, but many of us have been where you are, now. As you will learn, as you read more here, despite the lack of knowledge in the GI medical community, diet changes are the key to getting our life back. Eliminating gluten, and all dairy products from our diet, often does wonders for many of us. About half of us also have to avoid all products that contain soy, and some of us have additional food-sensitivities, but though we are all different, we have to alter our diet, if we want to control our symptoms. As you have found, for many of us, medications alone are not sufficient to control the inflammation, because as long as we continue to eat the foods that cause it, we continue to generate new inflammation.
Many of us are able to control our symptoms without any meds at all, while the more severe cases use a combination of meds and diet changes to get their life back. Please don't let your doctors convince you that diet has nothing to do with digestive system diseases. That's like saying that breathing polluted air has nothing to do with asthma, black lung disease, or COPD.
As you know, you cannot stay on prednisone forever, without destroying your adrenals, and developing osteoporosis, so the sooner you start eliminating gluten and dairy from your diet, the sooner you will be able to begin enjoying life, again.
In case you're wondering how you could suddenly have food-sensitivities, after eating whatever you wanted for 40 years, research shows that when the genes that predispose to microscopic colitis are triggered, the genes that predispose to certain food-sensitivities are also triggered, at the same time, (beginning with gluten-sensitivity, and almost always including casein-sensitivity, as well).
Again, welcome aboard, and I hope you can find your solutions here, as most of us have done. Consider this to be the first day of your journey back to health. Please feel free to ask anything.
Tex
Welcome to the board. I'm sorry to hear that you have such severe symptoms, but many of us have been where you are, now. As you will learn, as you read more here, despite the lack of knowledge in the GI medical community, diet changes are the key to getting our life back. Eliminating gluten, and all dairy products from our diet, often does wonders for many of us. About half of us also have to avoid all products that contain soy, and some of us have additional food-sensitivities, but though we are all different, we have to alter our diet, if we want to control our symptoms. As you have found, for many of us, medications alone are not sufficient to control the inflammation, because as long as we continue to eat the foods that cause it, we continue to generate new inflammation.
Many of us are able to control our symptoms without any meds at all, while the more severe cases use a combination of meds and diet changes to get their life back. Please don't let your doctors convince you that diet has nothing to do with digestive system diseases. That's like saying that breathing polluted air has nothing to do with asthma, black lung disease, or COPD.
As you know, you cannot stay on prednisone forever, without destroying your adrenals, and developing osteoporosis, so the sooner you start eliminating gluten and dairy from your diet, the sooner you will be able to begin enjoying life, again.
In case you're wondering how you could suddenly have food-sensitivities, after eating whatever you wanted for 40 years, research shows that when the genes that predispose to microscopic colitis are triggered, the genes that predispose to certain food-sensitivities are also triggered, at the same time, (beginning with gluten-sensitivity, and almost always including casein-sensitivity, as well).
Again, welcome aboard, and I hope you can find your solutions here, as most of us have done. Consider this to be the first day of your journey back to health. Please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Hi Dawn and welcome to the group from New Hampshire. You most certainly are not alone here, as many of our experiences echo yours. Did they also do a test for C-diff, an infection that can cause this level of D. They usally request a stool sample for that test.
Ok so you have a diagnosis, so it's time to start treating it. First and foremost the main treatment is diet. What we have found is almost all of us here are reacting to gluten, and a good portion of us are reacting to soy and dairy. In conjunction with the meds I would reccomend the following
Remove all gluten from your diet, which includes anything with wheat or flour in it (breads, pasta, cereal ...etc) keep in mind that most processed and packaged foods have gluten in them. Additionally avoid barley and rye as they also contain gluten. It's easiest to simply start making your meals with whole foods and avoid anything that comes packaged from a factory until you can really get a handle on how good a particular manufacturer is on eliminating gluten form thier processes.
Next avoid soy which many of us react to almost as strongly as gluten and avoid dairy. This does not mean that you are sensitive to these foods, but there is a good chance you are. The goal in eliminating all of these early on is to get you relief as soon as possible. You can test yourself later after you are feeling better to see if you are reacting to these foods.
