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Hi all,
I need your help. I have had severe pain in mostly my hip for 3 months. Mainly at the ischial tuberosity and muscle hold there. I also sciatic pains down the hind leg, the bottom of the calf and is sore in the back.
I can not sit down, or lie down too long. The only thing that gives some pain relief is to walk slowly .
I have met 6 doctors, four physiotherapists but they find nothing and I still have not received any treatment (only tylenol, which does not help). My blood tests are good , MR X-ray on his back showed nothing, and muscle strength seems to be normal.
I will have to wait at least 1 month more before I get to meet a rheumatologist.
Now with 3 months at home from my work with constant pain and difficulty sleeping at night has made me very sad. My wife and children 2 to 6 years old is what keeps me going.
I suspect myself that I have arthritis of the hip and spine, but still do not know. Normally you treat this with NSAID type Naproxen. But I can not eat because of my colitis.
What had you done? What are my alternatives to this unsustainable situation.
Some I am contemplating .
1. Take NSAIDs and become bad in the gut but may be good in the hip and spine. Is there any other more serious consequences of taking NSAIDs at MC ?
2.Take sulfasalazine and hope it helps. Do not know how it will affect us with MC.
3. Start taking budesonide (Budenofak), Entocort which I have not taken yet, because I have not had diarrhea but just a little stomach pain on and off. This might heal the gut so that no more toxins entering the blood..
4. Just eat rice and chicken soup a few weeks and hope it gets better.
5. Try candida diet or antihistamine (daosin)
Something else?
I eat acetaminophen (tylenol) and have begun to try boswellia, but yet it has no / little effect.
I have struggled for 1year and tried to find what I can not tolerate the food, but have usually had a little stomach ache at night and stool 1 time per day slightly loose. My gut has not been healed, and probably leaked toxins in the blood that have affected my muscle attachment and joints. (leaky gut syndrome). It is not unusual to get arthritis associated with IBD or psoriasis that I have.
My food the last 6 months, chicken, coconut, rice, sweet potatoes, salmon, rice flour, teff flour, corn flour, canola oil and olive oil. Sometimes, apple, berry, flaxseed, potatoes, spinach. Spices: salt, pepper, oregano and thyme .
Home alone with constant pain, not being able to sleep for long and not knowing what I'am dealing with for 3 months is not a good felling.
Any advice you might have would be much appreciated .
Kind regards, Jonas
Severe pain, arthritis?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
I am so sorry you are having a difficult time and that you are dealing w/ depression. Feeling physically unwell, especially for long periods of time, can cause a great deal of emotional distress. :(
My husband has pretty much chronic hip pain. He has arthritis in his hip, and another condition that is genetic that I can't remember. He does a particular stretch every day, sometimes twice a day, that really helps.
Lying back, he sits on the edge of the couch so he can lower his leg while pulling the other leg/knee to his chest. He does this maybe three or four times. He also went to physical therapy, which helped. And the ortho doctor gave him a steroid shot in his hip.
Perhaps swimming would help?
As to join pain, I get that a lot. My hands often give me the greatest frustrations (mainly because I'm a writer who absolutely has to use my hands). But I also will get random stabbing joint pain and throbbing, for what appears to be no apparent reason (for example, while lying in bed). I'm not sure what causes it, but I've begun to peg everything as a symptom of inflamation. Not sure if that's accurate.
It seems as if your D is doing ok as you are only going once a day, but it does appear you are eating a fair amount of fiber (berries, apple, fax seed, spinach). My GI put me on a low-fiber diet, which, although it hasn't stopped the D completely, it has helped.
My husband has pretty much chronic hip pain. He has arthritis in his hip, and another condition that is genetic that I can't remember. He does a particular stretch every day, sometimes twice a day, that really helps.
Lying back, he sits on the edge of the couch so he can lower his leg while pulling the other leg/knee to his chest. He does this maybe three or four times. He also went to physical therapy, which helped. And the ortho doctor gave him a steroid shot in his hip.
Perhaps swimming would help?
As to join pain, I get that a lot. My hands often give me the greatest frustrations (mainly because I'm a writer who absolutely has to use my hands). But I also will get random stabbing joint pain and throbbing, for what appears to be no apparent reason (for example, while lying in bed). I'm not sure what causes it, but I've begun to peg everything as a symptom of inflamation. Not sure if that's accurate.
It seems as if your D is doing ok as you are only going once a day, but it does appear you are eating a fair amount of fiber (berries, apple, fax seed, spinach). My GI put me on a low-fiber diet, which, although it hasn't stopped the D completely, it has helped.
Jonas,
I'm very sorry that you're having such a disabling problem. I don't recall anyone else here ever having a similar problem that was so severe. And I don't have any suggestions that might help to correct the problem. One would think that there would be exercises that might help (as Jennifer suggested), but I don't know which ones might help.
Is Tramadol available in Sweden? Tramadol might help control the pain, and it shouldn't affect your MC. I hope you can solve the problem soon.
Tex
I'm very sorry that you're having such a disabling problem. I don't recall anyone else here ever having a similar problem that was so severe. And I don't have any suggestions that might help to correct the problem. One would think that there would be exercises that might help (as Jennifer suggested), but I don't know which ones might help.
Is Tramadol available in Sweden? Tramadol might help control the pain, and it shouldn't affect your MC. I hope you can solve the problem soon.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Jonas,
Personally, I consider them to be very risky for someone who is already prone to developing autoimmune diseases. NSAIDs can cause many different health problems. Consider these quotes from the article at the link below:
On the other hand, we know for sure that uncontrolled autoimmune diseases lead to additional autoimmune diseases, so this is a very difficult situation. The big question is exactly what you have asked, "whether any perceived benefits that might be derived from the use of NSAIDs might outweigh the long-term health risks. I can't answer that question, but personally, I would be afraid to use them for anything more than very short-term use. The biggest problem is that we can't predict what will actually happen, until after it has happened.
Tex
Personally, I consider them to be very risky for someone who is already prone to developing autoimmune diseases. NSAIDs can cause many different health problems. Consider these quotes from the article at the link below:
Here's one mechanism by which NSAIDS damage gut tissue. NSAIDS work by blocking the action of messenger molecules called prostaglandins. Some prostaglandins cause inflammation and pain while others stimulate healing and repair. NSAIDS block both. Because the intestinal lining has to be replaced about every three days, blocking the repair process over time results in a gut that is weak, inflamed, and leaky.
Damaged gut tissue will malabsorb nutrients. You could eat an excellent diet and still suffer malnutrition because nutrient absorption is impaired. Since malnutrition is the leading cause of death in America, adding malabsorption to our already deficient diets is catastrophic to long term health. Another thing that happens when gut tissue is injured is that it becomes more permeable to the large molecules of undigested food as well as to microorganisms. When this happens, allergenic substances and microorganisms can enter into the blood stream and circulate throughout the body provoking chronic immune responses. These immune responses sometimes create antibodies that match certain body tissues. Since the antibody can't distinguish between the two, it may end up attacking the body and provoking an autoimmune disease such as arthritis. In this manner, NSAIDS can actually cause arthritis or make existing arthritis worse, thus requiring more NSAIDS for the pain and putting a vicious cycle into motion. Excessive immune reactions produce a lot of debris called immune complexes that can overwhelm the kidneys and cause kidney disease.
The Hazards of Painkillers (NSAIDS)In addition to the above, NSAIDS can cause a variety of other problems including effects on the central nervous system such as cognitive dystoreunction, hearing loss, headaches, and ringing in the ears. They can also cause skin rashes and photosensitize the skin making it susceptible to sun damage and skin cancer. NSAIDS can also cause anemia, vision problems, pancreatic problems, as well as liver failure and acute kidney failure. Convincing new evidence links aspirin consumption to macular degeneration, which is the number one cause of blindness in people over 55. NSAIDS also interfere with melatonin production. A 1996 study in Physiological Behavior showed a 75% nighttime reduction in melatonin secretion. This can cause problems with sleep, but more importantly, decreased melatonin production has been associated with cancer promotion. On the bottom line, NSAIDS merely suppress symptoms while initiating a cascade of events with potentially catastrophic consequences. There are only two causes of disease—deficiency and toxicity. NSAIDS destabilize the digestive system in a way that promotes both deficiency and toxicity thereby systematically destroying health. The resulting chronic immune responses throw the body into immune overload thereby depressing immune function and promoting a variety of immune dystoreunction diseases including allergies, arthritis, autoimmune syndromes, and AIDS.
On the other hand, we know for sure that uncontrolled autoimmune diseases lead to additional autoimmune diseases, so this is a very difficult situation. The big question is exactly what you have asked, "whether any perceived benefits that might be derived from the use of NSAIDs might outweigh the long-term health risks. I can't answer that question, but personally, I would be afraid to use them for anything more than very short-term use. The biggest problem is that we can't predict what will actually happen, until after it has happened.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Hi Jonas, I'm so sorry for your situation. Chronic pain is extremely debilitating to both body and soul.
To me it sounds like you have a couple of different issues. Your pain sounds more like sciatica from a bulging or herniated disk in your back. Have you had an MRI? Have you had any physical therapy? Have you seen an orthopedist? You seem to be too young to have degenerative hip problems. Sciatic pain from a bulging or herniated disk can skip around as it travels down the nerve to your foot. I tell you this from personal experience.
Don't give up. Try doing gentle yoga, stretching your back. As Tex suggested, Tramadol might help your pain.
Good luck, Jonas.
Sheila W
To me it sounds like you have a couple of different issues. Your pain sounds more like sciatica from a bulging or herniated disk in your back. Have you had an MRI? Have you had any physical therapy? Have you seen an orthopedist? You seem to be too young to have degenerative hip problems. Sciatic pain from a bulging or herniated disk can skip around as it travels down the nerve to your foot. I tell you this from personal experience.
Don't give up. Try doing gentle yoga, stretching your back. As Tex suggested, Tramadol might help your pain.
