What I've been up to /

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jodibelle352
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What I've been up to /

Post by jodibelle352 »

For the most part over the past few weeks medically I've been doing quite well. My last apt. with my G.I was on October 20th when she decided it was time to see if I could tolerate weaning off the Entocort. Soooooooooooooo.......................Help Me Lord Here I Go!!!!!!!!!!!! As of today, which is 1 month I have been blessed, because I've done quite well on 2 capsules/6mgs daily. Tomorrow I will TRY going down to 1/3mgs daily.
I am also now taking 1500 mgs of Calcium per day pluse 4000 UI's of Vitamin D (Thank You so much Tex for your suggestions because it's my hopes that I will at least find a way to at least SLOW DOWN the severe bone density loss)
I have also been doing some research about medications and their interactions with each other. Because of my Lupus, Fibromyalgia, Lower Back and Hip Pain because of my Osteperosis I'm on some pain medications the combined with my medication for depression and others could be one of the reasons that medically I'm a total and complete mess. Arghhhhhhhh!!!!!!!!!!!!!!
If I'm not mistaken Tex is the one who also informed me that sometimes one medication needed for one medical condition can cause problems in another area. Well, because of what he explained to me I decided to do some extensive research with my Husbands help and also my niece LuAnn who lives in Humbel, Texas. Boy have I had an eye opening experience. I have found at least 5 - 7 RED FLAGS on different medications I'm taking that if I happen to take them at the same time can be very costly for my medical well being.
I have had an apt. with my PP who has taken my concerns for seriously and is taking me off certain pain medications and doing some research to see if there is something I can take without the side effects that I have already experienced over the past few months.
These things seem to be contributed to have too many CHIEFS and only ONE INDIAN! They are all updating my medications in my files and forgetting to check out what the HELL can happen to an individual if they happen to combine certain pain killers with an antidepressant! I suggest anyone who just happens to be on an antidepressant of anykind and also taking the pain medication Tramadol/Ultram BE VERY CONCERNED and BE KNOWLEDGEABLE. PLEASE take the time to look up the interactions of taking these 2 medications together.
On another note, my stool is FINALLY solid which it has not been for almost 17 now. I having increased my weight from 94lbs to 98lbs and hoping that it continues but NOT holding my breath. I have still experienced some Big D but only about once or twice a week now. Thank You Lord! For me that is a very big improvement and am so grateful to what small changes have taken place since I first joined these boards and met so many friends who have helped me cope with my CC.
I'm growing some much needed "back bone" to speak my mind instead of being passive and when truly pushed to my witts end I now know I can and have been aggressive without being rude. I have decided and am taking my life back and now am asking "WHAT THE HELL DO YOU THINK YOU'RE DOING TO ME? TRYING TO KILL ME?"
I've been very upset recently with what I've found out about the devestating effects of combining my antidepressant medication Zoloft with Ultram and then turn around and have Xanax added to the works to help calm my ass down when I get upset. These 3 medications taken too close together are probably the reason I was taken to the hospital just about a month and a half ago because I bit the dust on the livingroom floor and had NO memory of my best friend being with David and myself the night before who did everything in her power to help calm me down. Let me be FRANK here.......................I had accidently overdosed myself on taking to many medications that shouldn't have been taken together.
In order to distract myself from the pain I've been having I have been working many hours on my crocheting hoping to make a little extra money with the Holidays around the corner. It also relaxes me which many will find crazy. LOL Honestly, crocheting actually relaxes me and I love it! Heeheehee. Infact on Monday, I actually go an order for 10 crocheted angels that I need to have completed by next week. OMG! I have all 10 halo's done, 10 sets of Angel wings and have completed 4 Angel dresses. This means I only have 6 too finish then I can pin and starch everything so I can glue and put all the finishing touches on the Angels. PHEWWWWWWWW!!!!!!!!!!!!!
I want to end by wishing everyone and very Happy Thanksgiving with the hopes that everyone will give thanks for the many blessings we've received with all here who are also our extended family.
Love and God Bless:
Jodi :pigtail:
May God and All His Angels, watchover, protect and guide you "One Day At A Time".
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tex
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Post by tex »

Hi Jodi,

I'm glad to see that there's a lot of good news in your post, and I hope you continue to improve.

Does your doctor intend for you to completely stop using Entocort, or will you remain on a maintenance dose of 3 mg per day? The reason I ask, is because I'm afraid that a few days after you stop taking it completely, you will relapse, unless you're also following a strict GF, and probably DF, diet. If that's the case, it seems a shame to do that, right before the holidays.

Good luck getting those projects done.

Love,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by JLH »

Hi Jodi, I'm so happy to hear of your progress with figuring out your meds etc. We've missed you around here.

I sent you an email but I'm not certain if it really got through or not. I have an email stuck in my outbox and it is stopping all my outgoing mail. The cable company made DH erase all the others that were backed up, I don't know why. They couldn't help him after all that.

Happy Thanksgiving. :turkey:
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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jodibelle352
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Post by jodibelle352 »

Hey Tex and Joan:

I will maintain the 3mgs daily of the Entocort for an undetermined amount of time. However, I think I'm going to take your advise a NOT decrease my dosage of 9mgs until after the Holidays. I never gave it a thought about having to spend Thanksgiving or Christmas in the POTTY! Arghhhhhh!!!!!!!!!!!!

Joan I didn't receive your e-mails. I've been so busy trying to get some ornament orders finished that David is the one who's been on the computer more than myself. I do check my e-mails in the morning and again in the evening but have been trying to stay ahead of orders. Since there's only one of me who crochets and have no other family members who even know how to chain stitch let alone make all the different detailed parts needed for this order I'm pretty much my own entire staff. LOL :pigtail: I

I will keep you posted on how I'm feeling and doing. Please have a very Happy and Blessed Holiday and know that I'm always thinking of each and everyone here and will be back stronger than ever after things calm down.

Love and God Bless:
Jodi
May God and All His Angels, watchover, protect and guide you "One Day At A Time".
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Post by Gloria »

Jodi,
It'so nice to hear that you're doing better and have gained a little weight. Maybe there's light at the end of the tunnel.

Gloria
You never know what you can do until you have to do it.
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Post by Dee »

Good to see you posting Jodi!
I've had you on my mind hoping things were improving for you.
I hope stopping or whatever you have to do to keep your pain under control helps you to feel better!!
Keep us updated kiddo!!!!


Love
Dee~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
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jodibelle352
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Post by jodibelle352 »

Gloria and Dee:

Thank You so much for your love and concern. I have been quite busy with crochet orders as I stated in my post. I'm beginning to dream about crocheting Angels in my sleep. LOL
I have let certain people know that my cut off date for any orders for Christmas is Dec. 7th. After that it's my turn to relax and get ready for the Holidays. There is NO WAY I'm going to work right up until the week before Christmas because somebody decided that they want more than I can handle on my own.

I have been feeling much better but have to admit that I'm hoping my PP is able to come up with an alternative medication for my pain as taking nothing to ease the pain makes things very hard for me. My husband; David has been very supportive and when the lower back and hip pain becomes really severe he actually massages my lower back, hips, shoulders and where ever I feel I need relief. I've been very upset about the interaction by taking certain pain killers with some of the medications I've been taking. It still bothers me that at times I was actually unknownly over medicating myself to the point of a possible overdose. That to me is NOT ACCEPTABLE.

Please enjoy your Holiday's with all it's many blessings.

Has anyone heard anything from Angy (KittyQuartz) recently. I know she was having some medical problems and have tried to send her some PM's and have heard nothing back unless she hasn't received them.

Love and God Bless:
Jodi
May God and All His Angels, watchover, protect and guide you "One Day At A Time".
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