Avoid all raw fruits and vegetables as they are simply rough on your system. Be sure to thoruoughly cook all of your fruits and veggies. For me this was hard as I love my salads. Later on after some healing has occurred you most likely will be able to handle the raw fruits and veggies again.
Avoid citrus or acidic juices and fruits. Again later you most likely will be able to tolerate them but they do aggravate the GI system.
Finally meds are the next question. Prednisone while it does help as a steroid, there are better choices. Entocort, another steroid like prednisone works quite well with almost no side effects. Prednisone has a lot of side effects and problems associated with it. There are many horror stories here on th site about prednisone. For the moment follow your doctors orders very carefully on the prednisone, as you cannot make sudden changes in its dosage without causing serious problems. I would however recomend taking with your doctor soon about switching over to Entocort if you want to use meds to help with settling this down.
The reasons entocort as a steroid is better than prednisone, is that unlike prednisone, it mostly stays in the GI tract and does not affect the rest of your body...prednisone does not do this and is hard to taper off of. Keep in mind both meds work well, but to achieve long term relief, you need to address the diet right away and stick with it.
Later after you have been sticking with the dietary changes and reduced the meds, you may want to consider a form of dietary tolerance testing that looks for your food intolerances, as they are what's causing these reactions in you with MC. There are 2 types of testing, first is Enterolab which uses a stool sample to identify in the gut what your reacting to. Next there is a blood test that uses a testing technique from Signet diagnostics called MRT testing. Both methods will help you fine tune your diet by identifying and eliminating the foods that are causing you issues. You will have to be off the meds for a while before you can take eithier test.
With things being this bad right now, using the meds for a few months would be a good idea to settle things down, while you make the dietary changed I mentioned earlier.
Now keep in mind a lot, if not most GI docs will admit that diet has anything to do with GI problems...well that's like saying polluted air has nothing to do woth asthma symptoms...they are trained to give enough medications to tolerate foods that your system may no longer be able to handle. This trend is slowly changing as a lot of research is now showing the strong link between diet and MC.
I'm sure others will comment soon, I hope you feel better soon Dawn....don't worry too much, we all have been right where you are at now....it will get better soon, especially once you get the diet sorted out.
Take care
Ok so you have a diagnosis, so it's time to start treating it. First and foremost the main treatment is diet. What we have found is almost all of us here are reacting to gluten, and a good portion of us are reacting to soy and dairy. In conjunction with the meds I would reccomend the following
Remove all gluten from your diet, which includes anything with wheat or flour in it (breads, pasta, cereal ...etc) keep in mind that most processed and packaged foods have gluten in them. Additionally avoid barley and rye as they also contain gluten. It's easiest to simply start making your meals with whole foods and avoid anything that comes packaged from a factory until you can really get a handle on how good a particular manufacturer is on eliminating gluten form thier processes.
Next avoid soy which many of us react to almost as strongly as gluten and avoid dairy. This does not mean that you are sensitive to these foods, but there is a good chance you are. The goal in eliminating all of these early on is to get you relief as soon as possible. You can test yourself later after you are feeling better to see if you are reacting to these foods.
Avoid all raw fruits and vegetables as they are simply rough on your system. Be sure to thoruoughly cook all of your fruits and veggies. For me this was hard as I love my salads. Later on after some healing has occurred you most likely will be able to handle the raw fruits and veggies again.
Avoid citrus or acidic juices and fruits. Again later you most likely will be able to tolerate them but they do aggravate the GI system.
Finally meds are the next question. Prednisone while it does help as a steroid, there are better choices. Entocort, another steroid like prednisone works quite well with almost no side effects. Prednisone has a lot of side effects and problems associated with it. There are many horror stories here on th site about prednisone. For the moment follow your doctors orders very carefully on the prednisone, as you cannot make sudden changes in its dosage without causing serious problems. I would however recomend taking with your doctor soon about switching over to Entocort if you want to use meds to help with settling this down.
The reasons entocort as a steroid is better than prednisone, is that unlike prednisone, it mostly stays in the GI tract and does not affect the rest of your body...prednisone does not do this and is hard to taper off of. Keep in mind both meds work well, but to achieve long term relief, you need to address the diet right away and stick with it.
