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1. No ICP available?? AND still none???? BS!!!!
2. Harter operates and clips the shunt-open---which then oozes fluid--showing that it had been CLOGGED/CRIMPED??---Harter then !!SEWS!!! the shunt together!!!!!!
3. Harter to Lynn-----TAKE Kait *HOME*--call me in a week and* IF we have the ICP monitor*,U bring Kait back and I will do the ICP procedure!!!
4.KAIT to HARTER ---*NO WAY AM I GOING HOME---I am in worse pain and I am staying!!!
5.Harter---to Lynn---this is it---I cannot re-arrange the shunt and this will be her life~~~
Can anyone believe this issues of NO ICP probes AVAILABLE!!!
Can U believe that he would snip open the shunt and then sew it together
Can U believe that he tells them--this is her life--PAIN--that she cannot bear---
Can U believe that Lou thinks he is a *good* neuro??? I hated him since the very first~~~~~~
Can U believe how I hate this man!!! I never thought I could hate someone so much~~~
Dead no----the loss of his hands--YES!!!
I went balistic after this phone call---and told Lou to *SHUT* up and I let it all out---more than
--- I was screaming---To repeat--this neuro---3 years back---DID NOT DO AS HE SAID !!NO---he let her go home saying she didnt need a shunt and U all know the rest!!
I wanted to call him--as a concerned grandmother but Lynn said no!!!
This is her life!!!! What life---no working--no driving--lying @ home in constant pain--no COLLEGE!!!
Now Lynn wants to take Kait to Barrow Neuro Institute in Phoenix(thats the doc she spoke to (in refernce to shunting)
Lou talked very calmly to her--
U have another daughter--
U have things to be concerned about---
U cannot just hop into Phoenix for a *hello-visit*
MacAfee(Ibelieve) will want U and Kait to stay so he can do some checking over and see what went wrong---
This isnt a days trip!!!
Money/job/house---
Needless to say---Lou said we will take out a loan for all this and she will do this the end of the June---
KRISTYN!!----I said to Lou---U cannot take Kristyns life from her!! She has a part time job(which she luves) she has a LIFE--
What do we do -keep her with us all time that Lynn might be away--this is not fair to her~~~ or do we move into Lynn's house(if she still has one) and take care of Kris???
I am numb~~~
I have no trust
I have no faith left
I dont believe----
I often wonder--*did we do something wrong* and this is punishment for us????
Yes, I know---*the WHY* is never answered/or we are never to know WHY!!
Well I cannot live this way----I have given up on everything--
Thank U all for the most precious times, that U have given me,when I was here----Friendships and caring as I have here is a thing I dont have anywhere~~~~
My freind Carmen(from the Pantano Christian Church)---came over this morning and took me for a walk and she talked and talked---she is wonderful and I told her---U can say all thats meaningful to U---but *sorry,Carmen---I have lost the bit of faith that I was gathering,@ their services,and if I am lost than I am lost!!
till later,
Barbara
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