Good luck, Jonas.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Sorry to read about the pains you are going through. As you are mentioning and I have experienced to a lesser degree it sounds like, I know for me there have been times where muscles pains seemed to be connected to my stomach condition. When the stomach was acting up, the back would often hurt or pains could show up in the legs making it difficult to sit. It was only when the gut calmed down that the other pains would dissipate.
With that, I hope you are able to find some relief with the stomach and as a result relief comes to other parts of the body.
As an alternative idea you might try earthing or grounding. It's something I've been doing of late and found helpful. I've read of others on the sight that ground too. Earthing has been found to decrease inflammation and improve sleep. From my experience I agree, it has helped me with both sleeping better and decreasing aches.
There is a new documentary out on grounding/earthing. The film is in large part about a town in the state of Alaska that began to ground themselves. As a result many discovered long standing aches and pains decreased or went away.
The film can be seen at:
"Documentary: Grounded"
http://articles.mercola.com/sites/artic ... ntary.aspx
Good luck!
With that, I hope you are able to find some relief with the stomach and as a result relief comes to other parts of the body.
As an alternative idea you might try earthing or grounding. It's something I've been doing of late and found helpful. I've read of others on the sight that ground too. Earthing has been found to decrease inflammation and improve sleep. From my experience I agree, it has helped me with both sleeping better and decreasing aches.
There is a new documentary out on grounding/earthing. The film is in large part about a town in the state of Alaska that began to ground themselves. As a result many discovered long standing aches and pains decreased or went away.
The film can be seen at:
"Documentary: Grounded"
http://articles.mercola.com/sites/artic ... ntary.aspx
Good luck!
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rachdemots
- Little Blue Penguin
- Posts: 27
- Joined: Wed Oct 16, 2013 7:20 pm
My pain in my legs and hips is definitely related to my MC flaring. I am finding some relief with endocort and an occasional hydrocodone if it gets really bad. I didn't realize how much my hip aching had to do with the MC until that got a bit better on the endocort and the aches got better too!
NewdiagnosedinSD
Jean -
That's wonderful to hear! Hope you have a chance to make it a regular beach walk. And a nice coincidence with the Haines, Alaska visit. I've never been to Alaska myself but keep hearing how beautiful it is up there. Appeared lovely in the documentary too.
Yeah, I suppose to add to the coincidences I'm officially a Fort Myers resident also. I'm not there now as I'm up north in the mid-west, but hopfully before the first snow fall will make it south. I'm enjoying my barefoot walking of late but snow certainly will place a damper on that activity. Sandy seashell beach walks will hopfully be in my near future!
That's wonderful to hear! Hope you have a chance to make it a regular beach walk. And a nice coincidence with the Haines, Alaska visit. I've never been to Alaska myself but keep hearing how beautiful it is up there. Appeared lovely in the documentary too.
Yeah, I suppose to add to the coincidences I'm officially a Fort Myers resident also. I'm not there now as I'm up north in the mid-west, but hopfully before the first snow fall will make it south. I'm enjoying my barefoot walking of late but snow certainly will place a damper on that activity. Sandy seashell beach walks will hopfully be in my near future!
Blueberry,
Ah.......Isn't life interesting. Maybe we will meet on the beach one day for a barefoot walk! The weather is starting to get beautiful....70's yesterday morning with a beautiful breeze. Doesn't get much better than this...although I do miss those leaves as they turn and the visits to the apple orchards!
Ah.......Isn't life interesting. Maybe we will meet on the beach one day for a barefoot walk! The weather is starting to get beautiful....70's yesterday morning with a beautiful breeze. Doesn't get much better than this...although I do miss those leaves as they turn and the visits to the apple orchards!
Everything will be ok in the end, if it's not ok, it's not the end.
Jonas, My own experiences with Sulfasalazine were that it did nothing for my LC or inflammation and in fact it made me dizzy and made me feel sick all of the time (and I mean all day and all night). I was sicker on it than off of it. It's horrible stuff. If you have to take something for your MC or inflammation I suggest you consider Entocort, but avoid Sulfasalazine.
Having said that, if your GI symptoms aren't severe then Entocort may not be the way to go either. The side effects with it are usually constipation and abdominal cramping. I'm not sure what effect it would have on your hip and leg pain.
I have very limited experience with back pain, but I can tell you that I had great success with acupuncture treatments for nausea. I know that the 2 areas that acupuncture has been clinically proven to work is for nausea and for pain. Maybe that would help you get some relief without having to take medication. Or at least it could be part of a treatment plan for you.
I hope you find some relief soon,
Carol
Having said that, if your GI symptoms aren't severe then Entocort may not be the way to go either. The side effects with it are usually constipation and abdominal cramping. I'm not sure what effect it would have on your hip and leg pain.
I have very limited experience with back pain, but I can tell you that I had great success with acupuncture treatments for nausea. I know that the 2 areas that acupuncture has been clinically proven to work is for nausea and for pain. Maybe that would help you get some relief without having to take medication. Or at least it could be part of a treatment plan for you.
I hope you find some relief soon,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou