Should Have Known Better...........

jodibelle352 · Post by **jodibelle352** » Fri Apr 17, 2009 6:55 pm

Yupper! Should have known better than to lower my dosage especially when I've been doing so well on 6mgs daily (2capsules) As my oldest Grandson would have told me;"Gramma, that was a BIG Brain Fart!"

Just like in Jan. my first day (yesterday) on 3mgs didn't turn out to bad. Kept myself stress free as possible as well as relaxed and had no flares. Then today the

and I mean I've been sick! About 11:30a.m. my gut started saying "mean and hurtful" things to me by 12:00p.m. I was in the bathroom with abdominal pain so bad it made me sick to my stomach! There was NOTHING pretty about what was taking place. I'm on the

strattling the waste basket between my knees while having the dry heaves. Now thats what happens when I try to lower my dosage of Entocort.

My Aunt & Uncle showed up unexpectedly while I was in the toidy and yelling for David's help. What a visit. My Aunt was so worried about me that by the time I finally made my way out ot the bathroom she was in tears and apologizing that she thought maybe this was a bad time to stop in so they were going to be leaving. DAHHHHHH!!!!!!!!!! Sounds like a plan to me????????????

For the rest of the afternoon I was on the couch while Bailey and Papa played quiet games so I could rest. Every now and then she would come up to me and pat me on the back and tell me;"It's okay Gramma I'm being good" Arggggggghhhhhhhhhh!!!!!!!!!!!!!! Then I would break down in tears because she was being a really good girl for Papa and me.

Ended up taking another 3mgs of Entocort and it is now 8:48p.m. and I am just starting to feel like a human being again. My gut is still very tender and I swear every muscle in my body is aching. Not quite sure if the muscle pain is from my Fibromyalgia or the CC flare. It truly doesn't matter what caused it because David got out my pain meds so I'm pretty mellow right now.

Anyway, I'm NOT going to try again for quite sometime to fix something that is NOT BROKEN!!!!!!!!!!!!!!! I've been blessed with many "angels without wings" who have been my rock and support so I'm going to continue on the same dosage of Entocort know matter what happens.

I'm going to go back to my couch for awhile as I'm still not up to par just yet.

Love Ya All!!!!!!!!!!!!!!!!!!!!!!

Love and God Bless:
Jodi

Gloria · Post by **Gloria** » Fri Apr 17, 2009 7:26 pm

Oh, Jodi, what a day you've had. I'm so sorry. I didn't have as bad of a reaction as you when I reduced, but I did deteriorate pretty quickly, too.

I couldn't understand why I could never get below 2 pills, but once I eliminated the green beans, and eventually all legumes, everthing seemed to gel. I might be wrong, but I have a feeling that you are reacting to another food or family of foods and will not be able to get below 2 pills until you figure out what food it is. It took me over 6 months to go from 2 pills to 1, so I know that it can be a long, slow process to figure all of this out.

I hope that you can find a way to get the amount of Entocort you need so that you can take your time working on your intolerances.

Gloria

jodibelle352 · Post by **jodibelle352** » Fri Apr 17, 2009 8:51 pm

Gloria:

Thank You so much for your support. It truly means alot to me especially when I have a day like today that just knocks a person off their feet. I know as long as I continue on the dosage I was on that I will once again stabalize.

I assure you that shortly some very special guardian angels are coming to my rescue as we speak to help me get my Entocort. I have enough to carry me through at 6mgs daily until a week from Sunday and by then I'm pretty certain that I will be Blessed with what I need by some very loving and caring angels.

:flyingdoveleft:

Love and God Bless:
Jodi

Polly · Post by **Polly** » Sat Apr 18, 2009 6:25 am

Oh Jodi,

What an awful day you had. Those flares are the pits.

I hope you are feeling better and better. Hang in there, dear.

Love,

Polly

P.S. I enjoyed your use of the emoticons. Very appropriate!

MaggieRedwings · Post by **MaggieRedwings** » Mon Apr 20, 2009 5:22 am

Morning Jodi,

So sorry to hear that you had such a terrible day. The angels will land soon and I hope in time before you run out. Then you should be able to have better days.

Love, Maggie

jodibelle352 · Post by **jodibelle352** » Mon Apr 20, 2009 8:36 am

Love You Very Much Maggie!

Love and God Bless:
Jodi

MaggieRedwings · Post by **MaggieRedwings** » Tue Apr 21, 2009 8:56 am

Hi Jodi,

Love you too. Coming to you via wings and without return address you should have by Thursday at latest. You will love the packing material in the box. Only thing I could find but only a PP would enjoy it.

Love, Maggie

jodibelle352 · Post by **jodibelle352** » Tue Apr 21, 2009 9:04 am

Hi Maggie:

I would really like to have your address. I've been working very hard on a very special hand made crochet item for you. I really want you to have it in appreciation for your love and support.

Love and God Bless:
Jodi