Visit the Microscopic Colitis Foundation Website
FYI IBD and Nutrition Webcast from my favorite (NOT) CFFA
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
FYI IBD and Nutrition Webcast from my favorite (NOT) CFFA
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Maybe try www.ccfa.org Hope it works........
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Do you happen to know how many of us are members of CCFA?
What does it take to be able to communicate online with some of the other members who may not have heard of MC? Maybe by posting comments to their website/s we could more easily make some of the newly diagnosed MC'rs aware that many of us are out here who've found something that makes us better.
It's difficult to ignore our numbers at this point in time.
Any ideas about how we might utilize this organization and get included in their publications and resources, etc.?
Yours, Luce
What does it take to be able to communicate online with some of the other members who may not have heard of MC? Maybe by posting comments to their website/s we could more easily make some of the newly diagnosed MC'rs aware that many of us are out here who've found something that makes us better.
It's difficult to ignore our numbers at this point in time.
Any ideas about how we might utilize this organization and get included in their publications and resources, etc.?
Yours, Luce
Luce,
To be honest, I don't believe that CCFA has any interest in trying to support MC. They don't spend one penny researching it, (at least they didn't the last time I looked), and the fact is, they don't even want to acknowledge that MC is an IBD. I suspect that trying to get recognition and/or help from CCFA is equivalent to
Tex
To be honest, I don't believe that CCFA has any interest in trying to support MC. They don't spend one penny researching it, (at least they didn't the last time I looked), and the fact is, they don't even want to acknowledge that MC is an IBD. I suspect that trying to get recognition and/or help from CCFA is equivalent to
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
They did have a speaker on MC at one of their conferences. One PP thought I was dissing the doctor who was speaking but she misunderstood my post. I was really unhappy with the CCFA for saying MC wasn't an IBD and all the time I had to spend fighting that VP.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan