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Cholestasis
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Cholestasis
Hello! I am worried. I have been diagnosed with cholestasis. Does anyone has suffered from this? I thnk that I am in trouble, MC + cholestasis, how Am I will be able to get nutrients? I have received my enterolab package and sending it on Monday. I am so saf
Ingrid
I really think I am goint to die, I have not sleep at all just crying, I can not recognize me anymore, my hair falls out I look anorexic. Still getting worse each day. Sorry to write this but I reañly need to express myself I came to Spain looking for a natural treatment nothing seems to work. I am going back to Mex next week just to die I am so sad really really sad. It all started because accutane and can not see a way out
Ingrid
Ingrid, I am so sorry you are so sick. I know I and many others felt pretty hopeless when we started this path. I am not familiar with cholestasis but have dealt with MC for nearly 10 years and am now doing well. Read Tex's book, follow through with the Enterolab recommendations and take a deep breath. It doesn't happen overnight but things will get better. 
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rcchild@gpcom.net
- Little Blue Penguin
- Posts: 44
- Joined: Sun May 26, 2019 2:09 pm
- Location: Nebraska
Ingrid,
I have no knowledge of cholestasis, but in doing a quick google I got the idea it was a bile problem involving the liver and gallbladder. It seems that, when dealing with LC and the problems we have with the colon, our entire digestive system can be affected. After we reach remission those problems resolve themselves. I know I've been concerned that my Pancreas is not working correctly, but once I get the LC under control it will probably work itself out.
This disease is sooo nasty and lonely. Hang in there, it will get better! Many times in my lifetime, when I felt like things were at their worst, a little miracle would happen and things would start to get better! I hope that is the case for you also. I was just recently in a flare and felt like I had slipped back to where I was at the beginning of this journey. Luckily the flare hasn't lasted too long, but I got so down and depressed (maybe like you are feeling right now.)
I'm sending you hugs and prayers for remission and feelings of strength and happiness.
Good luck Ingrid. We are here for you.
Carol
I have no knowledge of cholestasis, but in doing a quick google I got the idea it was a bile problem involving the liver and gallbladder. It seems that, when dealing with LC and the problems we have with the colon, our entire digestive system can be affected. After we reach remission those problems resolve themselves. I know I've been concerned that my Pancreas is not working correctly, but once I get the LC under control it will probably work itself out.
This disease is sooo nasty and lonely. Hang in there, it will get better! Many times in my lifetime, when I felt like things were at their worst, a little miracle would happen and things would start to get better! I hope that is the case for you also. I was just recently in a flare and felt like I had slipped back to where I was at the beginning of this journey. Luckily the flare hasn't lasted too long, but I got so down and depressed (maybe like you are feeling right now.)
I'm sending you hugs and prayers for remission and feelings of strength and happiness.
Good luck Ingrid. We are here for you.
Carol
Hi Ingrid,
Carol is correct, cholestasis is somewhat common with MC. In fact many patients let their doctor talk them into having unnecessary gallbladder surgery. But when left alone, in almost every case, the gallbladder problem will resolve when the MC symptoms go into remission.
You are not the first MC patient to think that they are going to die from this disease and its complications. Back when I was initially struggling with the disease, like you, I was really sick. About a year after my GI doctor told me that there was nothing more that he could do for me, I became so sick, thin, and rundown that I knew I didn't have long to live. That's when I started researching, experimenting with my diet, keeping a log book of everything I ate and how I felt afterward, and anything else that I could think of to try to solve the mystery of what was making me so sick. When I finally figured out everything that was making me react, and I eliminated all those foods from my diet, my digestion improved and before long I was able to reach remission.
Never give up. The solutions may be right around the corner. We just have to find them.
Tex
Carol is correct, cholestasis is somewhat common with MC. In fact many patients let their doctor talk them into having unnecessary gallbladder surgery. But when left alone, in almost every case, the gallbladder problem will resolve when the MC symptoms go into remission.
You are not the first MC patient to think that they are going to die from this disease and its complications. Back when I was initially struggling with the disease, like you, I was really sick. About a year after my GI doctor told me that there was nothing more that he could do for me, I became so sick, thin, and rundown that I knew I didn't have long to live. That's when I started researching, experimenting with my diet, keeping a log book of everything I ate and how I felt afterward, and anything else that I could think of to try to solve the mystery of what was making me so sick. When I finally figured out everything that was making me react, and I eliminated all those foods from my diet, my digestion improved and before long I was able to reach remission.
Never give up. The solutions may be right around the corner. We just have to find them.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi,Ingrid. When I was first diagnosed and I found this group and they would tell me that I will feel better and be able to return to "normal", I couldn't believe that would happen because I felt so weak and worn down. But it did happen and I feel good most of the time. Hang it there, it will happen for you. You have found the best group to ask for suggestions and help on your journey to healing. {hugs}
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
Hi Ingrid- I know I’m repeating what the others have said but the inflammation is widespread with MC. For some reason, some doctors think it’s just in the colon when that is not the case at all. I had viciously intense nausea as part of the onset of my LC. In fact my upper GI issues were worse than my lower GI concerns. I felt dizzy, constantly dehydrated and dropped 25 pounds in 10 weeks, while just laying around. My skin began to wrinkle and my hair started turning gray from the stress. I could see I was wasting away and the vulnerability was frightening. It was clear I wasn’t absorbing any nutrients. I was forcing myself to eat baked chicken, rice and boiled carrots. I was scared that I would not be able to work and would become disabled. Very gradually, by staying with safe foods, I began to do better. I did start on Entocort (Budesonide) and that slowed my weight loss. It took several months (maybe a year) for my skin to improve and I looked less gaunt.
People here on the forum and my GI doc said it would take about 2 years for the gut to heal, so I had to plan for the long haul. (The gut heals faster in younger people).
Remember too that something like 70% of our serotonin is made in our intestine and not in the brain. It’s no wonder we feel so anxious and sad when this disease hits and our GI tracts can’t function like normal. There are real biological as well as psychological reasons for this. I, and others here, can relate to the fear and exhaustion that this disease brings. And we are also examples of surviving that first horrid onset of this disease and how to do it. Keep seeking information, reaching out to others and working to find foods you can tolerate. Your Enterolab results will be very helpful to you. I hope you get them quickly. Mine came back in a week which was much faster than I expected.
Please stay in touch,
Carol
People here on the forum and my GI doc said it would take about 2 years for the gut to heal, so I had to plan for the long haul. (The gut heals faster in younger people).
Remember too that something like 70% of our serotonin is made in our intestine and not in the brain. It’s no wonder we feel so anxious and sad when this disease hits and our GI tracts can’t function like normal. There are real biological as well as psychological reasons for this. I, and others here, can relate to the fear and exhaustion that this disease brings. And we are also examples of surviving that first horrid onset of this disease and how to do it. Keep seeking information, reaching out to others and working to find foods you can tolerate. Your Enterolab results will be very helpful to you. I hope you get them quickly. Mine came back in a week which was much faster than I expected.
Please stay in touch,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Thank you so much Carol, specially for the hugs because I really need them. So glad to hear that the flare did not last long. Love xoxrcchild@gpcom.net wrote:Ingrid,
I have no knowledge of cholestasis, but in doing a quick google I got the idea it was a bile problem involving the liver and gallbladder. It seems that, when dealing with LC and the problems we have with the colon, our entire digestive system can be affected. After we reach remission those problems resolve themselves. I know I've been concerned that my Pancreas is not working correctly, but once I get the LC under control it will probably work itself out.
This disease is sooo nasty and lonely. Hang in there, it will get better! Many times in my lifetime, when I felt like things were at their worst, a little miracle would happen and things would start to get better! I hope that is the case for you also. I was just recently in a flare and felt like I had slipped back to where I was at the beginning of this journey. Luckily the flare hasn't lasted too long, but I got so down and depressed (maybe like you are feeling right now.)
I'm sending you hugs and prayers for remission and feelings of strength and happiness.
Good luck Ingrid. We are here for you.
Carol
Ingrid
Tex, no words to thank you all the times you always give me hope and answers to all my doubts and fears. Thank you so much for share all your wisdom and time, it is so valuable. Hopefully I will find the soultions.tex wrote:Hi Ingrid,
Carol is correct, cholestasis is somewhat common with MC. The solutions may be right around the corner. We just have to find them.
Tex
Ingrid
Dear Carol, you are always so sweet, I hope to have them soon. I am just now on rice, turkey, potatoes and cooked greens.carolm wrote: Your Enterolab results will be very helpful to you. I hope you get them quickly. Mine came back in a week which was much faster than I expected.
Please stay in touch,
Carol
Ingrid
Ingrid,
I too am just repeating what everyone before me has said. We have all been right where you are; losing weight, lethargic, losing hair and foggy brain. Please just keep reading, I read everything on this forum, every day, that’s all I did. Everything I’ve learned has come from our family here. I was diagnosed in June of 2014 and I pretty much live a normal life now as long as I pay attention to what I eat and I behave. Sure, I feel sorry for myself at times when I can’t eat a lot of fast food or have what everyone else is having. I feel so good now that it’s worth it all. Please take care of yourself and take in what everyone is telling you.
You will be in my prayers and thoughts.
Much love and hugs,
Grahm (Connie)
I too am just repeating what everyone before me has said. We have all been right where you are; losing weight, lethargic, losing hair and foggy brain. Please just keep reading, I read everything on this forum, every day, that’s all I did. Everything I’ve learned has come from our family here. I was diagnosed in June of 2014 and I pretty much live a normal life now as long as I pay attention to what I eat and I behave. Sure, I feel sorry for myself at times when I can’t eat a lot of fast food or have what everyone else is having. I feel so good now that it’s worth it all. Please take care of yourself and take in what everyone is telling you.
You will be in my prayers and thoughts.
Much love and hugs,
Grahm (Connie)
Live, Laugh & Love Much