Fatal testing?

[Lilja]

Hi all,

I have been on Entocort since May 2014, now tapering down to one capsule every 4th day.

I have two BMs in the morning, and my diet has been GF and DF for almost two years, egg and soy free for three months.

I wanted to test how I would react to oat, so I had a plate of glutenfree oat and rice milk this morning.

Two hours later, I had a terrible pain in my stomach, and explosive D.

That was stupid of me, of course, but I cannot understand how this prompt reaction is possible. Could it be an allergic reaction, and not an immune reaction?

I had WD for 7 months - up to 25 visits per day / night in 2010 - before I was diagnozed. I have had some good periods in between, but the D has always come back, and that is why I agreed to take Entocort in May last year.

Can one serving of oat have messed up my stomach, so now the D is back for good?

Please, say "no"

Lilia

[tex]

Hi Lilia,

No.

I doubt that you are allergic to oats, because you should have reacted in less than roughly half an hour if you were allergic. Oats may cause problems faster than wheat gluten because they contain a lot more fiber, and since fiber irritates the lining of the intestines, that may speed up motility a bit.

Virtually all of the so-called celiac experts claim that most oats are contaminated with gluten, but pure, certified gluten-free oats are safe for most celiacs. Unfortunately, they are wrong. Most of us here are also sensitive to oats, and many of us react to the avenin in oats faster than we usually react to gluten in wheat. It typically used to take roughly 6 hours for gluten to cause D for me, but oats will clean me out in only about 3 hours. I did an oat challenge roughly 7 years ago, and I posted the details on this board. As I recall, it would only cause me to have D and a little bloating (no other symptoms), and the D only lasted about a half a day or so. But of course I was in remission when I did the challenge.

So welcome to the club here, of people who cannot tolerate oats.

Here are a couple of the threads from that oat challenge:

Final Report On My Avenin, (Oats), Challenge

Okay, This Really Is My Absolute Last Oat Test — I Promise

Tex

[Lilja]

Thank you, Tex.

I had forgotten about the avenin.

Lilia