Okaaaaaay!

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Dee
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Okaaaaaay!

Post by Dee »

Now! I'm going to have sauteed pork loin strips, then simmered with cabbage, carrots & potatoes, in water that has a dab of bacon drippings, for dinner tonight
Am I going to be one big walking HIVE tomorrow????
Pretty bad when you put a fork up to your mouth, pause, think, debate, then pop it in your mouth.
Not real good at waiting on test results and appt.

Love
Dee~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Dee
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Post by Dee »

Ah! Oh!!! Not Good!
I'm in my don't want to eat mode!!
Haven't been like this since dealing with the MC before I got it under control.
Amazing what the mind can do to turn hunger off...
:whatever:

Dee~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
starfire
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Post by starfire »

I'm really sorry, Dee. I presume you still have the hives and I don't blame you for not wanting to eat when you know what you have to pay for doing it. I hope you can get some answers soon.

Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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tex
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Post by tex »

Dee,

I hear what you're saying. According to the ICUS list, though, that menu should be safe.

:grouphug:

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Jan
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Post by Jan »

Hey Dee,

I wish you could have a talk with my mind. When I start trying to get some weight off by cutting back my mind keeps telling me I'm hungry, even if I just ate :grin: . I'll be more than happy to share a few pounds with you if you want them.

Jan
While you are proclaiming peace with your lips, be careful to have it even more fully in your heart. - Saint Francis of Assisi
Dee
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Post by Dee »

Just got a call about my path report. Found Nothing!!!!
So, I explained to his secretary what was going on with the hives, so she changed my April 16th appt. to this coming Monday.
At least then I can address other tests that I want performed and get into detail about me supposingly
having diverticulitis and a colonoscopy done!! SHeeeeeeeSH!!!!!
And since these hives seem to disappear by mid afternoon, I'm going to have Jack take pictures over the weekend so I can show the GI how bad they are.

Dee~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
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Post by starfire »

Good Thinking, Dee!!!

Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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tex
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Post by tex »

Dee,

Did they specifically look for H. pylori, and get a negative result?

I agree with Shirley, that's a dang good idea, because I have a hunch that if you show up with an "anemic" assortment of hives, he may just assume that you are exaggerating about them being worse in the mornings.

Okay, is that the trend? They only show up after your evening meal? Or do some show up after other meals?

If that's the case, that would have to be a clue.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Dee
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Post by Dee »

The hives have always shown up 3-4 hours after my evening meal and like right now I only have a few light colored ones. Now, when I get up in the morning, I may be polluted with them.
Then as the day goes on they fade in color, but at times you can still see signs of them under my skin.
I have never had them develop after breakfast or lunch.
Same as the the discomfort that I have had right in the "middle", about an inch down from my breastbone.
I'm still taking the 150mg of Zantac twice a day.
I will know more when I go for my appt. as far as the H. pylori.
If my memory is correct after I hade the endoscopy, I asked the GI what he checked for and he said H. pylori & celiac.

Love
Dee~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
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tex
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Post by tex »

Dee,

What are you doing differently late in the day, that you don't do at any other time of day? It wouldn't have to be something that you are eating. Do you change clothes then - maybe sit on a couch, or something else, that you don't sit on at any other time of day? Wash dishes? Change the cat litter? There has to be something unique about that time period of the day - the time between dinner, and 3 or 4 hours afterwards. Maybe keeping a diary for a day or two, of everything you do during that period of time, would allow you to spot it.

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Dee
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Post by Dee »

Now, this is something recent.
I ate a few potato chips about a half hour ago.
Got this achy feeling, like something was stuck behind my breastbone.
Took a drink of water about 5 minutes ago and it stopped.
This sure is a stumper to me...

Love
Dee~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Matthew
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Post by Matthew »

Dee

From your post --

“Now, when I get up in the morning, I may be polluted with them.
Then as the day goes on they fade in color, but at times you can still see signs of them under my skin.
I have never had them develop after breakfast or lunch.”

I have had to play around with what laundry detergents I use since I have had some skin problems over the years dealing with MC. Until I figured it out that I was having problems from rubbing against the bedclothes it was somewhat of a mystery why I would only have problems in the morning that would disappear by mid day.

It took me a lot of detective work but have not had any problems since I had one of those DuuuuuH moments that it was the detergent or whitener left in the bedclothes that was causing the problem.

Since MC my skin seems very sensitive. Used a new kind of adhesive in my woodworking shop last week and at the moment dealing with a bad case of contact dermatitis on both hands despite my best to not have contact with it.

It is such a nuisance and so uncomfortable but it it is figureoutable.

Is that a word?????? :-)

Hope my experiece might be some help . Or at least an idea.

Love

Matthew
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Bifcus16
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Post by Bifcus16 »

Overheating in bed might also be making them worse. I remember that reaction when I had them.

The weather should be warming in your part of the world - is it time to remove a blanket or go for the lighter quilt or turn down the heating overnight?

Lyn
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faithberry
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Post by faithberry »

Matthew has a really good point because hives can be triggered by our everyday chemicals found in detergent, for example. On the other hand, I remember reading on the Yahoo ICUS forum that many people wake up in the night or morning with hives. Histamine is at its highest level in the middle of the night. Have you had a chance to check out that forum? They get 500 posts a month, very active!

Drinking a glass of water lowers stomach acid so that may be why it helped you with that breast bone pain or maybe it just washed that chip away!

With my tryptase test results (yes, it was elevated!) I got my urine test results. They showed a 'number' of calcium oxalate stones. I may be eating too many high oxalate foods (e.g. grains!) or it may be absorbing too much through my gut. I learned that in certain circumstances oxalates *MAY* also cause the release of histamine, in particular when they come into contact with damaged tissue. I have a lot of damaged tissue in my muscles, and histamine/mast cells live in connective tissue.

This probably does not apply to you at all, Dee, but I may be reacting to high oxalate foods due to histamine release (like most nuts and many grains), whereas they are totally fine for others and this is why they many are OK on the low histamine diet. In other words, I have a deviant situation!!!! Therefore, some of my feedback on foods might be off-track.

Good luck! This is so icky to deal with. You might consider seeing a dermatologist or allergist like Tex suggested. They will be able to do the right tests.
Faith

LC (in remission)
Pat
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Post by Pat »

Don't know if this will help but when my son was born 24 years ago he always seemed to have a rash all over. It would come and go but mostly he had it. He would scratch constantly and even make himself bleed. It was a lot of trial and error but we figured out that he could only wear cotton clothes, use no soap not even the soapless ones ( people could not understand how he could get clean with no soap but when they are so young before puberty it worked to use only water). Metal touching his skin gave him a terrible rash; the snaps on the back of childrens PJs and the snap or button on pants. I had to cover these with cotton cloth. He has to wear only stainless steel or gold jewelry. I even made or had made cotton Pjs because childrens PJs are polyester (fire retardant). Used all cotton sheets. He could use no scented lotion - no fragrance, no urea. I think we used Eucerin cream or lotion a lot. I washed his hair over the sink. It was a hassle but his skin would clear up. When he was in school his forearms would get rashy from the cleaner on the desks. He has pretty much grown out of it but does use scent free soap and detergent and lotion.

Pat
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