Visit the Microscopic Colitis Foundation Website
http://www.ccfa.org/living/patientstories/lizroberts
I read her story at CCFA and emailed her to tell her about the PP.
I invited her to visit and join us.
She emailed me and told me about her book (in print and as an ebook) and her blogs. I haven't checked it all out, yet.........
Elizabeth Roberts from the CCFA web site
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Elizabeth Roberts from the CCFA web site
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Hi there,
It's interesting that she's an author. Maybe she'll discover how to go into continuous remission by reading about what we've learned about our disease, and write a book about "the end of the story." That's what we need is a popular author to publish her experience with going gf, etc., and maybe throw in the story of our group while she's at it! How's that sound to the group?
I'm sure she's thinking that she just has to accept this condition as it is.
I think she's going to be overjoyed when she realizes that there's a way to control this. I hope that she'll at least try the strict gf diet for starters, and then, go paleo til she's ok, then try adding the other foods back in one at a time to see if any of them bring back symptoms after a while. Stool testing would be quicker, but I realize that people are often caution about things that are sold on the internet, soo...
This is so exciting! And, just look at the organization that published the story thus far? Isn't that great! I'll be awaiting her follow up to that, won't you?
I'm eager to read her first post!
Yours, Luce
It's interesting that she's an author. Maybe she'll discover how to go into continuous remission by reading about what we've learned about our disease, and write a book about "the end of the story." That's what we need is a popular author to publish her experience with going gf, etc., and maybe throw in the story of our group while she's at it! How's that sound to the group?
I'm sure she's thinking that she just has to accept this condition as it is.
I think she's going to be overjoyed when she realizes that there's a way to control this. I hope that she'll at least try the strict gf diet for starters, and then, go paleo til she's ok, then try adding the other foods back in one at a time to see if any of them bring back symptoms after a while. Stool testing would be quicker, but I realize that people are often caution about things that are sold on the internet, soo...
This is so exciting! And, just look at the organization that published the story thus far? Isn't that great! I'll be awaiting her follow up to that, won't you?
I'm eager to read her first post!
Yours, Luce
Hey all
Hate to rain on anyone's parade but Elizabeth joined the old board very briefly. She did not believe the Gluten Free diet was worth pursuing and did not hang around long. Along with some other dietary ideas she did not agree with. Seemed kind of sad that she was so negative about what so many here found to be true .
I wish her the best. We all do eventually find our own way.
Matthew
Hate to rain on anyone's parade but Elizabeth joined the old board very briefly. She did not believe the Gluten Free diet was worth pursuing and did not hang around long. Along with some other dietary ideas she did not agree with. Seemed kind of sad that she was so negative about what so many here found to be true .
I wish her the best. We all do eventually find our own way.
Matthew
Hey Matthew,
I think you're right. The name and circumstances sounded familiar, but I wasn't sure enough to bring it up. Since you had the same perception, though, I'll bet it was indeed the same individual.
I know it's not good etiquette to make generalizations, but we've had a fair number of writers to join, over the years, and none of them seem to stick around long. I have a hunch that the reason for that is because a good writer knows the outcome of the story before the first word is ever written. Isn't that correct? Also, as a group, they are probably more regimented than most of us, since they have to turn out a certain volume of literary work most days, and that would imply following the rules, etc., IOW, they would be more inclined to believe a doctor, (simply because the medical version is the "official" version), over what they might hear from the likes of us. That implies that this story will probably never be written, by someone with any credibility.
Thanks for jogging my memory.
Tex
I think you're right. The name and circumstances sounded familiar, but I wasn't sure enough to bring it up. Since you had the same perception, though, I'll bet it was indeed the same individual.
I know it's not good etiquette to make generalizations, but we've had a fair number of writers to join, over the years, and none of them seem to stick around long. I have a hunch that the reason for that is because a good writer knows the outcome of the story before the first word is ever written. Isn't that correct? Also, as a group, they are probably more regimented than most of us, since they have to turn out a certain volume of literary work most days, and that would imply following the rules, etc., IOW, they would be more inclined to believe a doctor, (simply because the medical version is the "official" version), over what they might hear from the likes of us. That implies that this story will probably never be written, by someone with any credibility.
Thanks for jogging my memory.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi All,
I remember her too. I'm sorry to hear she's still sick, but I'm not surprised.
To benefit from the info on our board, I believe one must be completely open-minded, eclectic, dogged in one's determination, and convinced that the key to our health is in our own hands. I guess it helps that we are also a little bit crazy too! LOL!
Love,
Polly
I remember her too. I'm sorry to hear she's still sick, but I'm not surprised.
To benefit from the info on our board, I believe one must be completely open-minded, eclectic, dogged in one's determination, and convinced that the key to our health is in our own hands. I guess it helps that we are also a little bit crazy too! LOL!
