Visit the Microscopic Colitis Foundation Website
Yesterday was the first day since November 21st that I woke up and didn't have the dominant hives.
But after last night I now really think this is food related.
Up until dinner time, say about 6pm, I noticed very few hives.
I had a chicken breast/w garlic powder, salt/pepper, sweet potato/w earth balance butter, a little brown sugar & cinnamon, and green beans. Plus a glass of hempseed chocolate milk.
About 8pm I ate a few homemade GF crackers.
A little later I ate some cut up watermelon & cantelope.
Then a Lara Bar/w pistachios, cashews, dates.
Around 10pm I noticed the hives coming out and the right side of my upper lip had started swelling. SIGH!
There is one thing that happened when the hives first started back in November that I do remember, but it had subsided after about a week, up until yesterday, and that was that feeling that I thought was indigestion. Yesterday morning I had it after eating breakfast, which was a first. Because normally I was experiencing it after I ate dinner. I had it after I ate dinner last night, too. Actually, about an hour and a half after. It seems that at times, I'll get that feeling, only to look and have the hives coming out in full force.
I have been using earth balance for a long time, with no reaction, and it does contain soy, plus recently they have added annatto. (soy or a food additive?????)
Same with nuts, I have been occasionally eating things with nuts. (nuts???)
I haven't had melon since summer (melon????)
To say the least, I am frustrated!!
I guess I'll try to be patient and do an elimination and hope I figure this out before Christmas and my trip to Florida the 1st of the year.
Love
Dee~~
This is getting realllllllly frustrating!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
This is getting realllllllly frustrating!
"What the heart gives away is never gone ... It is kept in the hearts of others."
Annato
Hi Dee,
Annato...that's that seed that is used in Mexican and I just read also in Caribbean (sp) food that gives, say rice, that yellowish color. It grows on the annato tree.
I'm concerned that you're having your lips swelling like that. Is this a fairly immediate reaction after eating something...ya think? If so, the next time could be more serious as it seems it's an IgE mediated reaction, unlike the ones we have with our M.C. which are IgA or more slow reactions which are not immediately life threatening. I would be suspicious of tree nuts also with the IgE type reactions, so be very careful. You might even think about having an allergist test you, but remember, these types of allergies can come and go, but at least they are specific for one thing, so you can narrow it down a little more. The bars with more than one thing in them will make it more difficult to narrow down to one thing, unfortunately. I can understand your frustration with a trip coming up, and the need for lots of "back-up" food to take along with you. Bummer, that's for certain!
Yours, Luce
Annato...that's that seed that is used in Mexican and I just read also in Caribbean (sp) food that gives, say rice, that yellowish color. It grows on the annato tree.
I'm concerned that you're having your lips swelling like that. Is this a fairly immediate reaction after eating something...ya think? If so, the next time could be more serious as it seems it's an IgE mediated reaction, unlike the ones we have with our M.C. which are IgA or more slow reactions which are not immediately life threatening. I would be suspicious of tree nuts also with the IgE type reactions, so be very careful. You might even think about having an allergist test you, but remember, these types of allergies can come and go, but at least they are specific for one thing, so you can narrow it down a little more. The bars with more than one thing in them will make it more difficult to narrow down to one thing, unfortunately. I can understand your frustration with a trip coming up, and the need for lots of "back-up" food to take along with you. Bummer, that's for certain!
Yours, Luce
Luce,
Thanks for your concern & input.
Initially, back on November 21st, I woke up in the morning and noticed that my top lip was swollen.
That is what made me then check my body and I noticed the hives.
Last night was the 2nd episode with the lip since November, and the hives were very pronounced.
My concern is anaphylaxis at some point.
Dee~~~
Thanks for your concern & input.
Initially, back on November 21st, I woke up in the morning and noticed that my top lip was swollen.
That is what made me then check my body and I noticed the hives.
Last night was the 2nd episode with the lip since November, and the hives were very pronounced.
My concern is anaphylaxis at some point.
Dee~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Dee,
I had a patient this morning (I am a dental hygienist - I'm home for lunch) that told me about her hives this fall. They finally figured out it was her Glucosamine Condroitin pills, the additives in the pills, giving her the hives. She said she had to go on antibiotics to clear it up. Go figure! So it could be anything! The elimination diet is a good idea. So sorry you are having to go through this particularly this time of year.
Pat
I had a patient this morning (I am a dental hygienist - I'm home for lunch) that told me about her hives this fall. They finally figured out it was her Glucosamine Condroitin pills, the additives in the pills, giving her the hives. She said she had to go on antibiotics to clear it up. Go figure! So it could be anything! The elimination diet is a good idea. So sorry you are having to go through this particularly this time of year.
Pat
Dee,
I believe that Luce and Pat are on the right track. IOW, this is an allergy, not an intolerance, (which I believe we've discussed before), and I agree that it could/will probably eventually result in more pronounced anaphylactic effects. According to your gene test results, one of your genes is HLA-DQB1*0301. That gene is associated with grass pollen allergy, and wheat, of course, is a member of the grass family. But more than that, theoretically, at least, the possibility exists that your hives could possibly result from skin contact with any member of the grass family. Unfortunately, virtually all of the common cereal grains are members of the grass family, including wheat, barley, oats, rice, corn, and sorghum, (in addition to forage grasses, ornamental grasses, etc.).
http://www3.interscience.wiley.com/jour ... 1&SRETRY=0
As Luce suggests, it might not be a bad idea to see if you show a positive result to skin tests of various grass family plant parts that you commonly come in contact with. I'm not suggesting that you're allergic to all of them, just that all of them should be candidates under suspicion.
Since the tree nuts were the last thing that you came into contact with prior to your lip swelling, I would be highly suspicious of either pistachios or cashews. Didn't you have an adverse reaction to cheese made from cashews a few months ago, or am I barking up the wrong tree?
Love,
Tex
I believe that Luce and Pat are on the right track. IOW, this is an allergy, not an intolerance, (which I believe we've discussed before), and I agree that it could/will probably eventually result in more pronounced anaphylactic effects. According to your gene test results, one of your genes is HLA-DQB1*0301. That gene is associated with grass pollen allergy, and wheat, of course, is a member of the grass family. But more than that, theoretically, at least, the possibility exists that your hives could possibly result from skin contact with any member of the grass family. Unfortunately, virtually all of the common cereal grains are members of the grass family, including wheat, barley, oats, rice, corn, and sorghum, (in addition to forage grasses, ornamental grasses, etc.).
http://www3.interscience.wiley.com/jour ... 1&SRETRY=0
As Luce suggests, it might not be a bad idea to see if you show a positive result to skin tests of various grass family plant parts that you commonly come in contact with. I'm not suggesting that you're allergic to all of them, just that all of them should be candidates under suspicion.
Since the tree nuts were the last thing that you came into contact with prior to your lip swelling, I would be highly suspicious of either pistachios or cashews. Didn't you have an adverse reaction to cheese made from cashews a few months ago, or am I barking up the wrong tree?
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes Tex,
I was the one that reacted to the cashew cheese.
Nothing relating to the skin, but it gave me the D and baboon butt..
So, up unto last night I haven't eaten anything with cashews.
I should have checked out the Lara Bar more closely instead of thinking that, okay, this one just has pistachios and dates. No problem!! So, I'm not going to ingest any nut at this point.
Darn! I love my nut butters. Smucker's All Natural and sunflower seed butter.
Unless I hear other wise from my PCP, she wants me to take the Medrol pack & I think her office is also precribing the Epi pen.
Temporary fix, but not solving the problem causing the hives & at times the swollen lip.
Love
Dee~~
I was the one that reacted to the cashew cheese.
Nothing relating to the skin, but it gave me the D and baboon butt..
So, up unto last night I haven't eaten anything with cashews.
I should have checked out the Lara Bar more closely instead of thinking that, okay, this one just has pistachios and dates. No problem!! So, I'm not going to ingest any nut at this point.
Darn! I love my nut butters. Smucker's All Natural and sunflower seed butter.
Unless I hear other wise from my PCP, she wants me to take the Medrol pack & I think her office is also precribing the Epi pen.
Temporary fix, but not solving the problem causing the hives & at times the swollen lip.
Love
Dee~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Dee,
If it turns out that certain tree nuts are causing the problem, that doesn't mean that peanuts would be a problem. Many people who are allergic to tree nuts are not sensitive to peanuts. Also, the sunflower is a broadleaf weed, so it shouldn't necessarily be a problem, either.
Love,
Tex
If it turns out that certain tree nuts are causing the problem, that doesn't mean that peanuts would be a problem. Many people who are allergic to tree nuts are not sensitive to peanuts. Also, the sunflower is a broadleaf weed, so it shouldn't necessarily be a problem, either.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
DEE---just a random thought-----could U have been bitten by something???
