My poops are usually yellow mucus

jameswatt · Post by **jameswatt** » Wed Mar 23, 2016 9:50 am

I'm new, I have been diagnosed with lymphocytic colitis. The cause was a parasite that had a year and a half ago. For a year I was dijieron SII. But I became colonoscopy in January 2016. Negative genetics of celiac disease endoscopy and biopsy.

My poops are usually yellow mucus. I go once or twice a bathroom.

I try to soft diet, I left milk and almost all gluten but my poops remain yellow.

I'm seeing that budesonide could be my salvation. But no doctor has prescribed me.

One question, people are cured of this disease or only improve your symptoms?

In success stories seem to suggest improvements.

Sorry for my English. Thank you

P.d: Tex's book is translated into Spanish

Post by **tex** » Wed Mar 23, 2016 12:37 pm

Hello James,

Welcome to our discussion and support forum. The type of gluten-sensitivity that most of us have is non-celiac gluten sensitivity and doctors have no official approved test to use to detect it, so they cannot diagnose it. There is a laboratory in Dallas, Texas, USA that can detect non-celiac gluten sensitivity by testing stool samples, but they are the only one in the world to use this patented technology.

Lymphocytic colitis (LC) is an inflammatory bowel disease (IBD) and like all IBDs it has no cure, but the symptoms can be controlled. Budesonide will often control the symptoms, but it is not effective for everyone. And soon after the treatment is ended, the symptoms will return.

The only way that we have found to control the disease over the long-term is to change our diet so that we avoid all dairy products and gluten, even very tiny amounts. Many of us have additional food sensitivities so that we have to also avoid soy, and some of us have to avoid eggs.

I have a friend in Spain who is working on translating the book into Spanish, but she has many health problems that make it very difficult for her to work, so the book will probably not be available in Spanish this year. I have another friend in Spain (who also has LC) and she is currently in the process of translating information from another of our websites to use in her blog. She has told me that as soon as she finishes her master's degree studies in June, she is going to dedicate her life to helping others to understand the disease. Reading her blog might be helpful for you. I will ask her for the URL for her blog, if you are interested in reading it.

Again, welcome aboard, and I hope that you will be able to change your diet so that the disease will be controlled.

Tex

Lilja · Post by **Lilja** » Wed Mar 23, 2016 3:35 pm

Hello Jameswatt,

Welcome to the board!

You have come to the right place, where people are knowledgeable and kind, and willing to help.

Did you actually take a picture of your own poop (stool)? That is cool, I don't know if anyone has done that before, but it's good that we can be open about every embarrasing symptom, poop included.

Tex has of course given you the best advice. However, I have always thought that yellow poop has something to do with the liver or a gall bladder issue.

After changing your diet to dairy and gluten free for some months, and you still have yellow poop, I would investigate the reason for it, if I were you.

Maybe some of the board members would disagree, but in that case they will comment.

I wish you a Pascua feliz

Lilja

Post by **tex** » Wed Mar 23, 2016 8:11 pm

Lilia,

Yellow stool color is common with untreated gluten sensitivity and he mentioned that he is avoiding "almost all gluten". Avoiding "almost all gluten" will not allow any healing.

Tex

Lilja · Post by **Lilja** » Thu Mar 24, 2016 4:00 am

That's fantastic! I was unaware of that, Tex.
Lilja

DJ · Post by DJ » Fri Mar 25, 2016 5:04 am

Hello James, Start by giving up ALL gluten. It takes time to learn all the hidden sources of gluten in our diet. You may also want to try an elimination diet where you eat only a few foods and add foods back one at a time. An elimination diet takes a long time and quite a bit of determination but really helps in defining the problem.

Vanessa · Post by **Vanessa** » Fri Mar 25, 2016 9:16 am

Just popped in to say that picture stinks.....LOL

jameswatt · Post by **jameswatt** » Fri Mar 25, 2016 1:37 pm

Thanks for answering.
A few days ago I saw the answers but Tex left me a little sad. Since we had the experanza that could cure me. I had seen that 30% of patients taking budesonide healed. Even I say that this data I had seen here.

Tex I understand correctly. The disease is chronic? It is for life?
This link are companions with healing
http://www.perskyfarms.com/phpBB2/viewforum.php?f=71
Tex'm interasado on the website.

The photo is of my stool.
I tried to find foods that hurt me. Soybeans, nuts, pepper, coconut, pumpkin seeds, onion ... It seems that foods that are not cooked'm not able to digest them. I think probiotics are not going well. Kefir instead of water works well for me.

APP is a phone application that helped me at the time mySymptoms. I have set free.

I see that IBS and colitis are very similar work.

Gabes-Apg · Post by **Gabes-Apg** » Fri Mar 25, 2016 2:15 pm

Welcome James,

MC is for life, that said, many people can have years and years of minimal symptoms if they follow the right management plan (diet and lifestyle changes)

re the diet, being 100% gluten and dairy free is a good start. A diet low in fibre, that is, well cooked protein and 2-3 vegetables, bland (no spices no herbs) works best when there is an increase of inflammation.

when there is increased inflammation, things like pro-biotics can make things worse. In early days of healing, we recommend just Vit D3 and magnesium for the first few months.

Post by **tex** » Fri Mar 25, 2016 2:49 pm

James,

If we stick to a safe diet that does not include any foods that cause our immune system to produce antibodies, then our intestines will heal. But that does not cure the disease. If we go back to eating the foods that cause the inflammation, then we will suffer a relapse.

We can control the disease by preventing the inflammation, but we can not cure the disease and go back to the way our life was before the disease came into our life. The disease will always be in our body, waiting for an opportunity to attack us. If we are careful though, we can prevent it from causing any symptoms.

Doctors do not understand the disease. Many of them think that budesonide can cure the disease. They are wrong. Budesonide can control the symptoms of the disease in some cases, as long as the drug is used. But in almost every case, a few weeks after the budesonide treatment is stopped, the symptoms will relapse.

Changing our diet to avoid certain foods allows most of us to live free of symptoms. We still have the disease, but it does not cause any symptoms.

Tex

brandy · Post by **brandy** » Fri Mar 25, 2016 3:33 pm

Hi James,

I like to use the term "remission" when talking about this disease. The first two years I was very sick with this disease. I went into remission as my intestines healed and after I'd been gluten free and dairy free for awhile. My life is good but if I have gluten...even a crumb....I will get 2 days of watery diarreah then I go back into remission. So, technically I still have the disease but 98% of the time my life is very good as long as I eat gluten free and dairy free.

Most of us do not do well with probiotics.

The photo of your stool means you are on your way to healing. The fact that it is not watery diareah 15 times per day is good. Mushy and semi solid stool means you are working on going into remission.

Stay away from raw foods for now.

This is a study done in Sweden published in Gut 2016. The highlighted part is from me. They find that 82% of people relapse after getting off of Entocort and not gluten free. Our experience on the forum is that getting off of Entocort and gluten free leads to low incidence of relapse. Getting off of Entocort and not gluten free leads to the high relapse rate that was shown in the Sweden study.

The other interesting thing is that they talk about a long term low dose maintenance dose of Entocort. We find on the forum that this works to a point. After 3-4-5 years or so our forum members report that the Entocort does not work as well and they have to take higher and higher doses to get the same results. i.e. This might work if you are 90 years old but is really not effective for a younger person as the Entocort stops working as good after 3-4-5 years etc.

I was on Entocort for 4.5 months and it helped with symptoms but it took going gluten free to go into long term remission.

Gut 2016;65:47-56 doi:10.1136/gutjnl-2014-308363
Inflammatory bowel disease
Original article
Low-dose budesonide for maintenance of clinical remission in collagenous colitis: a randomised, placebo-controlled, 12-month trial
Open Access
Andreas Münch1, Johan Bohr2, Stephan Miehlke3, Cecilia Benoni4, Martin Olesen5, Åke Öst6, Lars Strandberg7, Per M Hellström8, Erik Hertervig9, Peter Armerding10, Jiri Stehlik11, Greger Lindberg12, Jan Björk13, Annika Lapidus14, Robert Löfberg15, Ole Bonderup16, Sören Avnström17, Martin Rössle18, Karin Dilger19, Ralph Mueller19, Roland Greinwald19, Curt Tysk2, Magnus Ström1 on behalf of the BUC-63 investigators
+ Author Affiliations

Objective This 1-year study aimed to assess low-dose budesonide therapy for maintenance of clinical remission in patients with collagenous colitis.

Design A prospective, randomised, placebo-controlled study beginning with an 8-week open-label induction phase in which patients with histologically confirmed active collagenous colitis received budesonide (Budenofalk, 9 mg/day initially, tapered to 4.5 mg/day), after which 92 patients in clinical remission were randomised to budesonide (mean dose 4.5 mg/day; Budenofalk 3 mg capsules, two or one capsule on alternate days) or placebo in a 12-month double-blind phase with 6 months treatment-free follow-up. Primary endpoint was clinical remission throughout the double-blind phase.

Results Clinical remission during open-label treatment was achieved by 84.5% (93/110 patients). The median time to remission was 10.5 days (95% CI (9.0 to 14.0 days)). The maintenance of clinical remission at 1 year was achieved by 61.4% (27/44 patients) in the budesonide group versus 16.7% (8/48 patients) receiving placebo (treatment difference 44.5% in favour of budesonide; 95% CI (26.9% to 62.7%), p<0.001). Health-related quality of life was maintained during the 12-month double-blind phase in budesonide-treated patients. [b]During treatment-free follow-up, 82.1% (23/28 patients) formerly receiving budesonide relapsed after study drug discontinuation. [/b]Low-dose budesonide over 1 year resulted in few suspected adverse drug reactions (7/44 patients), all non-serious.

Conclusions Budesonide at a mean dose of 4.5 mg/day maintained clinical remission for at least 1 year in the majority of patients with collagenous colitis and preserved health-related quality of life without safety concerns. Treatment extension with low-dose budesonide beyond 1 year may be beneficial given the high relapse rate after budesonide discontinuation.

Trial registration numbers http://www.clinicaltrials.gov (NCT01278082) and http://www.clinicaltrialsregister.eu (EudraCT: 2007-001315-31).

Significance of this study

Significance of this study
What is already known on this subject?
Collagenous colitis, a presentation of microscopic colitis, is associated with severely impaired health-related quality of life.

Oral budesonide at a dose of 9 mg/day for 6–8 weeks induces remission in 77%–100% of patients with collagenous colitis.

After withdrawal of budesonide, between 61% and 88% of patients experience clinical relapse but long-term data on budesonide maintenance therapy, and on the use of low-dose budesonide, are lacking.

What are the new findings?
In a prospective, randomised, placebo-controlled trial of low-dose oral budesonide therapy (mean dose 4.5 mg/day) in patients with collagenous colitis, clinical remission was maintained to 1 year in 61.4% (27/44 patients) in the budesonide group versus 16.7% (8/48 patients) receiving placebo (p<0.001).

Health-related quality of life was maintained to 1 year with low-dose oral budesonide.

Low-dose budesonide over 1 year resulted in few suspected adverse drug reactions (7/44 patients), all of which were non-serious.

How might it impact on clinical practice in the foreseeable future?
Maintenance therapy with low-dose budesonide (mean 4.5 mg/day) appears beneficial and safe in patients with collagenous colitis who have achieved clinical remission under standard budesonide therapy and reduces the high relapse rate observed after budesonide discontinuation.

Hope this provides insight, Brandy

humbird753 · Post by **humbird753** » Sun Mar 27, 2016 1:19 pm

Hello James,

I agree with the others here. At my worst, I was going to the bathroom 25-30 times per day. My BM's were all watery with shredded foods. It does appear you are on your way to remission. I found out I had to be 100% free of gluten and dairy in order to reach remission. Changing the foods we were used to before LC can be frustrating, but over time I found it became easier. For me, it has given me my life back, and the symptoms I once had have faded away. There is remission, but not a cure for LC.

You've come to the right place. Welcome.

Paula

jameswatt · Post by **jameswatt** » Thu Mar 31, 2016 3:53 am

Thank you very much everyone for explaining your experiences,

I doubt another rookie has emerged. Since doctors have always told me that I have nothing. There is a doctor who told me that I have no colitis.
Pongo analysis of my colonoscopy and endoscopy. You know tell me that I have. It is or is not colitis?

I have had a colonoscopy and endoscopy with biopsy and I found:
a) Duodenal intraepithelial lymphocytosis with about 7%. Genetics negative celiac disease.
b) Ileton terminal, right settler and sigma
-Ileon Terminal: ileal intestinal mucosa reveals that preserves the normal architecture of its superficial mucosal epithelium and the glandular elements. Lamina propria shows a mild chronic inflammatory lymphoplasmacytic infiltrate with hyperplastic enlarged Peyer's patches with intestinal lymphoid follicles with germinal centers reagent aspect. No specific inflammatory changes are seen, images of criptales or granulomas microabscesses. No evidence of cytologic atypia of intraepitelial.Ausencia lymphocytosis.
-Colon cerecho and sigma: in lamina propria mild chronic inflammatory infiltrao linfoplasmocitario with lymphoid aggregates is observed.
No subepithelial collagen deposits or intraepithelial lymphocytosis are observed.

Thank

Post by **tex** » Thu Mar 31, 2016 6:46 am

James,

Your pathology report is not consistent with a diagnosis of lymphocytic colitis. In most cases, the markers of LC are the most concentrated in the terminal ileum and the ascending (right-side) colon. If I understand your translation of the pathology report correctly, the upper part of your small intestine (the duodenum) shows some of the markers of LC (intraepithelial lymphocytosis), but not enough for a diagnosis of LC. It shows 7 %, and at least 20 % is needed for a diagnosis.

And the report shows no evidence of inflammation in your terminal ileum and colon. I do not understand the meaning of "colon cerecho", but I am guessing that it refers to the ascending colon (right-side colon).

The report shows that something unusual may be happening in the terminal ileum and colon, but there are no diagnostic markers that fit any known inflammatory bowel disease. There is no inflammation in your colon, no evidence of LC, Crohn's disease, or ulcerative colitis.

So I agree with the doctor who told you that you do not have LC. You might be in the early stages of the disease, but the biopsy samples that the pathologist examined do not appear to qualify for a diagnosis of LC, or any other inflammatory bowel disease.

Tex