Visit the Microscopic Colitis Foundation Website
Today I had my annual exam and didn't do that great with picking out the little flashing squiggles. That concerned me even though they said it was ok. My RX, of course, got worse and was warned that bifocals are in my future. He said they could be useful now but since I'm not having bothersome problems with reading it could be pushed off. He was guessing within six months. That comes with age I guess.
He wanted to start me on Lotemax again since my eyelids were inflamed. My appearance doesn't show puffy eyelids but it doesn't come as a surprise since everything else in my body seems to be fighting inflammation issues. He did a stain on my eyes and showed me pictures of little bumps on the underside of my eyelids that were the result of inflammation and showed me a picture of a normal eyelid and mine is much thicker due to inflammation which causes issues with lubrication. I have CC of the eyelid- haha. He compared it to the bumps one may get to poison ivy or a rash in general. Mine are effecting my eyes. He said that I have little flaps on my eyeballs that are continually being irritated and ripped every time I blink because of the inflammation. It was interesting to look at the whole row of abrasions causing the discomfort. He changed his mind about the drops that were tried once and were not effective. He also said the plugs were doing their job since he would normally find excess cells (some sort, I can't remember what he called them) on the eyeball if it were due to dry eye. Instead, he put me in contacts that should protect my eye from my eyelid. They feel comfortable now but I've only been wearing them for a couple hours. It's another change to get used again but hopefully will help. I have to go back in a week. I wonder that the next step will be because as with everything else, what if the inflammation doesn't go away. Will I have to resort to steroid use to protect my eye sight? Bummer.
I don't like the prospect of nearly tapering off entocort just to add another steroid to my daily routine. Eye sight isn't anything I want to play around with and wonder if I was foolish the first time when I refused the steroids. It keeps creeping into my mind that I may be one of those that have to accept the risks in order to prevent further damage.
My eyes are tired now because of the strain of the exam and getting used to the contacts. I took a Tylenol before the exam so hopefully my headache won't get any worse. It's too bad my body really dislikes itself and seems to be attacking it in numerous places. I think I may put this bod on Craigs List cheap and barter for a better model.
Same to you Jean! That sounds like something I would do.
