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Hi to all, thanks GOD that I just found this forum when reading Wayne's book about Microscopic Colitis, this is my history:
11 Years ago I was diagnosed with Hodgkin's Disease (Lymphoma - Cancer), after all my treatments I was declared cancer free and on remission after a year under treatment, months after being declared cancer free I just started to feel abdominal pain on my left side of the belly, just went to the doctor and they diagnosed me this time with diverticulosis, have tried everything and the left abdominal pain never disappeared. Long story short, after being diagnosed with diverticulosis 3 months ago my gastro performed a Colonoscopy and Endoscopy and after getting some biopsies from different parts of my intestines they found Lymphocytic Colitis. My Doctor just prescribed ENTOCORT and ESPAVEN (Enzymes) as the gold treatment but I have never feeled right with this treatment. 2 weeks ago I started to feel exhausted, with insomnia and every time I eat anything my nose gets watery, no matter what I eat. I usually eat chicken (hormone and antibiotic free), Tuna, Pork, Spring mix salad, potatoes, avocado, almond milk, very little sugar, eggs, bacon and that's my menu, I know this is not the best menu to get a complete remission from MC and I have read all the guidelines in this forum but I'm open to suggestions and recommendations from all you that have been on remission for a while. Thanks in advance for your help.
Humberto B.
Laredo TX
A newbie here with MC (LC)
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Hi Humberto,
If the food you're eating is very spicy, it's not unusual to have a watery nose. But if the food is not spicy, then the watery nose may be due to the Encocort. Runny nose, insomnia, and loss of strength are listed side effects of Entocort. For some of us, a runny nose can also be caused by a reaction against histamine. Chicken and tuna, for example, are often high-histamine foods. But if all food causes a runny nose, then it's probably caused by the Entocort.
I hope this helps.
Tex
If the food you're eating is very spicy, it's not unusual to have a watery nose. But if the food is not spicy, then the watery nose may be due to the Encocort. Runny nose, insomnia, and loss of strength are listed side effects of Entocort. For some of us, a runny nose can also be caused by a reaction against histamine. Chicken and tuna, for example, are often high-histamine foods. But if all food causes a runny nose, then it's probably caused by the Entocort.
I hope this helps.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks a lot for your fast reply Tex ! And let me tell you that you wrote an excellent book ! Congratulations Sir ! I just ordered Panel A1 and C1 tests from Enterolab to keep away those foods that I'm being intolerant anyway. Thanks again for this wonderful contribution to all of us MC'ers Sir ! God Bless you !tex wrote:Hi Humberto,
If the food you're eating is very spicy, it's not unusual to have a watery nose. But if the food is not spicy, then the watery nose may be due to the Encocort. Runny nose, insomnia, and loss of strength are listed side effects of Entocort. For some of us, a runny nose can also be caused by a reaction against histamine. Chicken and tuna, for example, are often high-histamine foods. But if all food causes a runny nose, then it's probably caused by the Entocort.
I hope this helps.
Tex
Hi Humberto,
As far as your diet, as long as you are eating foods you can tolerate then you should be fine. Be aware the Entocort will mask some food sensitivities so when you do titrate off Entocort you may find a food you’ve been eating may give you some grief. It happened with me and eggs (although now in remission I can tolerate eggs again).
You have a good head start and your Enterolab results will provide even more insight. I’m sorry you’ve had to deal with LC so soon after cancer but I think you have a good handle on the kind of diet changes you will need to heal.
Best wishes,
Carol
As far as your diet, as long as you are eating foods you can tolerate then you should be fine. Be aware the Entocort will mask some food sensitivities so when you do titrate off Entocort you may find a food you’ve been eating may give you some grief. It happened with me and eggs (although now in remission I can tolerate eggs again).
You have a good head start and your Enterolab results will provide even more insight. I’m sorry you’ve had to deal with LC so soon after cancer but I think you have a good handle on the kind of diet changes you will need to heal.
Best wishes,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou