23andme results question

DebE13 · Post by **DebE13** » Sun Mar 29, 2015 6:54 pm

I received my results and am finding them to be very interesting. I ran them through Promethease and it says the information will be removed in 45 days. I saved the file to my computer but it's format connects to the internet to view the many layers of the data. Does this mean after the 45 days I will loose access to that information?

One question I have about the medications section is Allegra showed up with red. Does that mean I would be better off not taking it? Its related to being a slow metabolizer. I am also an impaired NSAID metabolizer too which is good to know. Too bad I didn't know that back in my 20's when I would take six at a crack in a crazy attempt to relieve migraines.

Wasn't too surprised to see celiiac, peanut allergy, OCD, and thyroid cancer pop up on my list too. I'd like to take a few days off to go through it all.

Post by **tex** » Sun Mar 29, 2015 8:30 pm

I don't know about those results (that they generate) because I downloaded the free program they offer that allows anyone to process the data on their own computer (and store the results there). I even have the raw data and the analyses from that program and the Genetic Genie stored on my network-attached storage so that I can access it any time I want from any computer in the system that I happen to be using at the time. The Promethease file that I generated is over 26 MB, which is a fairly large file. It has an HTML extension, so it automatically opens in my default browser (which is Firefox).

Even if your results are stored on their server, surely they have an option somewhere to download the file (after you paid for it) and store it in a folder on your own computer.

Allegra is a red item for me too, along with clopodogrel (which I take for stroke prevention

) and many other meds (including NSAIDs).

Tex

Gabes-Apg · Post by **Gabes-Apg** » Sun Mar 29, 2015 9:11 pm

Deb
What happens after 45 days is that if you want to view the reports again, yes, you have to pay the $5 again, re-upload your 23andme data to get the reports

a couple of options to save what you have now...

the reports from Promethese appear on your computer in HTML webpage format, what I did was;-
- in the medications report, expanded out the ones that were red, then saved the file as a PDF, and then was able to save it to computer and print it.

If you expand all, by only expanding sections of relevance/key interest keeps things readable etc, my medications report with just the red ones expanded is only 9 pages

- for the medical conditions report, i again, reviewed it and expanded the ones I was most interested in, and then saved the file as a PDF, saved it to my computer and was then able to print it. this worked out to be 61 pages.

- I saved the 'seem interesting not been flagged as good or bad ' one the same way, viewed what was in there and expanded out the things I was most interested in (this was 11 pages)

- and I did the same with the 'unique to you but dont have a magnitude assigned' section as well this was 38 pages

there is a way that you can save all the data from the promethese site as a CDV data file and open it all in Excel - I think Zizzle has done this.

hope this helps!

if you do the methylation report via genetic genie or LiveWello and want a hand with interpretation, PM me or Email me.
(again with these, save the report from the web page as a PDF, then save it to your computer and this will give you a format that you can email

Post by **tex** » Sun Mar 29, 2015 10:05 pm

The free program works great, and it's claimed to provide additional information over and above the paid reports. And it's not necessary to print out anything — you can save the entire folder and refer to it any time you want.

Tex

DebE13 · Post by **DebE13** » Mon Mar 30, 2015 3:42 am

Thanks for the tips. At least I have some time to save in a PDF format or can just run them through again with the free program.

Gabes, I will take you up on that offer. I'm getting ready for work now but will get you the info later.

Tex, I can eat unlimited brains too!

I can see where reading over the results could cause quite an upset but I've also leaned of quite a few medications that would be wise to avoid. Well worth the money spent. Given my current situation of waiting to see if the cancer has returned, seeing all the different ways I could die has actually taken my mind off of worrying a bit.

Post by **tex** » Mon Mar 30, 2015 12:08 pm

Deb wrote:Tex, I can eat unlimited brains too!

Awesome! I suppose that's why you and I have other health issues in addition to MC. Anytime we can dodge a major bullet such as Creutzfeldt-Jakob disease, we're bound to get hit by a ricochet of a bullet that was aimed at someone else.

Deb wrote:I can see where reading over the results could cause quite an upset but I've also leaned of quite a few medications that would be wise to avoid. Well worth the money spent.

IMO the second reason you stated (learning about medications to avoid) is the main reason why the FDA and so many doctors claim that this information shouldn't be available direct to the patient (without a doctor's interpretation). Most doctors are not going to view those medication caveats as seriously as the person affected would, because poor metabolization is probably not going to cause an anaphylactic reaction or anything obvious. So the FDA and most medical professionals would surely prefer that we didn't clutter our mind with such trivial concerns that could end up wasting some of our doctor's time explaining to us why it doesn't matter.

Besides, I have some serious doubts about their inferred claim that the average patient doesn't have sense enough to handle that information. Personally, I don't believe that the vast majority of patients are anywhere near as ignorant and unqualified as they would like to think we are.

Deb wrote:Given my current situation of waiting to see if the cancer has returned, seeing all the different ways I could die has actually taken my mind off of worrying a bit.

I hear you. When my D started, and no matter what I took (Kaopectate, Pepto, etc.), it did absolutely nothing but change the color of the dirty water, I finally decided that I must have cancer, so I might as well go see my doctor and face the music. So when he palpated my bloated gut, took a few notes, and announced that I have a tumor in my gut as big as a man's fist (and then he shook his fist in my face to emphasize his point, as if I couldn't understand English

), not only was I not surprised, but for some reason I felt a sense of relief and well-being. That seems odd, but I suppose it was because it was exactly what I was expecting, so it was a no-brainer to believe it. Of course he was wrong (fortunately).

Tex

DebE13 · Post by **DebE13** » Sat Apr 04, 2015 6:31 am

It's been interesting. I enjoy the small humors too. I am also more likely to think that cilantro tastes like soap.

That is an enlightening piece of information! Actually, it is quite fascinating to see how genes play a role in seemingly unimportant traits.

I don't think I will ever be compelled to do any brain taste testing soon.

It makes perfect sense why 23andme is no longer able to provide the health data it once did. I may not totally understand what all the results mean but seeing specific medications that I have an increased chance of having a negative response to will make me think twice about alternatives.

Zizzle · Post by **Zizzle** » Wed Apr 08, 2015 12:36 pm

Deb,
I went to the "Table View" on Promethease and right-clicked and copied the full tables for the good, bad, and all results. I pasted each one into a spreadsheet in an Excel Workbook, so I have an All, Bad, and Good tab, and I an sort within each one, highlight them in colors, add notes, etc.

DebE13 · Post by **DebE13** » Thu Apr 09, 2015 2:55 pm

Thanks for the idea, Zizzle. I like the idea of using an Excel format.