Visit the Microscopic Colitis Foundation Website
http://www.webmd.com/digestive-disorder ... prep-drugs
This is the drug I took and it did clear me out for the colonoscopy! And the D never stopped! Took over a year to find out I had CC which I never had before taking the Visicol! I took 28 of the darn pills as prep. Later I read where doctors were only prescribing 4-8 pills.
grannyh
FDA warning about Visicol for colonoscopy prep
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Oh my GOSH!!! That is quite a mistake!! I'm really sorry it happened to you. Were you having D before the overdose?? I know the Fleet Phospho-soda made me deathly sick when I had to use it the last 2 times!!
I don't think that vomiting was included in the all day clean out.
I remember sitting on the loo and vomiting into a bucket at the same time.
Lost 5 pounds that I couldn't afford to in one day.
I know that I'm due for another colonoscopy next September, so I don't know what I'll have to use.
There's no way I'll do the above or the pills.
I don't think that vomiting was included in the all day clean out.
I remember sitting on the loo and vomiting into a bucket at the same time.
Lost 5 pounds that I couldn't afford to in one day.
I know that I'm due for another colonoscopy next September, so I don't know what I'll have to use.
There's no way I'll do the above or the pills.
"What the heart gives away is never gone ... It is kept in the hearts of others."
I am waiting for there to be another way to do a colonoscopy. In 2002, when I was diagnosed we figured it was the visicol that caused the problem .... the diagnosing doctor even wrote to the company but they said there had been no adverse reactions reported. Doc said to NEVER take any kind of phospho soda prep again!
grannyh
grannyh
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Granny---holy toledo that was some cleaning out---more than a mistake I would say!!
Told L. no more oscopies for me----unless they come up with something better-
That drink made me sick as a dog---and to beat it all I had to take a suppository to start the runs---it took me an hour before I started to Xpel any of that clean out--
Barbara
Told L. no more oscopies for me----unless they come up with something better-
That drink made me sick as a dog---and to beat it all I had to take a suppository to start the runs---it took me an hour before I started to Xpel any of that clean out--
Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
That's one of the reasons that I want to get off the Entocort and maintain by diet. If I continue to have problems, my GI wants to do another colonoscopy. I think he'll withhold the Entocort from me if I don't agree to the GoLitely. I'd rather find another GI, but he/she'd probably want to do their own colonoscopy. It's a racket.
Gloria
Gloria
You never know what you can do until you have to do it.
My gastro doc said he COULD do them every year but it is a waste of money to the patient and he would rather spend his time doing things that are more helpful to patients. He is into a lot of cutting edge technology and but main work lately has been fixing botched stomach surgeries for weight loss. NOT HIS mess ups.. other doctor's work.
There are gastro docs who aren't into redoing colonoscopies if you have the results from your last one. I get copies of everything. My doc looked at the last reports and even looked at the slides at the hospital and so no need to redo the scope.
He said entocort is the safest and most effective treatment available at this time for CC for most patients and as long as it is working I should stay on it at whatever dose works.
grannyh
There are gastro docs who aren't into redoing colonoscopies if you have the results from your last one. I get copies of everything. My doc looked at the last reports and even looked at the slides at the hospital and so no need to redo the scope.
He said entocort is the safest and most effective treatment available at this time for CC for most patients and as long as it is working I should stay on it at whatever dose works.
grannyh
Hey granny, long time no see you post. I thought you'd flown the coop.
How was the snow up where you were, by the way? Your area was originally supposed to get the brunt of it, but it fooled the weatherman and headed south and east.
Welp, the GI probably means that it's the safest MEDICATION if one needs medication. We've sure seen the great majority of those on it on this site, anyway, respond better to it than the other medications, haven't we? I just hope that it keeps working for you. How long does he think you will have to be on the stuff before you can get off without return of symptoms, if at all?
You are the only person that I personally know of who appears to have developed damage from the bowel prep itself resulting directly, it would seem, in a diagnosis of M.C. It would be interesting to get some statistics on just how common that is believed to occur in the population at large.
However, the sister of the doc who did my thyroidectomy had M.C. that apparently resulted from one of that line of anti-stomach acid medications. She was lucky in that as soon as she got off of that medication, the symptoms of M.C.disappeared, at least as long as I was running into her when I'd take my mother to the beauty shop. Mom's hairdresser comes here now, so I haven't had a chance to talk to that lady in a couple of years now. I'll be sure to ask her if she's still symptom free when/if I run into her again. I'll bet that that would've eventually become irreversible, had she continued on the acid stuff, but that's just a hunch.
A similar thing happens in the upper intestine -- there can be damage from chemicals, etc., to that lining that looks and acts very much like celiac disease, but it's very rare that it's NOT celiac disease when it looks and acts like it.
