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Hi Mary,
Thanks for your follow-up. Let us know the diagnosis your doctor gives you. Don't believe what he said about diet. You will get through this and we will help you with the diet part. There are better days ahead.
Best
Cory enjoy those drugs ...I myself love that loopy feeling.
CoryGut
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
I hope that getting a diagnosis will help you figure out how to go about treating the problem. As Cory said, don't believe anyone who says diet doesn't affect MC. It does.
I can empathize with your dilemma about how to eat in China. I went to Thailand for a month is May, and I ended up not daring to eat any food that we didn't cook ourselves. I was staying with my son and his wife, and they are aware of my diet, and were extremely careful for me. Actually, I did eat one cooked meal out--stir-fried greens, and I stressed over and over that they shouldn't put any soy sauce or any other kind of sauce on it. They assured me they wouldn't, but since I talked to the fourth person who tried to understand what I wanted (language barrier!!), they didn't know what it was that I wanted, and I did end up getting D from it.
All that to say, my advice would be to get Entocort right away, and get it in your system and see if it helps you (it did help me within a week), and then take it the whole time you're in China and eat what they serve you. Then when you get back from China you can eliminate gluten, soy, dairy, etc. from your diet. I think it will keep your stress level down not to have to worry about every single bite of food you take.
I was an Entocort user and I think Martha has a great point. Unless you are doing extremely well at GF DF SF now--suggest get on Entocort asap. Take it during your trip and eat what you want on your trip and go GF DF SF when you return from your trip. Entocort will allow you to eat what you want with no worries. Within 3 days of use I had solid stool and within 3 weeks I had constipation. I didn't go GF until 6 weeks after I started on Entocort due to denial and I didn't go DF until 2-1/2 weeks b/f getting off of Entocort. This will greatly eliminate your stress levels. Work on your diet changes when you return from China.
Thanks so much for your kind notes. I really appreciate it. I find myself praying to God that I have microscopic colitis rather than ulcerative colitis. Tex, please please be right about this!!!
Today was just a bad day, so I will keep this post short. It was bad not from physical symptoms, but from worry. I think my prior histories with cancer have just pushed me past the edge.
I don't want to be a negative nelly here, so I'm just throwing out a broad net of a request for some prayers for healing. Thanks in advance.
In the name of Jesus, and by the power of the Holy Spirit, I ask for guardian and warring angels to surround Mary. Guide her and protect her, keep her safe and secure, free from any harm, whether it be physical, spiritual or mental. Holy Spirit, lead and guide Mary today. Lord, let Mary walk in your love, in your blessings, with the host of heaven ministering to her and protecting her from any harm.
Visit the Microscopic Colitis Foundation Website
enjoy those drugs ...I myself love that loopy feeling.
