Tex, Habba Syndrome?

Babsey · Post by **Babsey** » Wed Oct 22, 2008 9:58 am

http://habbasyndrome.com/index.html

I was wondering if anyone has ever heard of this. My husband's grandmother was watching "Mystery Diagnosis" last night and called me right up to tell me about it. I've never had my gall bladder tested.

Lemme know what you think.

katinchatt · Post by **katinchatt** » Wed Oct 22, 2008 10:37 am

Hi,

2 years ago when my symptoms initially began (tho intermittent) my Doc assumed it was Gallbladder related. Extreme upper abdomen pain, D & general over all felt pretty bad. Ultrasound showed OK. For 2 years off and on D, pain, D, pain, then minimal pain and lots of D.

Biopsy initially may not show it as MC, but would be worthy of follow up if symptoms continued. Interesting theory that it may be another trigger?

kat

jodibelle352 · Post by **jodibelle352** » Wed Oct 22, 2008 10:51 am

Hi Babsey:

Thank You for sharing this article.

I'm going to bring it to the attention of my PP to check out.

I have already had my gallbladder removed back in Jan. of this year but I'm still experiencing severe weight loss. Infact when I saw my GI just on Monday, 3 months ago I weighed in at 97lbs. When I weighed in on Monday I had lost 3 pounds and am now down to 94lbs.

What I found so interesting was how this article discribes the fear people experience of going anywhere unfamiliar and how some have changed their eating habits because of their fears of having it followed by The Big D!

I truly appreciate your sharing this because I have to wonder since I've experienced the D for so long without getting a DX's is it possible that I'm doing more harm to myself being so cautious about what I eat?

If I eat something that doesn't agree with me and I get D, then I'm physically ill for the rest of the day. I don't want to even think about putting anything past my lips.

Sorry about rattling on but maybe I'm hurting myself because I am afraid.

Thank You:
Jodi

Post by **tex** » Wed Oct 22, 2008 11:12 am

Hi Babsey,

Call me a skeptic, but until I see evidence that Dr. Habba's research included the taking of biopsy samples of every patient diagnosed with "Habba Syndrome", (to rule out MC), I suspect that this is just another example of misdiagnosis of MC, due to the failure to take biopsies during a colonoscopy. The "work up" description mentions a colonoscopy to rule out Crohn's and/or UC, but it does not mention the need for a biopsy, and biopsies are not necessary for diagnosis of Crohn's or UC, due to the presence of lesions that are visiable to the naked eye, during an exam with a colonoscope. I could be totally wrong, of course, but without the mention of those key words, "biopsy samples", I can reach no other conclusion from the description at the site you referenced.

The thing that really looks suspicious, is symptom number three, in their symptom list:

Failure to respond to standard therapy of IBS or spastic colon

That makes it pretty clear that MC is totally off Dr. Habba's radar. In fact, all three of the other symptoms listed, also apply to MC. Several members of our discussion board, for example swear by Caltrate 600, (which works by binding bile acid). Another symptom mentions "fear of eating to avoid diarrhea".

Is there anyone who is a member of this board who can honestly say that they have never had that fear? I don't think so.

I also note that MC can affect the way that the pancreas and the gall bladder function. In fact, we have members who have been claimed, (by their doctors), to have serious pancreas issues, (but those issues cleared up, when their MC symptoms were resolved). We also have at least a couple of members who have had their gallbladders removed due to "major physiological changes" to the walls of the gallbladder, (probably due to an inflammation of the epithelium of the gallbladder, similar to the inflammation that we have in the epithelium of the colon). This was not "normal" gallbladder disease, because gallstones were not the problem, and when gallstones are not present, most doctors will not come up with a diagnosis of gallbladder disease.

At least that's my opinion, until I see evidence to the contrary.

Tex

Babsey · Post by **Babsey** » Wed Oct 22, 2008 11:22 am

Thanks Tex, I'm also very skeptical. I wish there was a "contact us" button on the website so I could ask about MC to see if he even knows anything about it.

I highly doubt that I have any gallbladder problems, I have no other symptoms other than the D. I'm having alot of bloating and severe stomach pain lately.

I just feel physically and mentally "ill" all the time.

Thud is my favorite icon. It explains exactly the way I am feeling.

