Just a little frustrated

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tex
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Post by tex »

Rose,

Surely your GP will be willing and able to do the test. I fully agree, the sooner the better.
Rose wrote:BTW, last night there was no watery d, just the same o' mush. But thats ok, better than water.
Definitely better! It's interesting how we learn to look for, and appreciate, the smallest "gifts", isn't it. :roll: As the old song made popular by Kitty Kallen, says, "little things mean a lot".

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Rose
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Post by Rose »

Tex,

Well another night, another blow out. It was another night of watery d. It started out formed (sorry so graphic), then just explosion. I went 6 times in an hour b/f I went to bed. Thank goodness I put on protection b/c I woke up this morning in a mess. I think I could actually do a colonoscopy this morning. It is so weird to have it every other day.

This is such a strange disease.

Love,

Rose
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tex
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Post by tex »

:sigh:

The alternating pattern is indeed very unusual. Do you eat differently, (either different types of food, or different amounts), or take any different meds, or supplements, on alternating days?

I'm impressed that you were able to persuade yourself to go to bed after a session like that. I can recall a few times when I was in that situation, that I just camped out on the throne for a few hours, because I was afraid that if I left, I might not make it back in time. :roll:

I hope you'll be able to get tested for C. diff, soon.

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Rose
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Post by Rose »

Tex,

When there is a special "surprise" I can't go back to sleep. Actually, last night I got up to do my daily run and just went to the bathroom and found it there waiting for me to clean up. But when I watery d and I have to get up b/f it is time for me to actually get up, I can not go right back to sleep b/c I am usually not done with the d. One time last year I woke up at midnight covered in poop (this is b/f I started wearing diapers mind you and b/f I was diagnosed with cc), cleaned myself up, changed my clothes and sheets, finally went back to sleep after laying awake for an hour only to wake up again at 2:30 covered in poop yet again. Now that was a night. Plus I had to wake up dh again to change the sheets, so neither of us got any sleep.


As far as eating anything different. I don't vary from what I eat b/c it is easier that way to know what my triggers are (at least that is what I thought) and b/c I have to make something different for my kids and husband. There was no cross-contamination last night b/c I ate b/f them and since they were out of town on Friday, there was none then either.

Very strange indeed, but then we are all unique.

Love,

Rose
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Post by tex »

Whoa! That sure was some night, (the one you described, before you were diagnosed). That's a record that may be hard to beat.

Remember that, (unless you truly do have rapid transit), what came out last night, probably went in, sometime after noon, on Saturday.

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Rose
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Post by Rose »

Tex,

I do know that last night after I ate dinner I felt nauseated. I can't remember if that was the case on Friday, but I do know that I feel nauseated after most meals. As far as transit time, I usually start with the bloating, gurgling and d about 30 to 45 minutes after I eat something offensive. But I will start clocking it.

Love,

Rose
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Post by Rose »

TEX,

HELP ME!!! Just kidding, I don't understand what is going on. I eat and 30 min later my stomach is gurgling and I am on the pot. I just ate some squash, which was steamed to to mush, and some tuna (sf,gf,df). I am trying to figure out my transit time. What I did (which probably was not smart since yesterday I went 22 times) was eat a little bit of red pepper last night. Now when I was have my nuclear explosions last night I did not see any red pepper, but this morning I did. But, 20-30 mins after I eat I start the nightly trek to my office. So is my transit time from red pepper in to red pepper out or eat and then the next bm?

Just wondering. Tomorrow I go to the GP. BTW, I did make an appointment with another GI for 4/7. I figure I will probably need to get established with a new one anyway since I will not go back to Dr. Dufus.

Love,

Rose
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tex
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Post by tex »

Rose wrote:HELP ME!!! Just kidding, I don't understand what is going on.
I truly wish that I could. You never cease to amaze me with how well you handle such adversity. You're a very inspiring individual, and I have no doubt that you will find the key that will bring remission, if there is any justice at all in this world.

Transit time is defined as the time required for a "round-trip", IOW, a complete cycle - the time it takes for a specific item of food to go from the lips to the loo, so to speak. :lol: I believe that many of us with MC, misinterpret that term.

The "urge to purge" is a very normal phenomenon, for most mammals, (and possibly all species, for all I know), because it's normal for the enteric nervous system to instruct the intestines/anus to make more room, as soon as it receives a signal from the stomach, that more food is on the way. This becomes a serious problem, when inflammation, or other issues, cause the system to be overly sensitive, and an otherwise normal "urge", is treated as a "purge immediately" signal, as is so commonly the case with MC. It often seems as though the food that was just eaten is being purged, (especially if we eat the same foods all the time, so that any undigested items look similar to to what we have just eaten, but I have a hunch that in most cases, it's the remnants of food that was eaten much earlier, that is being purged. That's not to say that it's not possible to have a very short transit time, because it does seem to happen, sometimes. It would be really extraordinary, though, IMO, for food to travel the entire 30 to 40 feet of the GI tract's total length, in less than an hour.

Bear in mind that transit time varies by the type of food, also. When we eat a meal, some of the items in that meal may be already entering the colon, before other foods even completely exit the stomach. It's definitely not a uniform, "en masse" process, where all food travels through the GI system at a uniform rate. That makes it difficult to make judgments about transit time, because really, we should be talking about "average" transit time, and even average transit time varies by individuals, in the general population, (and especially for those of us with an IBD).

I have a hunch that you may be having mast cell reactions, in addition to the usual T-cell reactions, typically associated with MC. For example, in that meal that included sqaush, squash should not cause any reactions for any reason, when well cooked. Fish, however, are prone to triggering histamine production, (which could result in a mast cell reaction, within your GI tract). You might consider the foods that you are eating from a histamine viewpoint, to see if there might be a connection. Here's a reference on foods linked with histamine production, and those that are not linked with it:

http://www.urticaria.thunderworksinc.co ... tamine.htm

It's also possible that you may have Small Intestinal Bacterial Overgrowth, (SIBO):

http://journals.lww.com/jcge/pages/arti ... e=abstract

It never hurts to "keep fishing", because there are definitely a few good GI docs out there, (from an MC viewpoint). Unfortunately, most of us have to do a heck of a lot of "fishing", before we ever hook a keeper. :lol:

Good luck with your appointment with your GP, and especially with searching for a new GI doc.

Love,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Rose
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Post by Rose »

Tex,

Thanks for the clarification of transit time. It is what I thought and that is why I ate the red pepper (something that would really stick out). I assumed that the gurgling after I ate is just my small bowel giving me the "heads up" but I did want to be sure.

I just got back and my GP had me go to the hospital and pick-up the stuff for the stool analysis. He is checking for C. diff, parasites, malabsorption (which I already have), and any other bacteria. Some people collect timbals, snow globes, bears, etc., but I collect poop. At least I don't have to do it for 72 hours and keep it in a cooler like last year, although I am sure that my kids are going to get a kick out of this as well.
My dh asked me "can't you just squeeze one out and give them a sample while you are there?" I told him that I would tried, but apparently I got stage fright. LOL.

I am so glad I went today, last night I had 2 small leaks. Thank goodness for depends. I have also lost 6 lbs in 1 month (not good). The GP said that the GI I made an appointment with is very good and highly recommended him.

I will keep you posted.

Love,

Rose
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tex
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Post by tex »

Rose,

Sounds good. :thumbsup:

I think I gained the 6 lbs that you lost last month, so I'm hoping to send it back, next month. :lol:

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Rose
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Post by Rose »

Tex,

Thanks and I'll send you all the rain that we are having here. It has been raining since yesterday morning and we are expected to have rain until Sunday.

Love,

Rose
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Post by starfire »

Wouldn't it be nice if we could do that!!!! Jodi would be a plump little thing in no time!! HaHa And I'd still have some to spare if anyone else needed it.

Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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Post by RUBYREDDOG »

Tex, The histamine production factor is one that I have never considered in my diet. You mentioned that this could result in a mast cell reaction which, I presume, would cause the dreaded D we are all trying to eliminate.

Looking over the list of "restricted foods", I find more that a few that I am currently eating. Fish (a big part of my diet), red wine, olives, herbal tea, leftover meats, and ketchup. And there are the vitamins that may contain restricted additives. WOW!!!

As much as I don't want to eliminate more and more from my diet, this may be part of the reason why I have not been able to achieve remission using diet alone.

I would be very interested to get your advice, and explanation of the mast cell reaction.

Hotrod
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Post by faithberry »

Rose,

Nausea can be associated with a mast cell reaction too. The thought also struck me when I read through your posts, although Tex is quickly becoming the resident mast cell expert. It seems logical that anything that makes you feel nauseous, is probably something you don't want to be eating!!!!

I'm really hoping you can sort this out soon. Faith
Faith

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Post by faithberry »

One of the key factors in histamine problems is that if you eat meat of any time, it must be very fresh. Guidelines here:

http://www.plantpoisonsandrottenstuff.i ... mines.aspx

from Plant Poisons and Rotten Stuff site, Minimizing Amine Formation in meat, dairy, eggs.

This is even more so the case with fish, which needs to be eaten like the day its caught! Meath broths are a major trigger for me, as the longer it cooks, the more amines are formed. Leftover foods also have a build-up of amines.

Sorry, it's so complicated, and there's not one single resource that gives you all the facts.

This may not be the case in hives, where people may react to just specific foods, although some people find the low histamine diet helps them.
Faith

LC (in remission)
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