I know a gal that has serious allergies to *peanuts* or anything touched one--she uses an epi pen-----
sorry to read of your issues which surely cant be very pleasant--
take care---hope U can get this under control--
luve Barbara
I know a gal that has serious allergies to *peanuts* or anything touched one--she uses an epi pen-----
sorry to read of your issues which surely cant be very pleasant--
take care---hope U can get this under control--
luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Thanks to all of you for your concern!
I took my first dose (6 tabs) of Medrol last night before bed.
Got up this morning, no hives.
This really has me baffled.
Haven't had time to research as to how long the Medrol stays in one's system.
And when stopped after the 6th day, if my symptoms are going to come back in full force.
SIGH!!! I hate it when something puts a cramp in my style!!
Love
Dee~~~
I took my first dose (6 tabs) of Medrol last night before bed.
Got up this morning, no hives.
This really has me baffled.
Haven't had time to research as to how long the Medrol stays in one's system.
And when stopped after the 6th day, if my symptoms are going to come back in full force.
SIGH!!! I hate it when something puts a cramp in my style!!
Love
Dee~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Dee,
It will probably last at least a few days after it's discontinued. I couldn't find any specific information on how persistent it might be, but since that's a form of prednisolone, it should perform pretty much the same as Prednisone, I would assume. Persistence will depend on the dose, of course, also.
Looks like it worked quickly, at least.
Love,
Tex
It will probably last at least a few days after it's discontinued. I couldn't find any specific information on how persistent it might be, but since that's a form of prednisolone, it should perform pretty much the same as Prednisone, I would assume. Persistence will depend on the dose, of course, also.
Looks like it worked quickly, at least.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Dee,
Your doc prescribing the Epi-pen makes me think she's concerned about the anaphalaxis possibility as well.
By the way, did you happen to be eating the cashews very frequently right before the first episode? I know of an older gentlemen who never had a problem with shrimp until he attended a shrimp boil one day, and had a serious IgE reaction. (At a shrimp boil, one usually eats more than one would ordinarily eat of shrimp.) From that day on, he never ate the stuff again.
I'll be interested to know how long before you reach the "stop date" on your Epi-pen from the time that you receive it. Just curious as to how often it will need to be replaced.
Take care of yourself!
Yours, Luce
Your doc prescribing the Epi-pen makes me think she's concerned about the anaphalaxis possibility as well.
By the way, did you happen to be eating the cashews very frequently right before the first episode? I know of an older gentlemen who never had a problem with shrimp until he attended a shrimp boil one day, and had a serious IgE reaction. (At a shrimp boil, one usually eats more than one would ordinarily eat of shrimp.) From that day on, he never ate the stuff again.
I'll be interested to know how long before you reach the "stop date" on your Epi-pen from the time that you receive it. Just curious as to how often it will need to be replaced.
Take care of yourself!
Yours, Luce
Luce,
To be honest with you I don't eat cashews.
This last episode with the Lara Bar that had pistachios & cashews is the first that I had anything with cashews since I did the cashew cheese experiment. That was way before November came around. The only reaction I had then was the D, nothing related to the skin.
As far as the Epi-pen I asked that it be prescribed just in case I would need it.
This really is a stumper because I had no hives yesterday during the day. When I went to get my shower last night I noticed some on my lower abdomen & hips.
What's really odd is, when I get that feeling of what feels like I have a golf ball stuck behind my breastbone, that Tex thought maybe it was from not producing enough acid in the stomach, I also seem to get a breakout of the hives.. I don't have any burning or acid reflex.
I know I can be a hard nut to crack at times!!!!!!!
Dee~~
To be honest with you I don't eat cashews.
This last episode with the Lara Bar that had pistachios & cashews is the first that I had anything with cashews since I did the cashew cheese experiment. That was way before November came around. The only reaction I had then was the D, nothing related to the skin.
As far as the Epi-pen I asked that it be prescribed just in case I would need it.
This really is a stumper because I had no hives yesterday during the day. When I went to get my shower last night I noticed some on my lower abdomen & hips.
What's really odd is, when I get that feeling of what feels like I have a golf ball stuck behind my breastbone, that Tex thought maybe it was from not producing enough acid in the stomach, I also seem to get a breakout of the hives.. I don't have any burning or acid reflex.
I know I can be a hard nut to crack at times!!!!!!!
Dee~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
If it were the "olden days", I could have sent you to Cleveland to see my Dad. He was great with the allergy puzzlers............
(Oops, I just started tearing up.)
Hope you figure it all out very soon.
I would rather have hives for MC instead of D.......lol
(Oops, I just started tearing up.)
Hope you figure it all out very soon.
I would rather have hives for MC instead of D.......lol
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan