um, I found something new in my toilet today!--scared me

katbox · Post by **katbox** » Thu Jan 22, 2009 8:39 pm

Hi all,

I found some interesting looking things today. it sorta looked like white stuff with a little blood on it.

It happened a few times. wondering if anyone else had this when they were first on Entocort for MC.

I don't have an appt with GI until 2/6, so I'm a little worried what this could be. also, it was like I had to push.

sorry about the visual aid, but I've never seen this kind of tissue before. You guys seem like you've seen it all b4!

It feels like my insides are coming out. It's not a lot of stuff, just enuf to scare the crap out of me!

no D, just weird tissue looking. anyone?

thanks-kat

angy · Post by **angy** » Thu Jan 22, 2009 8:43 pm

katbox that sounds like mucus, crap from the intestines. very much related to mc. I get that quite a lot (if it is mucus) and especially more if im having a flare up. Sometimes i had long thin stringy mucus and i thought it was a worm. As gross as this sounds i inspect my deposits most of the time cos im curious and want to see whats going in and out...If your really concerned take a specimen and get it analysed it cant hurt...but im sure its mucus.
Are you having a flare?with the mc cos the blood might be pressure and strain on passing..

katbox · Post by **katbox** » Thu Jan 22, 2009 9:07 pm

Hi angy,

I am really new with this MC. diagnosed on 1/9 after colonoscopy on 1/7. I've only just been on Entocort since 1/10, and I'm still having D seems like every other day. this mucous thingy freaked me out!

I just starting yesterday am trying to limit gluten, but I'm thinking I may change that schedule to just do the entocort for a while and after I stop having "issues" to try to go gluten free.

Dee has been very helpful in getting me the recipes and such to start.

I think I will do a sample and bring it to my PHC dr. lab to see what's what.

also, that pushing and bearing down, it's like I'm almost constipated which is really weird!

anyway, thanks for the post. take care

angy · Post by **angy** » Thu Jan 22, 2009 9:37 pm

Kat,
sorry about the dx, it will get better with meds until your gut can get the chance to heal better.

sept 2007 i was struck down with a virus and had d for weeks. I lost 1 stone in weight and was off work for 2 months. During this time i was waiting for a colonoscopy. It took the NHS over here 8 months to give me a colonoscopy and i was ill during the onset of being ill up until that time..

I went gluten free when i first got ill because it was at that time i knew that everytime i ate bread n stuff it made my stomach bloat and ache. I couldnt keep anything down and had serious stomach cramps and bloating. I thought that i had stomach cancer it was that bad.

Finally i got a colonoscopy in june last year and expected my results to be celiac, in fact i was convinced. My celiac test was negative and i was dx with collangenous colitis. I was stunned cos i never knew about that bd and i researched mostly evrything under the sun.

I am definately gluten intolerant and thats without any confirmed doctors tests..i know my body better than any doc..

The Celiac test is for a full blown celiac and doesnt really identify someone with gluten intolerance...well not in my case anyway..

I got better quite quickly when i irradicated gluten from my diet..My gi doc wasnt even interested about the gluten issue because the test was negative..
I continued to take control of my diet until he prescribed me asacole 3000mg daily, then after 3 months he reduced it to 2000mg daily...
Now i have done experiments with this med...by not taking any for a couple of days and have discovered that i get my symptoms back...so start them again. this is solely to see if the med is working..

I am far from remission and i still have typical mc symptoms and there are days where my flares are really bad that my gut aches for days.

I see a lot of mucus , big chunks of tissue and i reckon this is the instestine ridding itself of crap..especially when theres a flare...yknow something u ate may have triggered this..or even just being stressed out will trigger a flare. I also get bouts of constipation too...

Also gluten free foods are one thing and foods that effect mc is another. Its like two seperate conditions. I can eat gluten free foods but may get a reaction to something in that food.eg>>tomato soup gf...gut reaction to tomato..with mc.
Im still experimenting but strictly dont eat gluten at all, or i know im going to be in bed for 2-3 days...

I have eaten gluten to test for reactions and everytime i get a reaction, so thats how i know for sure that im gluten intolerant...even though my gi doc doesnt read that like i do..

Kat u need to stick with the gf diet and the meds..meds wont control the symptoms alone...they merely help to heal the gut and prevent possible flare ups..stick to both...if the gluten is the trigger...

I know its really difficult adjusting to the food change but you will become acustomed to it...it takes time and it is frustrating..

Dee has got some great recipes...Im still trying some...but im lazy lol!!

So kat keep your chin up you will get there hun!!and you are part of this family and we are all here for you...

i wish you all the best of luck tc xx

katbox · Post by **katbox** » Thu Jan 22, 2009 9:52 pm

thanks angy,

whew, sounds like you've had quite the time of it. I think you're right, tho about adjusting diet (gf).

I am just so frustrated and impatient. I want all my symptoms to get out of town!

I hope I have good luck with the gi, I haven't met him yet. I'm getting so much more information here, that even if he doesn't give me anything usable, I'll still have this site.

I know my depression is getting bad, and this latest episode is really bumming me out! but I know that it just has to get better.

I thought the Entocort would work faster!

but I guess I need to be patient. It's only been not even 2 weeks.

being at work isn't helping. it is a very busy time for us, but I am grateful that my employers are pretty understanding of my situation. It's just that I had to take 8 weeks off in Aug/Sept for a surgery that I needed.

I don't know if you saw my previous posts concerning my twisted colon (during colonoscopy the tech said it was twisted and that's why it was so painful), but that is an issue that I'll need to investigate after I've healed some.

Also, I feel kinda like in a fog most days and wonder what's that all about?!! don't know if it's the meds or the MC or just me feeling like crap!

anyway, thanks for being so frank about your troubles, i really feel like we all have so much in common!

we should organize a motorcycle ride and meet everyone! it's funny MC = you know what and also MC = motorcycle! I'm a rider, so I'm hoping I'll be able to this summer. can't sit long with this problem tho!

you take care.

angy · Post by **angy** » Thu Jan 22, 2009 10:05 pm

Sorry to hear about your colon but hopefully it will sort itself out and the pain will eventually ease up. Thats certainly something to discuss with the gi doc on your appointment...And yes brain fog...thanks for bringing that up..

i get that a lot. I have good days and bad days..i hate when i forget something and dont know if im coming or going..almost feels like a mind melt at times.. ginseng chinese herb is good for that..but check its ok with your meds..

I just posted up a thread to Courtney about the depression problem and yes most mc sufferers experience this .sometimes bad sometimes mild..i certainly find myself in that black hole. When things get bad its important to take time out from your job...your health is more important so dont feel guilty about that...you have to look out for no 1..otherwise all else fails..

Heres the thread i posted if it helps..
http://www.perskyfarms.com/phpBB2/viewt ... 6d14#57892

hope you feel better soon hun!!

JLH · Post by **JLH** » Thu Jan 22, 2009 10:12 pm

I agree with Angy. Go GF and take your Entocort to get best results for yourself.

angy · Post by **angy** » Thu Jan 22, 2009 10:16 pm

forgot to mention...i was a biker, rock chic inthe 80,s...love triumph bonevilles(if thats how ya spell it lol) and will always love rock music...
Loved that speed thrill free feeling... :cool:

an mc mcer lol!!good name for a bike chapter.."The mcers"

Discomfort riding could be sorted with pads..

katbox · Post by **katbox** » Thu Jan 22, 2009 10:21 pm

thanks angy,

it's funny I was reading all the threads to/from courtney just as you sent this to me.

she/you were describing me right now. It feels so hopeless at times. I realize we need to keep on and be patient.

the foggyness is really more irritating than anything. it does feel good to vent feelings here as everyone understands. I hope courtney and all of us find relief where we can.

I too have a pretty good support system, but really unless you have this mc or related illnesses, can't really understand what we go thru. I'm very appreciative for this board. thank god for MC, LC and CC'ers!

I too wish everyone could get better soon. and stay better! ugh! so frustrating!

love, kat

angy · Post by **angy** » Thu Jan 22, 2009 10:23 pm

I think we all need a good party!!!
:party:

with loads of booze..

Post by **tex** » Fri Jan 23, 2009 12:36 am

Kat,

Some of us have alternating D and C, which, IMO, is better than continuous D, but obviously, neither one is much fun. Hemorrhoids are a rather common problem with MC, regards of whether we have D or C, and, of course, they can cause blood to show up in the stool. Other than that, though, MC itself does not cause blood in the stool. Anytime blood appears, and you're pretty sure it's not due to 'roids, C. diff should be suspected, especially if you are feeling very sick, with severe cramps.

The brain fog is definitely due to the MC, and after you achieve remission, it will be the last symptom to disappear, but it too finally goes away. If you start the diet now, and stick with it carefully, by summer, you should be able to ride all you want, without having to worry about where the next bathroom is located.

Tex

Gloria · Post by **Gloria** » Fri Jan 23, 2009 8:02 am

Hi Kat,

It took about 3 weeks for Entocort to finally stop the continuous D with me. It should start kicking in soon.

Gloria

starfire · Post by **starfire** » Fri Jan 23, 2009 9:04 am

Just my opinion, of course, but I'll bet the blood is from an internal hemorrhoid. I never had them until I started having D a lot.

Please believe you will be better eventually. You just have to keep trying to find the right way for you to control this disease. We are all so different but there is a way for you and I know you will find it.

:bigbighug:

Courtney · Post by **Courtney** » Fri Jan 23, 2009 10:44 am

Hi Kat,

The brain fog and depression are definitely part of MC for me, and I think for many others, too. Those are two things I'd like to lose maybe more than the D! It can be extremely frustrating. Hang in there.

Love,

Courtney

Liz · Post by **Liz** » Fri Jan 23, 2009 5:24 pm

Hello Kat,
The white stuff could be undigested dairy products. You may be lactose intolerant. I used to get something like that. The blood could be from piles or perhaps your skin could be irritated. Fresh red blood is usually die to something like that.

Liz