Post by **tex** » Wed Oct 22, 2008 11:38 am

Babsey,

Before we achieve remission, many of us feel as though we were hit by a truck, (or a freight train), when we try to get out of bed in the morning. Even our hair hurts. The "brain fog" is often so bad that we can't "think straight", and it's dangerous to make any major decisions, when we're having a major reaction.

All those symptoms are due to the toxic effects of gluten in our bodies, but those symptoms all disappear, when we finally achieve remission.

Hang in there. Please don't hesitate to post, anytime you need to "whine", or you need a shoulder to lean on, or you have a question. The fact that you're continuing to work, (two jobs, at that), makes it doubly hard on you, but if you stay the treatment course, you'll get your life back.

Tex

Babsey · Post by **Babsey** » Wed Oct 22, 2008 11:45 am

I have hesitated to post lately since I'm feeling so down. I'm actually sick of whining and I'm usually the queen of whining!

I'm putting in my notice tomorrow at my second job. I feel like I cannot keep up with my life right now. I think I will feel better knowing that I can go home at 5 and relax a bit instead of working another 5 hours before I see home in sight.

I'm sure things will better when the house is completed and we are settled in (not a specific date yet now that we are running into rain/snow weather) UGH!

I don't think I'm doing se well following the gf. I just need some time to prepare meals and not having to be on the go all the time will help.

Thanks for listening (reading) and I would like to change my username to:

lol

Post by **tex** » Wed Oct 22, 2008 12:28 pm

Dear Thud,

That should help. Five hours is a long time to work, after you've already put in a full day of work. That will give you some time to relax, (which you desperately need with this disease), and it will allow more time to plan and prepare meals.

Speaking of working on houses, have you ever come across the old post where one of our members, (I believe it was Mars), drove home from work, rushed to the bathroom, and discovered that the toilet was gone? Her husband had decided to work on the bathroom floor, without bothering to mention it to her.

Fortunately, he had left a bucket full of tools in the bathroom, so she dumped them out, and saved the day.

I did a search, but I wasn't able to find that post - maybe it was posted on the old board, but I thought that it had been discussed here, somewhere.

I hope you feel better soon.

Tex

Babsey · Post by **Babsey** » Wed Oct 22, 2008 12:42 pm

OMGoodness, what a story. That sounds like something that would happen to me. My husband is so oblivious to my condition, he would probably do that to me!

I cannot concentrate on working today! I'd rather just read the posts.

Sincerely,

Mars · Post by **Mars** » Wed Oct 22, 2008 6:04 pm

Oh Man Tex - I had forgotten that one!!!! I also searched and couldn't find it - bummer since it was hillarious (now that it's after the fact).

I came home with the most urgent need to GO and the bathroom was EMPTY! The toilet, sink and floor was gone, gone, gone!!!! Larry had run to the store for parts so I ran to both neighbors and both of them were gone! I ran back into my house, crying and in the worst panic, trying to figure out what I was going to do!

I ended up taking a 5 gallon bucket that was full of tools, dumping the tools on the floor (lucky hubby that I dumped them first!), ran water in the bottom of the bucket - took the TP to my BEDROOM of all places and planted my big butt on the can and proceeded to do my business!

So.........to make matters worse - I didn't know what to do with the full bucket of "you know what" so I covered it with a board and set it outside the back door waiting on a toilet to flush it down!

WOW - remembering that now is a hoot but it sure was a reason to not speak with my husband for awhile!!!!!!

Tex, I don't know what happened to the post - wish I could find it!

Love,
Mars

Babsey · Post by **Babsey** » Wed Oct 22, 2008 6:18 pm

Mars,

What did your husband say about it all after it happened? Did he feel badly? WHY WOULD HE DECIDE TO FIX THE TOILET DURING A FLARE-UP????? Don't they get that we cannot be without one for 30 seconds, let alone a whole day?

Too funny (now that it is over)

Thanks for sharing!!!! I needed a laugh today!!!

jodibelle352 · Post by **jodibelle352** » Wed Oct 22, 2008 6:34 pm

With all our Potty Stories I think we could become "stinking rich" if we all co-authored a book that would inlighten everyone plus put a humorous twist to many of our potty issues.

I bet you were ready to rearrange your hubby's plumbing when he decided to do that bathroom job. OMG!!!!!!!

Love and God Bless:
Jodi

Post by **tex** » Wed Oct 22, 2008 6:35 pm

Mars,

I searched some more, but didn't have any luck. Either it's hidden in another thread, or it was on the old board. I sure thought it was posted here, though.

Love,
Tex