Later after you have been sticking with the dietary changes and reduced the meds, you may want to consider a form of dietary tolerance testing that looks for your food intolerances, as they are what's causing these reactions in you with MC. There are 2 types of testing, first is Enterolab which uses a stool sample to identify in the gut what your reacting to. Next there is a blood test that uses a testing technique from Signet diagnostics called MRT testing. Both methods will help you fine tune your diet by identifying and eliminating the foods that are causing you issues. You will have to be off the meds for a while before you can take eithier test.
With things being this bad right now, using the meds for a few months would be a good idea to settle things down, while you make the dietary changed I mentioned earlier.
Now keep in mind a lot, if not most GI docs will admit that diet has anything to do with GI problems...well that's like saying polluted air has nothing to do woth asthma symptoms...they are trained to give enough medications to tolerate foods that your system may no longer be able to handle. This trend is slowly changing as a lot of research is now showing the strong link between diet and MC.
I'm sure others will comment soon, I hope you feel better soon Dawn....don't worry too much, we all have been right where you are at now....it will get better soon, especially once you get the diet sorted out.
Take care
Joe
Thanks for the Welcome Tex!
My doctors have all told me to eat what I can tolerate. They have never suggested any diet changes. I think that is a good first step. I will do some research on Gluten free diets and start that right away.
I have never been so sick in all my life and it just came on all of a sudden. The doctors cant tell me what caused this or what causes it. Any ideas there? It would be nice to know what causes it.
The prednisone is making me very moody, having a hard time sleeping and my face, neck and chest all look like Ive been out in the sun and gotten a really bad burn, which I have not. Ive never had to be on meds and hate it so I am willing to do anything at this point to feel better and stay better with out meds.
Again thank you and I am so happy I stumbled on to this board. Its nice to know there are others out there like me :-)
My doctors have all told me to eat what I can tolerate. They have never suggested any diet changes. I think that is a good first step. I will do some research on Gluten free diets and start that right away.
I have never been so sick in all my life and it just came on all of a sudden. The doctors cant tell me what caused this or what causes it. Any ideas there? It would be nice to know what causes it.
The prednisone is making me very moody, having a hard time sleeping and my face, neck and chest all look like Ive been out in the sun and gotten a really bad burn, which I have not. Ive never had to be on meds and hate it so I am willing to do anything at this point to feel better and stay better with out meds.
Again thank you and I am so happy I stumbled on to this board. Its nice to know there are others out there like me :-)
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MBombardier
- Rockhopper Penguin
- Posts: 1523
- Joined: Thu Oct 14, 2010 10:44 am
- Location: Vancouver, WA
Hi Dawn! Welcome! The following links may be helpful. The last two were written by Polly, who is an MD. Not all the doctors are stumped. Another MD who knows what he's talking about is Dr. Fine at Enterolab in Dallas. He has MC, too. I'm beginning to think that you have to have it in order to start to understand it. FAQs: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=1157
What We Have Learned About MC: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=1157
Overview of MC: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=201
Marliss Bombardier
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
I'm writing a book, (which is almost finished), that includes my theory about how MC, (and all autoimmune diseases), develop, so I can't post about it, until the book is published, because I might be accused of self-plagiarism, if I post it now.dawnpice wrote:The doctors cant tell me what caused this or what causes it. Any ideas there? It would be nice to know what causes it.
If that redness looks like what is known as a "flush", it's possible that you may have mast cell involvement with your MC, which would help to explain why your symptoms are so severe. Were your biopsy slides checked for an elevated mast cell count, when they were sent to the pathologist? This is separate from an elevated lymphocyte count, (which is the diagnostic marker for LC).dawnpice wrote:The prednisone is making me very moody, having a hard time sleeping and my face, neck and chest all look like Ive been out in the sun and gotten a really bad burn, which I have not. Ive never had to be on meds and hate it so I am willing to do anything at this point to feel better and stay better with out meds.
If you have mast cell issues, then all foods that contain high levels of histamines, and all foods that trigger the degranulation of mast cells, will cause you to react. Here are some sources of information on such foods:
http://www.michiganallergy.com/food_and_histamine.shtml
http://www.urticaria.thunderworksinc.co ... foodsource
This can be a very complex and insidious disease, but with motivation and dedication, we find ways to control it.
You're very welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Dawn as far as there not being much left after eliminating gluten, soy and dairy...it's not too bad at all. Here is a link to a section of this website that has hundreds of good recipes that frankly taste better than their gluten and soy containing counterparts.
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
Joe
Dawn, welcome!
One of the things I have learned is to NEVER eat anything processed. Everything made from scratch, kept simple. Tex's rule is "no more than 5 ingredients".
That's the only way to be sure you are not being contaminated.
Joe learned to cook so he could prepare his own food from scratch. I already could cook, but have to be VERY creative so that things I can eat taste good, because otherwise I can't eat. Digestion begins in the mouth with saliva, which is only stimulated if the food tastes good. So you need to make the food you eat tasty and inviting.
I can't eat a lot at once. I prefer to eat often and little. It also makes it easier to figure out what isn't agreeing with you.
Don't hesitate to ask ANYTHING! Nothing is embarrassing on this board. We have all been there, done that! As Gabes says, we speak fluent MC here.
Lesley
One of the things I have learned is to NEVER eat anything processed. Everything made from scratch, kept simple. Tex's rule is "no more than 5 ingredients".
That's the only way to be sure you are not being contaminated.
Joe learned to cook so he could prepare his own food from scratch. I already could cook, but have to be VERY creative so that things I can eat taste good, because otherwise I can't eat. Digestion begins in the mouth with saliva, which is only stimulated if the food tastes good. So you need to make the food you eat tasty and inviting.
I can't eat a lot at once. I prefer to eat often and little. It also makes it easier to figure out what isn't agreeing with you.
Don't hesitate to ask ANYTHING! Nothing is embarrassing on this board. We have all been there, done that! As Gabes says, we speak fluent MC here.
Lesley
Gee, maybe that's my problem. I like my breakfasts and lunches, but dinner is sooo boring: meat and gravy, a muffin, sometimes asparagus or cauliflower, all with salt as the only seasoning. I don't seem to be able to tolerate many spices or seasonings. Pepper shows up the next morning if I try it. Water to drink. Adding the mango has helped, though.Lesley wrote:Digestion begins in the mouth with saliva, which is only stimulated if the food tastes good. So you need to make the food you eat tasty and inviting.
Gloria
You never know what you can do until you have to do it.
Hi I'm new also
Hi Dawn and welcome. I was diagnosed this February and I know how horrible this is at first. Most of ours came on all of a sudden. I have learned so much from Tex and all of the others here. I found out about Entocort from this site and asked my Doctor right away for it. For me, it has worked wonders- and quickly!
At first I hated the idea of having to change my diet so drastically, but I have gone GF and GF. And like Joe said, FOR NOW, i also don't eat raw fruits and veggies or beans or even tomato sauce ( very acid). Then I sent away for the Enterolab test. WARNING: If you are thinking of doing this, get a IgA blood test done first to make sure you are producing the antibodies that the test looks for. I paid a lot of money and when the results came back practically negative for EVERYTHING, I knew something was wrong. Turns out that I am one of the 1 in 500 people who don't produce the antibodies! I would have LOVED to get some accurate results so I'd know for sure what I am intolerant to, but I'm going to have to do it the hard way. Soon, I will probably take soy out also. It takes a while to get use to eating like this and it's not good for eating out or socializing, but you get to the point when all you want is to feel better and be able to do things. I actually feel pretty good right now and will probably slowly step down the drugs within the next 3 months. Then i will see how things are.
Good luck and feel free to ask anything and share your journey with us
Leah
At first I hated the idea of having to change my diet so drastically, but I have gone GF and GF. And like Joe said, FOR NOW, i also don't eat raw fruits and veggies or beans or even tomato sauce ( very acid). Then I sent away for the Enterolab test. WARNING: If you are thinking of doing this, get a IgA blood test done first to make sure you are producing the antibodies that the test looks for. I paid a lot of money and when the results came back practically negative for EVERYTHING, I knew something was wrong. Turns out that I am one of the 1 in 500 people who don't produce the antibodies! I would have LOVED to get some accurate results so I'd know for sure what I am intolerant to, but I'm going to have to do it the hard way. Soon, I will probably take soy out also. It takes a while to get use to eating like this and it's not good for eating out or socializing, but you get to the point when all you want is to feel better and be able to do things. I actually feel pretty good right now and will probably slowly step down the drugs within the next 3 months. Then i will see how things are.
