A referance to *CRYING*

[barbaranoela]

I have to say---that CRYING--is a tag on with this ailment-----catching up and reading some posts--

U think U are starting to have a BETTER day and then--there comes *running rapids*--and U hope U make it to the *throne*--or else U are out shopping (hoping to have a fun day) and in a split second your tummy starts the *RUMBA* --thus causing U to *tear* in hopes that U located the bathroom on other occassions--
Or else U are just sitting--and the tears flow---U wonder---is this going to be a better day---can I leave the house and just stroll around---can I go out with friends--without that PETRIFIED look on my face~~~

As U all---I have been there and back----U want to say *enuf* enuf*---but U know more is to follow--

I--HAD been in remission for a long time---and was sooooo happy--but since this past December 07--when I had to have my verterbre cemented--due to falling down the stairs--I am now facing the opposite---total CONSTIPATION----and of course---the *TEARS* again--`in reverse---if I am going out tomorrow---I dare not take a stool softener--or any other meds to motivate my system to *move* --which then leaves me bound-up and then the next day I am in big trouble--

So, let the tears fall where they may----and when they may--

I am a *crier* anyway--a very emotional person---a *thought* can bring tears to my eyes--A simple *correction* from my other 1/2 makes me cry----
Sometimes I feel like a little child--crying crying and crying---maybe from happiness--good news--bad news---a romantic movie--remembering something funny that happened waaaaaaaay back--

Today has been an up early crying day---doctors again--Lou driving up to work at Lynn's house--then when he got home---he fell to sleep on his recliner(downstairs)--so I proceded to rustle about in the kitchen *quietly* but the more U try to be QUIETER the more NOISE one makes --and he came stomping upstairs yelling *can U make any more noise*~~~~and into the bedroom he went slaming the door and YES~~~ I GOT HYSTERICAL--CRYING!!! over making NOISE!!!

Of course that episode has nothing to do with Colitis issues---but I guess I posted it cus I had to *vent*

I trust one day SOON--all of these ailments will be a thing of the past-(am I dreaming)--cus wellness--illness--joys--sorrows--have *tears* that want to just roll down our cheeks~~~

U are all a joy to me--once again I am so thankful to have U--U and U
Remember--In good times--in bad times--we are here for each other~~~
luve~~~Barbara

[MaggieRedwings]

Morning Barbara,

I even cry at commercials and would definitely term myself a crier. It is good for the sould but I must say that trying to beat this disease for 8 years has left me the last 6 months crying more than usual. Some days I want to post but do not want to refer to feeling bad with so many newbies on board. Would make them think they will never beat it. The past month has been horrible and crying is a daily or more routine. I feel like I am reverting backwards and I know the economy has a lot to do with my stress levels since Frank and I are not youngsters. Guess it is my time to vent right along with you.

Love and we will be criers together.

Love, Maggie

[Babsey]

Dear Crying Barbara

You are not alone. I've only had this for almost 6 months and I feel guilty when I whine about it, since I know people battle this for years before remission. I cry when my kids do well at horse shows, band shows, commercials, TV, etc. Sometimes you just try to "toughen up" but that only lasts for so long. And then the dam breaks. Looks like your dam has broken.

I'm starting to feel like an outsider in my own family. They still do not get it.
I hate Tuesdays! I have to take three girls to community college, be to work by 8:00 a.m. and go right to my second job and I get home about 10:30 p.m.
I barely make it from home to work on a normal day and now I spend another 30 minutes in the car running around and the whole time, trying not to panic about getting the gurgle or cramps. UGH!
My daughter and her friends usually carpool, but tuesdays I have to bring them. We are trying to help her get her own car soon, but with building the house, every penny is accounted for.

WHEN WILL LIFE BE NON-STRESSFUL????? Never???? Sheesh!

Don't worry about crying and venting, it's comforting to know that other people aren't stong every minute and also have meltdowns!!!!

Ihope you are feeling better, I'll check back later to make sure! Smile, we all love you!!!!

[Gloria]

Maggie,

I think about you a lot. You've struggled with this disease for a long time without much resolution. I know it must get you down and I don't blame you for getting discouraged. We were so excited when we read that Entocort was helping you, but then you had to cut back on it because of the dizziness. I wish there was something we could do to help you, but you've probably thought of everything in eight years.

Know that you are an inspiration to all of us. You continue to post and encourage everyone. You share your love of birds and nature which uplifts us all. I am so appreciative that many of the old-timers continue to help us newbies work through this disease.

Gloria

[katinchatt]

Greetings all,

I had to give this post a *bump* . . . here's why.

Just over a month ago I joined this family. I was at the end of my rope, you all know, you've hung from it yourselves. (Wait, not the loop over the neck end, . . . just wanted to make that clear).
I kinda stayed in the background for a while and then jumped in head first! I realize I post a lot, but I needed to know a lot . . . blonde and all. Anyway, this has been a journey that I have found fascinating, though the road has been rough. Emotionally in the beginning I cried at everything, and at nothing at all. Now, still emotional, I cry because I have found the magic in the clouds again, the love of perfect strangers, and the dedication of those who's purpose it is pay-it-back, or pay-it-forward. My heart goes out to each and every one of you with ongoing struggles, the newest members who need you more than you know, and all those healed and standing by with arms wide open.

You've opened my eyes to a world I guess I thought I would never need, but I do, and I'm thankful to have made so many new friends. We all wander through life wondering what our "purpose" is, for a few of you ~ this place, your words, your compassion is your purpose.


The face behind the TP - lol

[tex]

Kat,

I read your post earlier, but didn't respond - mostly because I wasn't sure how to respond. Considering the relatively short amount of time that you've been a member, you have gained an impressive amount of insight into the workings of the "mystique" that defines our internet family. It's hard to explain to some people why many of us actually feel lucky that we have such a life-altering disease, (simply because if we didn't have it, we never would have had the opportunity to become acquainted with the incredible and interesting people who make up this family), but you seem close to feeling that way, already. Yep, the disease definitely has a big effect on emotions, and for many of us, it seems to be a permanent alteration - my eyes teared up, just reading your post.

You've opened my eyes to a world I guess I thought I would never need, but I do, and I'm thankful to have made so many new friends.

That line really got to me, because when I first came across the original board, I was already in remission, so I didn't see any real need to join, but I had never seen an MC support board before, so I read a few posts - and then I read a bunch more. It immediately dawned on me that "these people are just like me", and after a couple of weeks of lurking, I finally got up the nerve to join, and post. Amazingly, (to me at least), they welcomed me, (a total stranger), with open arms, and after years of feeling all alone in the world, trying to deal with a disease that no one understood, it was like suddenly finding a long-lost family.

I think that we've commented on this in the past - the obvious fact that it seems that the nicest people in the world get MC. I'm not sure if I'm included in your classification of purpose, but I can tell you that I feel very privileged to be a part of such an incredible family, and one of the things that makes me extremely proud, is the way that it usually takes less than a week, for most new members to learn more about treating MC, than the GI doc who is supposed to be treating them. That's really gratifying, when you think about it, isn't it.

Tex

P S I can't believe you've been hiding such a great face behind a roll of TP all this time.

[Polly]

AMEN to all that has been said!

Yes, Kat, I'm glad you peeked around that roll of toilet paper. It's always fun to put a face with a name (a very attractive one, BTW).

Love,

Polly

[katinchatt]

Tex & Polly,

Yes, you are most assuredly in the classification of those here with a purpose!

Early yesterday I just got so angry. Questioning why our GI are so clueless , why they don't even bother to "want" to know whats going on with this disease, with us, their patients. That's their purpose, their specialty, but they offer us nothing. Then a sense of peace came over me from somewhere, and that anger turned to the realization that we don't need them, we just need each other. For those of us early on who do need the meds., we can get around their oblivious attitudes and just ask. I wouldn't have known what to ask for if it hadn't been for this board. I'd still be sick taking Pepto, wondering why me, and still having lavish pity-parties-for-one.

For me, it's simply overwhelming. Along with a horrible disease, I gained much more than simply healing. I've got a ways to go, I'm aware of that, but with everyones help, it doesn't seem like such a lonely road after all.

PS - The TP roll didn't seem to apply any longer

[Becky]

Dear Barbara,
Now I'm emotional. I'm glad you started this thread, we need to be reminded to be thankful. I CAN NOT imagine going down this MC road on my own. I would be certifiably insane by now, I'm sure.
I have a great life - family, kindergarten teaching job, friends... but MC is something I'm on my own with. This forum has been a lifeline for the last year and I am SO very appreciative.
As we're approaching turkey day. I hope everyone one has an blessed, thankful weekend.

[Liz]

Hi Barb

Crying is therapeutic. I have been doing quite a bit of it lately. Finished up a blubberin wreck in the doctors surgery recently. I was tootling along quite well for a while with just the usual problems, then the wheels fell off and it really made a mess of things.

I have had pain in my left leg, really bad in knee and lower back pain since July. I will not be seeing a orthopaedic specialist until next Monday 24th when I hope to be referred to a back person.

Seems that everyone specialises within a specialty these days. The bloke I am to see is a leg man but my doctor seems to think that he will fast track me to the back fellow who under normal circumstances I would not be able to get in to see until next year. . I have been in such pain and was getting no sleep until I was put on the strongest pain killers which, along with the Vesicare that I take for my bladder problems made me constipated. Nothing that I took would shift things so I went off all of the meds including the Vesicare. Bingo the big D. But the pain got worse again.

So what do you do. Take the pain killers & stay clogged up or go off them & suffer the pain.

I am not concerned about the D so much, I am used to handling that, but the constant pain just gets you down.

Love

Liz

[tex]

Hi Liz,

Sorry to hear about all the pain problems. I agree that intense pain usually puts other symptoms on the back burner, until it is resolved.

Have you ever tried a natural remedy called boswellia? Polly brought it up about a week ago, and we've been doing some research on it, and discovering that it does indeed have a proven track record for relieving pain about as well as NSAIDs, for example, without any of the adverse side effects. It's an old Ayurvedik remedy, except that the active ingredient has now been concentrated, to make it more effective. The herb apparently acts the same way as COX-2 inhibitors, and reduces the pain and inflammation without affecting gastric mucosa. It has been show to be effective against inflammation of most types, including osteoarthritis, rheumatoid arthritis, back pain, joint and muscle pain, IBDs, and the list goes on and on. I ordered a bottle online, intending to test it out on a headache, or joint or muscle pain, but since it arrived, I haven't had any pain to test it on, so I haven't tried it yet. (I'm lucky these days, in that I don't seem to have any pain problems very often).

Here are some references if you want to read more about it:

http://www.arthritis-treatment-and-reli ... -pain.html

This site lists some research studies:

http://www.ayurvediccure.com/shallaki.htm

After previous studies had found boswellia more effective than placebo, the Indian government funded research on boswellia in a comparison study against a type of NSAID know as a selective Cyclooxygenase 2 (COX-2) inhibitor.7 Selective COX-2 inhibitors are the latest class of anti-inflammatory drugs that have been found to high effective, but which most have more recently been shown to cause serious cardiac risk.

The researchers in this study stated in conclusion that "in terms of safety, efficacy and duration of action, the present study shows that [Boswellia serrata extract] was superior to valdecoxib, except for the slower onset of action compared to valdecoxib."8

Here is that reference:

8. Sontakke S, Thawani V, Pimpalkhute S, Kabra P, Babhulkar S, Hingorani L. Open, randomized, controlled clinical trial of Boswellia serrata extract as compared to valdecoxib in osteoarthritis of knee. Indian J Pharmacol 2007;39:27-29.

That information comes from this site:

http://www.wholehealth.com/index.cfm?fu ... xwodUWri_Q

This looks to be promising, especially since it has been proven to help so many different issues. It sounds as though it doesn't work as fast as some "modern" painkillers, but for someone taking painkillers regularly, that shouldn't matter, and the fact that no adverse side effects have been noted for it, is a real bonus. Anyway, I just thought you might be interested in this, if you're not opposed to "natural" treatments.

Love,
Wayne

[Liz]

Thanks Wayne,

I have just bought some Emu Oil. It apparently has been used for many years by Australian Aborigines for pain relief of arthritic & muscular conditions. My sister was over yesterday & she has been taking it for some time & she looks & feels great. She no longer has problems with her knees, especially with stairs. It is worth a try anyway. You have to take quite large doses for 8-12 weeks before it starts to take effect. It seemsa to have a similat effect to your boswellia in that it also is good for skin problems like psoriasis. It also is supposed to clean the liver. My sister has liver problems due to the huge amount of Coca-Cola that she used to drink (she is a teetotaler) She reckons that she feels heaps better now.

http://www.emuspirit.com/


Love

Liz

[annie oakley]

Crying is actually good for you. It releases Tension. Mike and both get teary eyed more than we used to at the simplest things.
Love Oma