Visit the Microscopic Colitis Foundation Website
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Those annoying reps stop in my office all day long and carry on and on about their products and how great they are. 
Notice that the research article you cited is only about a year and a half old, (virtually only yesterday, by medical standards). As time goes on, more and more of these reports will surface, as the newer "miracle drugs" have time to "do their thing", and establish a track record.Actually, that's how MC appears to initially begin. In fact, any form of enteritis, whether it be caused by a severe virus, a bacterial infection, parasites, meds, food intolerances, etc., can lead to MC, if the right conditions are present. Once MC is triggered, then certain genes are also triggered, and the reaction becomes self-perpetuating. We've had discussions in the past, where we talked about the fact that MC might not actually be a disease in itself, but rather a collection of symptoms, due to other issues. There is a huge need for more research on this disease, but as long as the medical establishment continues to view it as a "rare" disease, not much is likely to happen.Kat wrote:Can chronic diarrhea cause MC itself? What if MC is secondary and it's our body's reaction to having D to begin with? A true barrier of sorts.
That's true for a lot of meds, isn't it? People start with one med to treat some condition, and before they know it, they have trouble keeping up with all the meds that they have to take each day.Kat wrote:I'm not dissing Entocort what-so-ever! However, I find that (in some cases) 1 of their pills cause the need for the other.........?
We can certainly use all the help we can get, and if we can get enough people involved, we may be able to "educate" enough people in the medical community, that eventually, a newly-diagnosed MC patient will actually be able to get an effective treatment plan from their GI doc. I'm not holding my breath, though, because a lot of those guys seem to be pretty resistant to change. LOL.Kat wrote:If indeed this is my story, then I continue to fight this fight with all of you, trust me we can all move mountains if we have to.
Never, Ever tempt the "D" Gods
I want my Mommy!
trying to do this > > > 
MC is fickle. You think you're getting better and then, KA-POW! You're getting worse again. I give my GI doc credit for knowing that much about it--Over the course of time I've had symptoms--5 years or so--I've gone from almost better (never without D, but with controllable D that let me sleep) to going all the time. Your problems this weekend could be a combination of your body trying to adjust to being off meds and just regular old MC issues. I say--yeah, it's great to be off meds, and I would love to be able to never visit a pharmacy again in my life, too--but find the best combination of meds and diet that works for you and stick with it! Until you're in remission, anyway. (*sigh* Easier said than done. It's hard to know which meds are helping and which are hurting! ) Then maybe you can try changing the meds and going by diet alone. But what do I know? I'm not in remission yet!
Hi Tex,tex wrote:
It's possible that if the Nexium was indeed the cause of your MC, then when it triggered the MC, it also triggered one or more genes that cause gluten intolerance, and/or some other food intolerance. It's very difficult to pinpoint exactly what happened, because there are so many possibilities.
I see that all over the literature on the internet, also - not only about this issue, but most medication-associated chronic reactions. That outcome may well be true, but for some reason, virtually all of the people who have been fortunate enough to experience that resolution of symptoms, never register for membership on this discussion board. At least, I'm not aware of any members of this board, (with one exception), who have experienced that. Katy's MC was triggered, (in her opinion), by the long-term use of NSAIDs, and she didn't seem to have significant gluten issues for several years. She did, though, have minor symptoms, (stiffness, aches and pains, etc.). After a few years, those symptoms have grown progressively worse, to the point where she definitely has to cut all gluten, (and possibly other foods), from her diet, in order to resolve her symptoms. To me, that still appears as though her gluten intolerance was triggered initially, but it took a while for her sensitivity to develop to the point where her reactions to gluten included D. We are all aware that sensitivities to allergens tend to become worse, with increasing exposure, and food sensitivities are probably no different, regarding this rule.Kat wrote:and they all (so far) have said that discontinuing "should" reverse the MC, and that biopsies after remission showed no signs of MC
Tex - I get the impression that many medical authorities are too quick to pronounce a patient cured, when in fact, they are only in a state of temporary remission.
Tex - Did you take the capsule a day before the scan?