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi all,
I'm hoping that this impressive new site will help to overcome some of the reservations that folks may have had in the past.
The article that this lady wrote just sounded so resigned to putting up with an active case of this condition when she doesn't have to. Can't imagine why anyone with this history wouldn't be willing to at least give it a shot. Perhaps she did, but didn't realize the fact that many of us have to eliminate at least one or two other common foods. Was there much talk back then of the multiple sensitivity phenomenon?
Anyway, maybe she's more interested now since she's had a personal contact, and maybe she'll give at least the strict gluten free diet a chance. What could it possibly hurt? If she gets a quick dose of feeling much better early on, that might inspire her the way it did me. I was lucky in that I felt so much better so quickly. Otherwise, I might never have stuck with it long enough to figure out how to get the stools perfectly normal for all this time. I will NEVER understand how you stuck with it without any relief for so long, Polly! Now that was perserverance! How did you know ANYONE got better after your elimination of gluten went on a month or two without ANY sign of progress in terms of the diarrhea which I think was pretty much your only symptom, wasn't it? I'm sorry if I've forgotten lots of things by this far along.
Yours, Luce
I'm hoping that this impressive new site will help to overcome some of the reservations that folks may have had in the past.
The article that this lady wrote just sounded so resigned to putting up with an active case of this condition when she doesn't have to. Can't imagine why anyone with this history wouldn't be willing to at least give it a shot. Perhaps she did, but didn't realize the fact that many of us have to eliminate at least one or two other common foods. Was there much talk back then of the multiple sensitivity phenomenon?
Anyway, maybe she's more interested now since she's had a personal contact, and maybe she'll give at least the strict gluten free diet a chance. What could it possibly hurt? If she gets a quick dose of feeling much better early on, that might inspire her the way it did me. I was lucky in that I felt so much better so quickly. Otherwise, I might never have stuck with it long enough to figure out how to get the stools perfectly normal for all this time. I will NEVER understand how you stuck with it without any relief for so long, Polly! Now that was perserverance! How did you know ANYONE got better after your elimination of gluten went on a month or two without ANY sign of progress in terms of the diarrhea which I think was pretty much your only symptom, wasn't it? I'm sorry if I've forgotten lots of things by this far along.
Yours, Luce
thanks for posting that joan!!!deja vu or what!!
story of my life!!!and u guys...Urgent, unrelenting diarrhea... Cramps... Fatigue... Confusion... Fear... The elimination diet... The B.R.A.T. diet... Asacol... Lomotil... Acidophillus... Aloe Vera Juice... Learning to relax... Learning to meditate... Learning about Reiki and energy work... Doctors... Nurses... Internet chat rooms... Web sites... Resource books... Alternative medicine magazines... Hours of research about IBD... Learning to know my body and listen to what it needs... Asking for help... Asking for space... Giving myself time to learn about the new me... Learning to accept my new life and who I now am... Realizing my disease doesn't have total control over me unless I allow it to.
Angy ;)
Thank goodness my soy intolerance took a little while to show up after I went GF or I may have ditched the diet. I really did so well at first.
I really don't see how an MCer could read here and not try going GF. On the other hand, a GI probably wouldn't believe it.
I really don't see how an MCer could read here and not try going GF. On the other hand, a GI probably wouldn't believe it.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Tex wrote:
I didn't see any improvement after being GF for a month. It wasn't until three weeks after I began taking Entocort that I began to see a formed stool. I suspect that's pretty common for someone with multiple intolerances. I'm still going on faith that gluten and dairy are a problem. I don't want to test them to find out for sure.
Gloria
I have to say that mathematicians are probably some of the most rule-abiding people I know. I've always been pretty trusting of the advice I've found here and pretty skeptical of my doctor's advice.as a group, they are probably more regimented than most of us, since they have to turn out a certain volume of literary work most days, and that would imply following the rules, etc., IOW, they would be more inclined to believe a doctor, (simply because the medical version is the "official" version), over what they might hear from the likes of us.
I didn't see any improvement after being GF for a month. It wasn't until three weeks after I began taking Entocort that I began to see a formed stool. I suspect that's pretty common for someone with multiple intolerances. I'm still going on faith that gluten and dairy are a problem. I don't want to test them to find out for sure.
Gloria
You never know what you can do until you have to do it.
I'll bet you're right about that.Gloria wrote:I have to say that mathematicians are probably some of the most rule-abiding people I know.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Elizabeth Roberts book
I ran into it on Amazon and look what I found on the site:
Excerpt - page 41: "... Kenneth Fine's website-http://finerhealth.com-is a good resource for people with microscopic colitis and gluten sensitivity or celiac disease. ..."
Excerpt - page 41: "... Kenneth Fine's website-http://finerhealth.com-is a good resource for people with microscopic colitis and gluten sensitivity or celiac disease. ..."
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan