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Hi everyone, I just got my enterolab results and wonder how they compare to you.
Fecal Anti-gliadin IgA 209 units (Normal <10)
Fecal Anti-tissue Transglutaminase IgA 141 units (Normal <10)
Quantitative Microscopic Fecal Fat <300 (Normal <300)
Fecal Anti-casein (cow's milk)Iga 115 units (Normal <10)
HLA-DQB1 Molecular analysis, Allele 1 0202
HLA-DQB1 Molecular analysis Allele 2 0602
Serologic equivalent HLA-DQ 2,1 (Subtype 2,6)
Well, I'm definitely gluten sensitive and milk sensitive. (sort of figured that out after finding you guys) Wish I would have known this a long time ago. I just ordered the soy, egg, and something else test. It's kind of shocking to see the numbers. All your advice and help has helped me that past two weeks as I've returned to teaching. Just wish I had some more energy. JoAnn
Got My EnteroLab Results
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi JoAnn!!
The energy will return once you are on the GF diet for a while. It is one of the major complaints along with headches, muscle & joint pain that seem to eventually go away after being GF.
I'll let Tex help you out with your test results since he is so experienced in deciphering them..
Love
Dee~~~
The energy will return once you are on the GF diet for a while. It is one of the major complaints along with headches, muscle & joint pain that seem to eventually go away after being GF.
I'll let Tex help you out with your test results since he is so experienced in deciphering them..
Love
Dee~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Hi Joann,
Your results are much the same as my sisters and mine, only we had more fecal fat. Perhaps you weren't eating as much fat to begin with. Could that account for that. Otherwise, we would have to assume that you don't yet have that much damage, but assuming the anti-ttg is correct, then maybe more damage was in your future.
Just a suggestion, but if you are still eating the other allergens that you sent your 2nd specimen in to be tested for antibodies, and are still having symptoms, you COULD go ahead and remove those one at a time while you are awaiting your test results. That way, you'll have a pretty good idea what those results will be by the time you get them back.
I don't know many people from here with the same genotype that my sister and I have for these HLA genes, but think ours are the same as yours. It will be interesting if you turn out to have the exact same "allergies" (I use the term loosely as it's probably more common to call them "sensitivities").
Anyway, the only other person I've met with our same genotype, turned out to have the exact same group of foods she tested sensitive for and has obvious reactions to, as well. She's not been around here lately that I know of, but she lives/d in Boston and is a nurse practitioner. There are so many people on this site who don't even have the HLA-CD 2 gene like we have one of in our pair, that it's interesting to see someone else with it. I didn't test the usual way for celiac disease, but my guess is that as long as I'd been sick, and with the excess fecal fat, anti-ttg, and multitude of symptoms, that I just might've tested positive for celiac disease the usual way. With your normal fecal fat score, maybe you weren't that far along when tested by Enterolab, thankfully, but this is just a guess on my part.
I can realllllly identify with your statement about the fatigue. I was so relieved right at first to have such dramatic relief from sooo many severely limiting and painful symptoms that the leftover fatigue at that point was disappointing as it was one of the most limiting of all my symptoms. You know how we can learn to work through pain over the long haul, but fatigue's another animal all together!
Anyway, I posted my frustration on line to all the people in our original group, and they told me the fatigue would also get better in time. Sooo..I forgot about it, and then one day, about 6 months later, I just realized that I didn't have it anymore. Now I just feel my age -- that kind of tired! Ha!
Just be confident that if you are doing the things that get rid of your other symptoms, that your fatigue may just be much more gradual in going away.
Hope this will give you a little encouragement.
Yours, Luce
Your results are much the same as my sisters and mine, only we had more fecal fat. Perhaps you weren't eating as much fat to begin with. Could that account for that. Otherwise, we would have to assume that you don't yet have that much damage, but assuming the anti-ttg is correct, then maybe more damage was in your future.
Just a suggestion, but if you are still eating the other allergens that you sent your 2nd specimen in to be tested for antibodies, and are still having symptoms, you COULD go ahead and remove those one at a time while you are awaiting your test results. That way, you'll have a pretty good idea what those results will be by the time you get them back.
