I'm a newbie.

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

User avatar
DebE13
Rockhopper Penguin
Rockhopper Penguin
Posts: 1657
Joined: Sun Nov 27, 2011 5:32 am
Location: Wisconsin

Post by DebE13 »

Good choice to ditch the prednisone. I've been on varied and mostly very low doses of entocort for almost 2 1/2 years now. I took Prednisone prior to that and it has some nasty side effects. Focus on your diet and you'll get there. The urgency is the worst.
Deb

"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson

2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
User avatar
Zizzle
King Penguin
King Penguin
Posts: 3492
Joined: Thu Jul 22, 2010 9:47 am

Post by Zizzle »

Welcome!
A thought about the yellow discoloration on your tongue. Do you think it could be thrush? Many people with GI issues have yeast overgrowth in the gut, which is another can of worms. Unfortunately, steroids allow yeasts like Candida to grow further out of control. A few of us are attempting to start treatment for yeast overgrowth, but it may be a long road for us.
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
Marcia K
Rockhopper Penguin
Rockhopper Penguin
Posts: 1421
Joined: Thu Apr 03, 2014 10:39 am
Location: PA

Post by Marcia K »

Hi, Connie. I have LC and am new here as well. My GI recommended 6 Pepto Bismol tablets/day for 8 weeks. That worked for me without taking any other medication. I did reduce the Pepto to 4/day once I was having the opposite problem. I eliminated gluten, dairy, spices, tomatoes, etc. from my diet and have had no issues other than when I ate something that I didn't prepare. Even getting "plain" chicken when eating out is a roll of the dice depending on what type of grill oil is used to cook it. Tex's book has been a great help as well as this site. It is overwhelming but hang in there. It will get better!
Grahm
Gentoo Penguin
Gentoo Penguin
Posts: 343
Joined: Thu Jun 05, 2014 9:52 am
Location: Lexington, KY

Post by Grahm »

Thanks again to everyone. I have had a terrible weekend. Rice didn't do it, my chicken soup didn't. I had a boiled egg last nt and one this morning and it's been fine. I think I'll venture out to get some meat for lunch.

I have ordered the book, vit b test the enterlab test and the budesonide from Canada, but I think they said it's coming from India. I'm ready to get on top of this!!

Thanks again to all!!! You are GREAT!! and so KIND@@

Connie
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

Post by Leah »

There are some people on this board who can not eat rice or chicken. What Enterolab test did you order? Hopefully, you are also testing for the different proteins and grains to see if you can eat these things. Good luck!
Leah
Grahm
Gentoo Penguin
Gentoo Penguin
Posts: 343
Joined: Thu Jun 05, 2014 9:52 am
Location: Lexington, KY

Post by Grahm »

Leah,

I did the A1 and C1. Hopefully that'll get most of them.
Grahm
Gentoo Penguin
Gentoo Penguin
Posts: 343
Joined: Thu Jun 05, 2014 9:52 am
Location: Lexington, KY

Post by Grahm »

I did a beef burger, plain no bread and this is twice I did fine with that. I also had a baked white potato and I think that's what made the D. For now, all that I think is safe is beef and eggs. Who knows?? :roll:
Sheila
Rockhopper Penguin
Rockhopper Penguin
Posts: 1150
Joined: Wed May 18, 2011 5:10 am
Location: Palm Beach Gardens, Fl

Post by Sheila »

Unfortunately, until you get the results of your tests you will have to live by trial and error. That is what makes the tests invaluable. Eventually some of us had MRT (mediator release test) done to find out what other foods and substances could be causing problems. Once you get the D stopped and the inflammation subsiding, you will feel much better. I was very lucky and the WD stopped the first day I took Entocort. I had been GF, SF, DF, EF for a while and was still struggling with D. I hope that the combination of diet and Entocort will give you relief.

Sheila W
To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
User avatar
tex
Site Admin
Site Admin
Posts: 35349
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Connie,

Instead of regular potato, try sweet potato. Most members here who are sensitive to chicken, can tolerate turkey just fine.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Grahm
Gentoo Penguin
Gentoo Penguin
Posts: 343
Joined: Thu Jun 05, 2014 9:52 am
Location: Lexington, KY

Post by Grahm »

The Enderocort people sure mean business. I order my kit late Friday and it was waiting for me today right after work! :lol:
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

Post by Leah »

Oh good. You will have results within three weeks of them getting your sample. Hamburger has always been one of my "go to" foods. I had one today :)…. homemade tacos for dinner ( after 2 years, I can now have spices and have always been OK with corn tortillas) No cheese though :(

Keep us posted
Leah
Post Reply

Return to “Main Message Board”