A sharp diagnostician should always have this possibility in the back of his mind, particularly when the person doesn't respond to the usual treatment.
Actually, the FIRST thing I should think a doc would want to do is try the person off of any of these so-called "known" causative agents. That should be a no brainer, and the easiest thing to do in a lot of cases. Of course, I realize there are some serious considerations depending on the degree of symptoms from the acid that have to be taken into consideration before removing something that is actually helping the severe acid problem. It's not all cut and dried.
You may actually have read on the old site long ago when a lady wrote asking for support, and later, as it turned out, she reported being all better, having gotten herself a good toxicologist and a good divorce lawyer. That was the last post she ever made to my knowledge. The implication of that last post of hers was that her soon-to-be ex had been slowly poisoning her with arsenic (as I recall, but maybe some other common poison??), of all things! I always kind of wondered if she hadn't made the whole thing up as a hoax. If the person who perpetrated a hoax like that on us is reading, please identify yourself. Ha! I must admit that tops my list for hoaxes, if indeed it was!
What makes me think that this lady at the beauty shop's symptoms might not have been entirely caused by the med for acid is that she already had some symptoms elsewhere in her gut to begin with, thus the medication in the first place. She's also got thyroid issues which are highly coorelated, even in time of onset, with the M.C., both being anti-immune conditions. It just so happens that the timing of the M.C. symptoms was right after she began the medication, and it's always been considered something that could trigger off M.C. Perhaps it's a latent condition, who knows?
Anyway, I sure hope you continue to do well.
I'm thinking that I really shouldn't wait the full 10 years for another colonoscopy given what my condition was prior to the first one, and the fact that I'd had all that irritation in there for so many, many years. I'm thinking about the fact that that increases my chances of having developed some sort of cancer that might be picked up and easily treated in that area -- the large intestine, that is.
I've never had anything else GI scoped, but then I'm just past the 5 yrs of being off gluten where there's a huge drop-off statistically in the incidence of lymphoma in the small bowel. I probably should've followed up with a small bowel biopsy immediately upon discovering that I responded to gf diet so well, just in case of something else more serious in there, but now that I'm at 5 yrs, and asymptomatic, guess I'll just go with colonoscopies without the upper endoscopies from now on.
Would do that camera swallowing thing were it not for the size of the thing (WOW!) and my HUGE gag reflex! I really think that those things are going to catch lots of life threatening things that all the scopes miss, they just need to make 'em much smaller if they want me to swallow a camera! Might as well swallow a tripod with it in my case!
I should think that cameras would be a little safer, but if the camera picks up something, wouldn't they have to go back with a scope to biopsy or remove the thing? I guess then, it's necessary, however. I just like to think that this will never happen to me, but then that's how I managed to deny the fact that I never had formed stools at all for years and years. I know that I was in denial due to fear of cancer. It all seems so dumb to me now, that I put the colonoscopy off for that long. Guess I was just lucky, in a way.
You take care, and hopefully, I'll continue to have time to peek in here more frequently as I seem to have had lately.
Yours, Luce
How was the snow up where you were, by the way? Your area was originally supposed to get the brunt of it, but it fooled the weatherman and headed south and east.
Welp, the GI probably means that it's the safest MEDICATION if one needs medication. We've sure seen the great majority of those on it on this site, anyway, respond better to it than the other medications, haven't we? I just hope that it keeps working for you. How long does he think you will have to be on the stuff before you can get off without return of symptoms, if at all?
You are the only person that I personally know of who appears to have developed damage from the bowel prep itself resulting directly, it would seem, in a diagnosis of M.C. It would be interesting to get some statistics on just how common that is believed to occur in the population at large.
However, the sister of the doc who did my thyroidectomy had M.C. that apparently resulted from one of that line of anti-stomach acid medications. She was lucky in that as soon as she got off of that medication, the symptoms of M.C.disappeared, at least as long as I was running into her when I'd take my mother to the beauty shop. Mom's hairdresser comes here now, so I haven't had a chance to talk to that lady in a couple of years now. I'll be sure to ask her if she's still symptom free when/if I run into her again. I'll bet that that would've eventually become irreversible, had she continued on the acid stuff, but that's just a hunch.
A similar thing happens in the upper intestine -- there can be damage from chemicals, etc., to that lining that looks and acts very much like celiac disease, but it's very rare that it's NOT celiac disease when it looks and acts like it.
A sharp diagnostician should always have this possibility in the back of his mind, particularly when the person doesn't respond to the usual treatment.
Actually, the FIRST thing I should think a doc would want to do is try the person off of any of these so-called "known" causative agents. That should be a no brainer, and the easiest thing to do in a lot of cases. Of course, I realize there are some serious considerations depending on the degree of symptoms from the acid that have to be taken into consideration before removing something that is actually helping the severe acid problem. It's not all cut and dried.
You may actually have read on the old site long ago when a lady wrote asking for support, and later, as it turned out, she reported being all better, having gotten herself a good toxicologist and a good divorce lawyer. That was the last post she ever made to my knowledge. The implication of that last post of hers was that her soon-to-be ex had been slowly poisoning her with arsenic (as I recall, but maybe some other common poison??), of all things! I always kind of wondered if she hadn't made the whole thing up as a hoax. If the person who perpetrated a hoax like that on us is reading, please identify yourself. Ha! I must admit that tops my list for hoaxes, if indeed it was!
What makes me think that this lady at the beauty shop's symptoms might not have been entirely caused by the med for acid is that she already had some symptoms elsewhere in her gut to begin with, thus the medication in the first place. She's also got thyroid issues which are highly coorelated, even in time of onset, with the M.C., both being anti-immune conditions. It just so happens that the timing of the M.C. symptoms was right after she began the medication, and it's always been considered something that could trigger off M.C. Perhaps it's a latent condition, who knows?
Anyway, I sure hope you continue to do well.
I'm thinking that I really shouldn't wait the full 10 years for another colonoscopy given what my condition was prior to the first one, and the fact that I'd had all that irritation in there for so many, many years. I'm thinking about the fact that that increases my chances of having developed some sort of cancer that might be picked up and easily treated in that area -- the large intestine, that is.
I've never had anything else GI scoped, but then I'm just past the 5 yrs of being off gluten where there's a huge drop-off statistically in the incidence of lymphoma in the small bowel. I probably should've followed up with a small bowel biopsy immediately upon discovering that I responded to gf diet so well, just in case of something else more serious in there, but now that I'm at 5 yrs, and asymptomatic, guess I'll just go with colonoscopies without the upper endoscopies from now on.
Would do that camera swallowing thing were it not for the size of the thing (WOW!) and my HUGE gag reflex! I really think that those things are going to catch lots of life threatening things that all the scopes miss, they just need to make 'em much smaller if they want me to swallow a camera! Might as well swallow a tripod with it in my case!
I should think that cameras would be a little safer, but if the camera picks up something, wouldn't they have to go back with a scope to biopsy or remove the thing? I guess then, it's necessary, however. I just like to think that this will never happen to me, but then that's how I managed to deny the fact that I never had formed stools at all for years and years. I know that I was in denial due to fear of cancer. It all seems so dumb to me now, that I put the colonoscopy off for that long. Guess I was just lucky, in a way.
You take care, and hopefully, I'll continue to have time to peek in here more frequently as I seem to have had lately.
Yours, Luce
You have to take the prep to use the camera too. My daughter in law did the camera thing.
Yes, if they find anything wrong using the camera they have to do the scope to pinpoint the area that needs attention/surgery.
Since I only take one pill a day now.. and it is 3 mg... and the doctor says I absorb only about 10% of that I really am not worried about taking it for the rest of my life if I have to.
The diet that seemed to work was very restrictive and when we evacuated for the hurricane several years ago I found it very difficult to stick to the diet.. ate almost nothing and still had to wear diapers. I wanted my life back and without diapers.. so took the "easy way" with the entocort.
Since I am 65 and not 25 I really am not worried about long term effects of entocort. I have a friend whose doctor absolutely will not prescribe entocort and instead uses large doses of prednisone when she has an episode of CC. The last I heard it works for 6 mos or so after the prednisone regimine. I consider prednisone way more dangerous than the entocort since a doctor prescribed overdose of prednisone for a back problem landed me in the hospital with heart problems.
grannyh
Yes, if they find anything wrong using the camera they have to do the scope to pinpoint the area that needs attention/surgery.
Since I only take one pill a day now.. and it is 3 mg... and the doctor says I absorb only about 10% of that I really am not worried about taking it for the rest of my life if I have to.
The diet that seemed to work was very restrictive and when we evacuated for the hurricane several years ago I found it very difficult to stick to the diet.. ate almost nothing and still had to wear diapers. I wanted my life back and without diapers.. so took the "easy way" with the entocort.
Since I am 65 and not 25 I really am not worried about long term effects of entocort. I have a friend whose doctor absolutely will not prescribe entocort and instead uses large doses of prednisone when she has an episode of CC. The last I heard it works for 6 mos or so after the prednisone regimine. I consider prednisone way more dangerous than the entocort since a doctor prescribed overdose of prednisone for a back problem landed me in the hospital with heart problems.
grannyh