I don't know many people from here with the same genotype that my sister and I have for these HLA genes, but think ours are the same as yours. It will be interesting if you turn out to have the exact same "allergies" (I use the term loosely as it's probably more common to call them "sensitivities").
Anyway, the only other person I've met with our same genotype, turned out to have the exact same group of foods she tested sensitive for and has obvious reactions to, as well. She's not been around here lately that I know of, but she lives/d in Boston and is a nurse practitioner. There are so many people on this site who don't even have the HLA-CD 2 gene like we have one of in our pair, that it's interesting to see someone else with it. I didn't test the usual way for celiac disease, but my guess is that as long as I'd been sick, and with the excess fecal fat, anti-ttg, and multitude of symptoms, that I just might've tested positive for celiac disease the usual way. With your normal fecal fat score, maybe you weren't that far along when tested by Enterolab, thankfully, but this is just a guess on my part.
I can realllllly identify with your statement about the fatigue. I was so relieved right at first to have such dramatic relief from sooo many severely limiting and painful symptoms that the leftover fatigue at that point was disappointing as it was one of the most limiting of all my symptoms. You know how we can learn to work through pain over the long haul, but fatigue's another animal all together!
Anyway, I posted my frustration on line to all the people in our original group, and they told me the fatigue would also get better in time. Sooo..I forgot about it, and then one day, about 6 months later, I just realized that I didn't have it anymore. Now I just feel my age -- that kind of tired! Ha!
Just be confident that if you are doing the things that get rid of your other symptoms, that your fatigue may just be much more gradual in going away.
Hope this will give you a little encouragement.
Yours, Luce
Hi Luce, I guess we're kindred spirits! Thanks for explaining the information. I went on the entorolab site to try to figure out what the Anti-tissue transgluaminase Iga means. I'm not sure I understand what that is. When I ordered the soy,yeast,&egg test, they called me and said they could use the first sample I sent in. 
I'll let you know how that turns out. I've been eating eggs. Did they tell you specifically that it was just the egg whites? Also, thanks for mentioning the fatigue. Just hearing pros like you say it will get better helps me feel better. I've had a cold the past few weeks which I think has also drained me. Thanks again for the info. JoAnn
I'll let you know how that turns out. I've been eating eggs. Did they tell you specifically that it was just the egg whites? Also, thanks for mentioning the fatigue. Just hearing pros like you say it will get better helps me feel better. I've had a cold the past few weeks which I think has also drained me. Thanks again for the info. JoAnn
I had some pretty bad fatigue and had no idea why. My thyroid tests were fine. I remember complaining to my doc on several visits. Then I read MC was the culprit. I still am tired but not as much. Of course, I am old.
I think the longer you are GF the better you will feel. I hope your second test doesn't show any other sensitivities. Yeast is the other one.....
I think the longer you are GF the better you will feel. I hope your second test doesn't show any other sensitivities. Yeast is the other one.....
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Hi Joan, I blamed all my problems this past year on my thyroid, but now I realize that a lot of it was probably my mc. When you've got both of them going on it's hard to know what's doing what. I'm just glad it's not a year ago when I had so many bad symptoms and I hadn't been diagnosed yet with either. It's good to hear that the fatigue will improve which is another reason I need to sign off and get to bed 
Thanks for your help. JoAnn
Thanks for your help. JoAnn
Getting the Enterolab test results marks a milestone in conquering this disease. You've already eliminated gluten and have had definite improvement, which is another big milestone. Here's hoping that your other tests come back negative. If not, there are plany of us here who can help you.
Gloria
Gloria
You never know what you can do until you have to do it.
Hi JoAnn,
Wow! Except for the fecal fat score, (which is really a measurement of residual damage to the small intestine), all tests were positive, and very strongly so.
The egg antibody tests are designed to detect antibodies to the main protein in egg whites. There are other proteins in both the yolk, and the albumen, that are not tested for. The one tested for is the one that is most likely to be a problem in patients who react to eggs. No tests are available for the other proteins.
It's no wonder that you are having difficulty wrapping your brain around the concept of anti-tissue transglutaminase antibodies, since that is a fairly complex issue. Everybody talks about it, (well, maybe not everybody, but a lot of people), but few really truly understand it, (including myself). Basically, the transglutaminases are a family of enzymes, and antibodies to the particular one targeted in this test, are found in patients with coeliac disease, (though they are sometimes found in other autoimmune diseases, such as juvenile diabetes, for example). Anti-tissue transglutaminase antibodies, (ATA), are involved in the destruction of the villious epithelial cells, (in the small intestine), by killer cells, created by the patient's immune system, and this, of course, constitutes the definition of celiac disease. IOW, this defines an autoimmune reaction, due to the ingestion of gluten. What your test result for this item suggests, then, is that you have the same type of damage that someone with celiac sprue, would display, implying that if you were to continue to ingest gluten, you might possibly eventually meet the criteria for a diagnosis of celiac sprue some day, but that possibility is pretty remote, since you do not have a celiac gene.
You can see how the rest of us tested here, (that is, those of us who have been tested):
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=2645
I hope you don't mind - I added your results to this list, also. If you would rather that I didn't, just say the word, and I will remove your data from the list.
Incidentally, I believe that Luce may have misread your gene test results. They appear to be similar, but she has a celiac gene, while you do not.
Thanks for posting that information. It's always interesting to see how we compare on these test results.
Tex
Wow! Except for the fecal fat score, (which is really a measurement of residual damage to the small intestine), all tests were positive, and very strongly so.
The egg antibody tests are designed to detect antibodies to the main protein in egg whites. There are other proteins in both the yolk, and the albumen, that are not tested for. The one tested for is the one that is most likely to be a problem in patients who react to eggs. No tests are available for the other proteins.
It's no wonder that you are having difficulty wrapping your brain around the concept of anti-tissue transglutaminase antibodies, since that is a fairly complex issue. Everybody talks about it, (well, maybe not everybody, but a lot of people), but few really truly understand it, (including myself). Basically, the transglutaminases are a family of enzymes, and antibodies to the particular one targeted in this test, are found in patients with coeliac disease, (though they are sometimes found in other autoimmune diseases, such as juvenile diabetes, for example). Anti-tissue transglutaminase antibodies, (ATA), are involved in the destruction of the villious epithelial cells, (in the small intestine), by killer cells, created by the patient's immune system, and this, of course, constitutes the definition of celiac disease. IOW, this defines an autoimmune reaction, due to the ingestion of gluten. What your test result for this item suggests, then, is that you have the same type of damage that someone with celiac sprue, would display, implying that if you were to continue to ingest gluten, you might possibly eventually meet the criteria for a diagnosis of celiac sprue some day, but that possibility is pretty remote, since you do not have a celiac gene.
You can see how the rest of us tested here, (that is, those of us who have been tested):
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=2645
I hope you don't mind - I added your results to this list, also. If you would rather that I didn't, just say the word, and I will remove your data from the list.
Incidentally, I believe that Luce may have misread your gene test results. They appear to be similar, but she has a celiac gene, while you do not.
Thanks for posting that information. It's always interesting to see how we compare on these test results.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
JoAnn,
Glad it helped. Enterolab only tests for one of the egg white proteins. Whether I have any problems with any of the other proteins in them, guess I'll never know since I can't eat them anyway. I'm fairly certain that this protein was known to be a common sensitivity from research with IgA, prior to Dr. Fine's test development, but I've not really delved into that. It would make an interesting study, finding out how the ones he chose to test were chosen.
Yours, Luce
Glad it helped. Enterolab only tests for one of the egg white proteins. Whether I have any problems with any of the other proteins in them, guess I'll never know since I can't eat them anyway. I'm fairly certain that this protein was known to be a common sensitivity from research with IgA, prior to Dr. Fine's test development, but I've not really delved into that. It would make an interesting study, finding out how the ones he chose to test were chosen.
Yours, Luce