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Ren
Just a curious question
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Just a curious question
Does anyone have joint pains, mouth ulcers, dry skin, uvitis and pains in there left side and nausia all the time?
Ren
Ren
Hi Ren,
I had all of those symptoms back before I adopted the diet and my gut had time to heal. The uvitis was never very serious in my case, and only showed up now and then. The nausea also was only present part of the time. Usually, it would only last for a few days, and then I would get a break for a few days to maybe a week, before it started again.
All of those symptoms are somewhat common with inflammatory bowel diseases.
Tex
I had all of those symptoms back before I adopted the diet and my gut had time to heal. The uvitis was never very serious in my case, and only showed up now and then. The nausea also was only present part of the time. Usually, it would only last for a few days, and then I would get a break for a few days to maybe a week, before it started again.
All of those symptoms are somewhat common with inflammatory bowel diseases.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Ren,
Joint and everything else pain got to unbearable levels toward the end, but the diet really helped that alot, and quickly! Now, all I have is from when I do something to damage something (like swim too hard, for example) and feeling the weather change occasionally, but it's not limiting at all like before.
My skin got very dry, possibly from dehydration from the diarrhea I had back then. Also, my thyroid was probably going from one extreme to the other before it went kapuz about the same time as the M.C. finally got diagnosed, so at times, I'm sure that contributed.
The left sided pain is pretty common, if I'm not mistaken. Also, it's possible that all the inflammation aggrevates the diverticuli that so many of us have in that area, or so it seems. The GI doc sure knew where to poke to find that, so it must be a common thing. I jumped when he did that.
Mouth ulcers are common with this and celiac disease, but I'm not sure how common it is with the other autoimmune conditions. (I had LOTS of stingy pain on the edges of my tongue, by the way. I've forgotten now what causes that -- maybe a vitamin deficiency from the malabsorption.)
I may have had a little nausea, especially when the diarrhea was running out, but that wasn't the worst of it for me. I think that I may be the exception on that one, however.
Should've made a list of all the symptoms. Most were probably on the old board that apparently no longer exists. It's been so long now that I have a hard time remembering all that. I was surprised to discover the things I never knew were even related to the M.C. until they never came back -- migraines were the big one -- eventually almost constant! (Exception if I eat things with nitrates/nitrites or any MSG, etc.)
Hopefully some others will come along and list their symptoms. I don't think yours are unique by any means.
Yours, Luce
Joint and everything else pain got to unbearable levels toward the end, but the diet really helped that alot, and quickly! Now, all I have is from when I do something to damage something (like swim too hard, for example) and feeling the weather change occasionally, but it's not limiting at all like before.
My skin got very dry, possibly from dehydration from the diarrhea I had back then. Also, my thyroid was probably going from one extreme to the other before it went kapuz about the same time as the M.C. finally got diagnosed, so at times, I'm sure that contributed.
The left sided pain is pretty common, if I'm not mistaken. Also, it's possible that all the inflammation aggrevates the diverticuli that so many of us have in that area, or so it seems. The GI doc sure knew where to poke to find that, so it must be a common thing. I jumped when he did that.
Mouth ulcers are common with this and celiac disease, but I'm not sure how common it is with the other autoimmune conditions. (I had LOTS of stingy pain on the edges of my tongue, by the way. I've forgotten now what causes that -- maybe a vitamin deficiency from the malabsorption.)
I may have had a little nausea, especially when the diarrhea was running out, but that wasn't the worst of it for me. I think that I may be the exception on that one, however.
Should've made a list of all the symptoms. Most were probably on the old board that apparently no longer exists. It's been so long now that I have a hard time remembering all that. I was surprised to discover the things I never knew were even related to the M.C. until they never came back -- migraines were the big one -- eventually almost constant! (Exception if I eat things with nitrates/nitrites or any MSG, etc.)
Hopefully some others will come along and list their symptoms. I don't think yours are unique by any means.
Yours, Luce
By the way, do you mean "uveitis"? That's the eye problem that goes along with autoimmune conditions, some of which are pretty serious -- like M.S., for example. That's why I thought I'd ask if that's what you meant. I really questioned my opthalmologist about any signs of autoimmune problems showing up in my eyes, and now, I'm convinced there aren't any. Cataracts, yes, but then that's probably not unusual for my age, and oh yes, dryness (but no dry mouth, so I assume no Sjogrens!).
I remember when I first joined the old site, that a number of people noticed what felt like tight bands around their abdomen's. I had that, but it was a long, long time before anyone came along there asking if any one had experienced those same tight bands around their chest area. That one's a bit scary as I've read that it occurs more in people with M.S. Perhaps there's just an overlap with gluten sensitive illnesses. At least I don't seem to have M.S.-like problems now, thankfully. I suppose the feeling around the abdomen is more typical.
I definitely had that awful tight feeling in my neck. I'd always assumed it was the undetected growing goiter that was about to become visually obvious. I don't remember having it right after the thyroid surgery, but then, there was lots more room in my neck after that! Ha! The thyroid was removed in Sept 2002 and the M.C. diagnosed following biopsies of the colon in Nov. of the same year. I didn't go GF until November of the following year. I generally felt awful that year -- the condition just peaked! Not sure I can remember whether that neck issue continued during that year, to tell you the truth, but my hunch is it wasn't so much an issue after that. Perhaps I was just too sick by then to keep track.
Have you had your doc examine your neck for an "early" goiter. Sometimes they can reduce them with medication, and after mine was already out, I've read on this or the other site, that some people have actually been able to reduce their thyroid med under their doc's supervision, of course, after going gf. At any rate, if you can save your thyroid by just popping an inexpensive pill that's ordered for you, it's well worth it, so why not have that checked out if you've not already told him/her about that feeling in your neck. Sometimes we notice so many things when we're acutely ill with this stuff, that we can't remember to mention it all, and then, sometimes I think we're afraid of being thought of as a hypocondriac. If we were, we'd certainly love this condition, wouldn't we? Ha!!
Yours, Luce
I remember when I first joined the old site, that a number of people noticed what felt like tight bands around their abdomen's. I had that, but it was a long, long time before anyone came along there asking if any one had experienced those same tight bands around their chest area. That one's a bit scary as I've read that it occurs more in people with M.S. Perhaps there's just an overlap with gluten sensitive illnesses. At least I don't seem to have M.S.-like problems now, thankfully. I suppose the feeling around the abdomen is more typical.
I definitely had that awful tight feeling in my neck. I'd always assumed it was the undetected growing goiter that was about to become visually obvious. I don't remember having it right after the thyroid surgery, but then, there was lots more room in my neck after that! Ha! The thyroid was removed in Sept 2002 and the M.C. diagnosed following biopsies of the colon in Nov. of the same year. I didn't go GF until November of the following year. I generally felt awful that year -- the condition just peaked! Not sure I can remember whether that neck issue continued during that year, to tell you the truth, but my hunch is it wasn't so much an issue after that. Perhaps I was just too sick by then to keep track.
Have you had your doc examine your neck for an "early" goiter. Sometimes they can reduce them with medication, and after mine was already out, I've read on this or the other site, that some people have actually been able to reduce their thyroid med under their doc's supervision, of course, after going gf. At any rate, if you can save your thyroid by just popping an inexpensive pill that's ordered for you, it's well worth it, so why not have that checked out if you've not already told him/her about that feeling in your neck. Sometimes we notice so many things when we're acutely ill with this stuff, that we can't remember to mention it all, and then, sometimes I think we're afraid of being thought of as a hypocondriac. If we were, we'd certainly love this condition, wouldn't we? Ha!!
Yours, Luce
spending a fortune on supplements and mouthwash.. :roll:i feel better with my joints when i take calcium with vit d though..
I had pain in my lower left and it was what prompted me to get my first colonoscopy. It turned out to diverticulosis just as a friend had predicted. I also had been having D. That was in Feb. In June, I had a sigmoidoscopy with biopsies which diagnosed my LC.
I had such bad nausea one day that I went to the "doc in a box". I later found online that it was a symptom of MC.
I had such bad nausea one day that I went to the "doc in a box". I later found online that it was a symptom of MC.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
I have had gluten testing many times..all negative also the stool test for it.. I cannot have anything from the cow.I have been tested for many things all negative so far..I have been going to the ER for dehydration about every two weeks. The uveitis rears its ugly head every now and again but when it does I cannot see and light sensitive. The nausia is a constant thing .. i wonder whats wrong if i dont have it lol..i think maybe i could be haveing a little bit of side effects from the entocort but who knows
Ren;
I am a bit like Dee in that I did not have as many of the other symptoms some mention. The gas, bloating and abdominal pain were terrible, but no other symptoms.
However, I want to add that any test I am aware of (outside of Enterolabs) for gluten sensitivity may not by accurate. My dr insisted he had tested me and I did not need the GF diet, but that is what took away my symptoms 6 years ago and they have only returned once with no known reason. I would say that, even if you test negative, try using the diet if your "gut" (pun intended) tells you to. It can't hurt to try, and you may be surprised!
G'ma Mary
I am a bit like Dee in that I did not have as many of the other symptoms some mention. The gas, bloating and abdominal pain were terrible, but no other symptoms.
However, I want to add that any test I am aware of (outside of Enterolabs) for gluten sensitivity may not by accurate. My dr insisted he had tested me and I did not need the GF diet, but that is what took away my symptoms 6 years ago and they have only returned once with no known reason. I would say that, even if you test negative, try using the diet if your "gut" (pun intended) tells you to. It can't hurt to try, and you may be surprised!
G'ma Mary
Those who are not part of the solution, are part of the problem.