Interesting NEW Rare Disease Program - PLEASE READ & Lin

[katinchatt]

Finally opened my copy of Nov. Good Housekeeping and saw this: p. 37

-To provide answers to patients with mysterious conditions that have long eluded diagnosis
-To advance medical knowledge about rare and common diseases

SOLVING YOUR MEDICAL MYSTERY: For people whose ailments baffle their doctors, there's a new place to turn for help. The National Institutes of Health has opened an Undiagnosed Diseases Program, where physicians from more than 25 specialties put their heads together on puzzling cases. Each year, they'll select about 100 patients (referred by their health-care providers) to come to the NIH for evaluation. For info, go to;
http://rarediseases.info.nih.gov/undiagnosed
Even if you're not selected, screeners my be able to advise you on how to proceed.

Naturally we have all been diagnosed, however the majority of our Dr.'s are baffled! Would love to see MC represented here. Anyone have a Doc who is more baffled than most and would refer you?

Worthy of a shot & it's about time!
Kat

[JLH]

GREAT FIND. I'll pass this on to my brother if he doesn't get a diagnosis from his colonoscopy biopsies.