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How far from remission?
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How far from remission?
Hello! It has been one month and a half since my last WD episode. I am in natuopath treaent. I have formed stiols the majority of times, except that in my cycle I had voluminous and beaely formed stools. Still very difficult rommantain my weight. My question is how far of remission am I in? I just go once to toilet. My only problem is malaabsorption I think
Ingrid
Hi Ingrid,
It's impossible to predict exactly when remission will occur, because we're all different. It's normal to have good days and bad days, as we recover. If we're making progress, the good days will outnumber the bad days, and the bad days will slowly disappear. It sounds as though you may be getting close to remission. When you are getting close to remission, the urgency will be much less.
I don't know if your treatment includes a lot of supplements, but certin supplements often slow down, or even prevent healing. In the U. S., naturopaths tend to prescribe too many supplements. The fewer supplements we take, the faster we recover. So we usually recover faster if we disregard our naturopath's suggestions to take all those supplements (other than vitamin D and magnesium).
I hope this helps.
Tex
It's impossible to predict exactly when remission will occur, because we're all different. It's normal to have good days and bad days, as we recover. If we're making progress, the good days will outnumber the bad days, and the bad days will slowly disappear. It sounds as though you may be getting close to remission. When you are getting close to remission, the urgency will be much less.
I don't know if your treatment includes a lot of supplements, but certin supplements often slow down, or even prevent healing. In the U. S., naturopaths tend to prescribe too many supplements. The fewer supplements we take, the faster we recover. So we usually recover faster if we disregard our naturopath's suggestions to take all those supplements (other than vitamin D and magnesium).
I hope this helps.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
How far from remission
Thank you so much Tex. I am still doing well, complete one week of formed stools. Yesterday was a relapse though, as I ate too much GF cookies. My weight it is not good, I thing I am even losing. They gave me a enzymes which helped a lot in my digestion but i found out that they contain this: Pepsin exract (contains milk) 30 mg each table . I take 3 daily. When I told them that i can not tolerate milk no casein they told me they are made up of some other ingredients that help me out to digest it.
Ingrid
Hi Ingrid,
That enzyme may or may not be preventing you from reaching complete remission. If you are sensitive to casein, then taking an enzyme supplement that contains casein is going to perpetuate the inflammation in your intestines, and it's probably going to prevent you from ever reaching remission. Taking additional ingredients in order to try to counteract an ingredient to which we react is a fool's remedy. It almost always just compounds the problem for most of us.
If you really want to reach remission, you're probably going to have to stop taking all those supplements that the naturopath recommended, because some of them are probably causing the inflammation to continue. We reach remission faster and surer by putting less supplements in our mouth, not more.
Tex
That enzyme may or may not be preventing you from reaching complete remission. If you are sensitive to casein, then taking an enzyme supplement that contains casein is going to perpetuate the inflammation in your intestines, and it's probably going to prevent you from ever reaching remission. Taking additional ingredients in order to try to counteract an ingredient to which we react is a fool's remedy. It almost always just compounds the problem for most of us.
If you really want to reach remission, you're probably going to have to stop taking all those supplements that the naturopath recommended, because some of them are probably causing the inflammation to continue. We reach remission faster and surer by putting less supplements in our mouth, not more.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi, Ingrid. Watch the gf cookies. I'm in remission about 5 years and they affect me if I eat too many. My hands were cracked & peeling before I stopped gluten and now I don't even need hand cream. But a while back I was eating too many gf cookies and I noticed that my hands were getting bad again. I thought about what I was eating, and it was definitely the cookies that were causing it.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
NORMAN! 
Norman, it's been so long since we have seen you! Thanks for visiting Charlene today, we've missed you.
For the first time since last April, Charlene had a "normal" BM (Type 4 on the Bristol Stool Scale.) I do have a question, which I would ask her doctor but I can't reach him. His partner retired and now he's handling a double patient load.
Charlene was diagnosed Aug. 30, 2019 and prescribed Budesonide that same day. She has been taking 3 caps, 1X daily.
My question is: How long should she take the Budesonide and when she quits, should she taper off how?
Thanks,
Paul
Norman, it's been so long since we have seen you! Thanks for visiting Charlene today, we've missed you.For the first time since last April, Charlene had a "normal" BM (Type 4 on the Bristol Stool Scale.) I do have a question, which I would ask her doctor but I can't reach him. His partner retired and now he's handling a double patient load.
Charlene was diagnosed Aug. 30, 2019 and prescribed Budesonide that same day. She has been taking 3 caps, 1X daily.
My question is: How long should she take the Budesonide and when she quits, should she taper off how?
Thanks,
Paul
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tommyboywalker
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Charlene/Paul....that is very good news! I remember when things started turning around for me and it is a very big deal. Now for tapering, my feeling is that the taper should be very slow. This forum has a number of folks that tapered too quickly and things didn't go so well.Charlene wrote:NORMAN!
For the first time since last April, Charlene had a "normal" BM (Type 4 on the Bristol Stool Scale.) I do have a question, which I would ask her doctor but I can't reach him. His partner retired and now he's handling a double patient load.
Charlene was diagnosed Aug. 30, 2019 and prescribed Budesonide that same day. She has been taking 3 caps, 1X daily.
My question is: How long should she take the Budesonide and when she quits, should she taper off how?
Thanks,
Paul
Here is a link to a thread in this forum that pretty much outlines my taper. It was SLOW but absolutely successful. Many (most?) GI doctors want to taper way too quickly. Questions, let me know! By the way, I'm well into a solid long term remission with my Colitis. Yaay! Thanks to a sharp GI doctor and especially TEX and other folks on this forum...
And one more thing. DIET is how you control Microscopic Colitis once Budesonide has done it's thing. Has Charlene done Enterolab testing? Everyone has foods that don't work for them with this disease. Gluten is #1. Dairy seems to be #2. After that, there are plenty of others including "soy". But please stay away from gluten. No going back.
https://perskyfarms.com/phpBB2/viewtopi ... sc&start=0
Hi Paul,
I fully agree about the slow taper. I wrote this before Tommyboywalker's post popped up (so you may not need it), but since I've already written it, I'll leave it unchanged.
Many doctors may disagree with us, because they go by the label. But according to published research, 85 % of their MC patients suffer a relapse after ending the treatment. We have found (by accumulated experience) that the safest, surest policy (to prevent a relapse when ending a budesonide treatment) is to stay on the diet and follow this dose-tapering plan:
Stay on the full dose for a full two months (longer, if the diarrhea is still unresolved), (or until the symptoms of constipation show up, whichever comes first), and then step down the dose to 6 mg (2 capsules) per day, for 3 or 4 weeks, before stepping the dose down to 3 mg (1 capsule) per day (for 3 or 4 weeks). Then go to 1 capsule every other day for 2 or 3 weeks, followed by a capsule every third day, for 2 or 3 weeks, and so fourth and so on. Some people go as far as a capsule every six days, and some stop much sooner, (depending on how well they feel their recovery is going).
You can alter the times according to her degree of stability, just don't take huge shortcuts, because if she relapses, you'll almost surely have to go back to square one and start over with 3 capsules per day. This routine has proven to be very reliable, and it will prevent a relapse in probably 90–95 % of cases. If her remission seems to be slipping, adding an antihistamine each day for a few weeks may save the day. Some people add the antihistamine (for a few weeks) after taking the last budesonide capsule just as insurance against a relapse.
I hope this helps.
Tex
I fully agree about the slow taper. I wrote this before Tommyboywalker's post popped up (so you may not need it), but since I've already written it, I'll leave it unchanged.
Many doctors may disagree with us, because they go by the label. But according to published research, 85 % of their MC patients suffer a relapse after ending the treatment. We have found (by accumulated experience) that the safest, surest policy (to prevent a relapse when ending a budesonide treatment) is to stay on the diet and follow this dose-tapering plan:
Stay on the full dose for a full two months (longer, if the diarrhea is still unresolved), (or until the symptoms of constipation show up, whichever comes first), and then step down the dose to 6 mg (2 capsules) per day, for 3 or 4 weeks, before stepping the dose down to 3 mg (1 capsule) per day (for 3 or 4 weeks). Then go to 1 capsule every other day for 2 or 3 weeks, followed by a capsule every third day, for 2 or 3 weeks, and so fourth and so on. Some people go as far as a capsule every six days, and some stop much sooner, (depending on how well they feel their recovery is going).
You can alter the times according to her degree of stability, just don't take huge shortcuts, because if she relapses, you'll almost surely have to go back to square one and start over with 3 capsules per day. This routine has proven to be very reliable, and it will prevent a relapse in probably 90–95 % of cases. If her remission seems to be slipping, adding an antihistamine each day for a few weeks may save the day. Some people add the antihistamine (for a few weeks) after taking the last budesonide capsule just as insurance against a relapse.
I hope this helps.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.