Good luck and feel free to ask anything and share your journey with us
Leah
Hi Dawn, and 
Here is what Dr. Fine says about the cause of MC (from his website www.finerhealth.com):
What is the cause of Microscopic Colitis?
Extensive data from animals (mainly rodents) suggest that any form of colitis is the result of the body's immune system setting up an unusual attack on the bacteria living in the colon. What makes the body suddenly recognize these bacteria as harmful and worthy of this attack is not fully understood but there are several clues based on my research. First, it is known that aspirin and other non-steroidal antiinflammatory drugs (NSAID's) can cause this reaction. Also, if the balance of less immune stimulating bacteria (we will call "good bacteria") and more immunostimulatory bacteria ("bad bacteria") favors the latter, inflammation can result. This can occur from use of antibiotics and probably from chronic consumption of certain foods that favor growth of bad bacteria. The role of yeast (for example Candida) in this process is unstudied and therefore unknown. However, whatever tips the scale toward this reaction, it appears that there is an underlying gene responsible for the predisposition to have this form of colitis. In fact, my recent studies have revealed in most cases, the gene is the same as the one known to cause celiac sprue and gluten sensitivity (explaining why some patients get both syndromes). Furthermore, it appears that colitis can cause the immune system to begin recognizing gluten as immunostimulatory and vice versa, gluten sensitivity can lead to colitis.
Good luck finding your path to health.
Love,
Polly
Here is what Dr. Fine says about the cause of MC (from his website www.finerhealth.com):
What is the cause of Microscopic Colitis?
Extensive data from animals (mainly rodents) suggest that any form of colitis is the result of the body's immune system setting up an unusual attack on the bacteria living in the colon. What makes the body suddenly recognize these bacteria as harmful and worthy of this attack is not fully understood but there are several clues based on my research. First, it is known that aspirin and other non-steroidal antiinflammatory drugs (NSAID's) can cause this reaction. Also, if the balance of less immune stimulating bacteria (we will call "good bacteria") and more immunostimulatory bacteria ("bad bacteria") favors the latter, inflammation can result. This can occur from use of antibiotics and probably from chronic consumption of certain foods that favor growth of bad bacteria. The role of yeast (for example Candida) in this process is unstudied and therefore unknown. However, whatever tips the scale toward this reaction, it appears that there is an underlying gene responsible for the predisposition to have this form of colitis. In fact, my recent studies have revealed in most cases, the gene is the same as the one known to cause celiac sprue and gluten sensitivity (explaining why some patients get both syndromes). Furthermore, it appears that colitis can cause the immune system to begin recognizing gluten as immunostimulatory and vice versa, gluten sensitivity can lead to colitis.
Good luck finding your path to health.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi again Dawn!
Marliss provided some links above to posts I had written. Here is another one (I thought it was somewhere on this site but just can't seem to locate it):
What We Wish Our GI Docs Knew About MC
1. Suffering from diarrhea 24/7 is a life-altering experience. It is NOT a “minor inconvenience”, nor is it something anyone would wish to “live with”.
2. Every colonoscopy MUST include multiple biopsies from various areas of the colon.
3. A diagnosis of Irritable Bowel Syndrome (IBS) cannot be made without multiple biopsies of the colon that rule out MC.
4. MC can affect anyone…..from toddlers to pregnant women to seniors. Even dogs have been diagnosed with MC and prescribed Entocort!
5. Fiber does not help MC.
6. MC does not “go away” or resolve after several years. However, its symptoms can be managed successfully over the long-term with ongoing diet or medication or both.
7. Almost ALL with MC also have food intolerances, primarily gluten, but often other intolerances like dairy, soy, yeast, etc.
8. The gluten sensitivity that goes along with MC is NOT picked up by the classic tests for celiac disease (endoscopy, blood tests for IgA antibody or tissue transglutaminase). These tests will be negative. However, it is just as severe a sensitivity as it is in full-blown celiac disease.
9. Entocort must often be used longer-term than the literature would indicate………up to a year and even longer if an elimination diet is not being followed. Also, it must be maintained for longer periods before it is tapered.
10. The research, lab tests, and recommendations that have been most helpful to date to those with MC (after initial diagnosis) are from Dr. Kenneth Fine (www.finerhealth.com). Dr. Fine performs STOOL antibody tests for gluten, soy, yeast, dairy, eggs, etc. to determine food intolerances which must be eliminated. He also performs genetic testing and has found specific genes (other than the classic DQ2 and DQ8 for celiac disease) that predispose to gluten sensitivity.
Marliss provided some links above to posts I had written. Here is another one (I thought it was somewhere on this site but just can't seem to locate it):
What We Wish Our GI Docs Knew About MC
1. Suffering from diarrhea 24/7 is a life-altering experience. It is NOT a “minor inconvenience”, nor is it something anyone would wish to “live with”.
2. Every colonoscopy MUST include multiple biopsies from various areas of the colon.
3. A diagnosis of Irritable Bowel Syndrome (IBS) cannot be made without multiple biopsies of the colon that rule out MC.
4. MC can affect anyone…..from toddlers to pregnant women to seniors. Even dogs have been diagnosed with MC and prescribed Entocort!
5. Fiber does not help MC.
6. MC does not “go away” or resolve after several years. However, its symptoms can be managed successfully over the long-term with ongoing diet or medication or both.
7. Almost ALL with MC also have food intolerances, primarily gluten, but often other intolerances like dairy, soy, yeast, etc.
8. The gluten sensitivity that goes along with MC is NOT picked up by the classic tests for celiac disease (endoscopy, blood tests for IgA antibody or tissue transglutaminase). These tests will be negative. However, it is just as severe a sensitivity as it is in full-blown celiac disease.
9. Entocort must often be used longer-term than the literature would indicate………up to a year and even longer if an elimination diet is not being followed. Also, it must be maintained for longer periods before it is tapered.
10. The research, lab tests, and recommendations that have been most helpful to date to those with MC (after initial diagnosis) are from Dr. Kenneth Fine (www.finerhealth.com). Dr. Fine performs STOOL antibody tests for gluten, soy, yeast, dairy, eggs, etc. to determine food intolerances which must be eliminated. He also performs genetic testing and has found specific genes (other than the classic DQ2 and DQ8 for celiac disease) that predispose to gluten sensitivity.
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hey Gloria,
And I dislike my breakfasts. I put off breakfast as long as possible because I don't like eating meat + for breakfast.
I am also only using salt as a seasoning currently, so I am finding that the grass fed meat is really helping in terms of appetizing-ness, because it has so much flavor. Also, home made stock (of which I spilled half a pot yesterday) also makes a big difference.
My stock is way less tasty now since I made it as per Gabes' instructions, without vegetables.
Still, as someone else who is VERY limited in foods, I get the boring comment.
I am going back to square 1 again since I still don't have a handle on what is upsetting me. And I am so unsure of where square one is. I don't know what is upsetting me now.
And I dislike my breakfasts. I put off breakfast as long as possible because I don't like eating meat + for breakfast.
I am also only using salt as a seasoning currently, so I am finding that the grass fed meat is really helping in terms of appetizing-ness, because it has so much flavor. Also, home made stock (of which I spilled half a pot yesterday) also makes a big difference.
My stock is way less tasty now since I made it as per Gabes' instructions, without vegetables.
Still, as someone else who is VERY limited in foods, I get the boring comment.
I am going back to square 1 again since I still don't have a handle on what is upsetting me. And I am so unsure of where square one is. I don't know what is upsetting me now.
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CathyMaine
- Little Blue Penguin
- Posts: 36
- Joined: Fri Mar 30, 2012 8:06 am
Welcome Dawn. I'm a newbie to this board as well and have found some very valuable information. Thanks for the links Marliss and Polly. Joe, I live in Maine...I'm curious if you have any recommendations for a GI in our area? Thanks.MBombardier wrote:
FAQs: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=1157
What We Have Learned About MC: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=1157
Overview of MC: http://www.perskyfarms.com/phpBB2/viewtopic.php?t=201