MC and Spondylitis

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tex
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Post by tex »

I may not be a good one to ask, because it took me a year and a half to reach remission, and the fact that I was constantly "testing" myself, to see if I had healed enough to be able to tolerate certain foods, probably didn't help to speed things up, because every time I did that, I probably renewed the inflammation. Back then, I wasn't aware of Enterolab, and their tests, and I hadn't yet discovered the support board that preceded this one, so I didn't know what I was doing - it was strictly trial and error. For a year and a half, :roll:, I thought that I was lactose intolerant, (after a year and a half, I figured out that I was also casein intolerant), so I kept eating cheese, for example. Anyway, a year and a half into the GF diet, I finally gave up all dairy, corn, most sugar, etc., and I was soon in remission. For about 3 or 4 months, I would occasionally try to add something back into my diet, but every time I tried, I would get sick, so I finally stopped trying, and just followed the diet for about 9 or 10 more months, and then when I experimented, I found that I could tolerate small amounts of dairy, corn, etc. Of course, from there, it was easy to work up to larger amounts, a little at a time. I'm guessing that after we totally avoid a type of food for a year or so, we have to re-develop an optimum bacteria balance in our gut, and possibly stimulate the proper enzyme production, in order to do a good job of digesting that food, so that's why I started with small amounts and worked up. IOW, approximately a year after I achieved remission, (two and a half years after starting the GF diet), I was able to start adding foods back into my diet.

It's possible to "cheat" with milk, if you are only lactose intolerant, (and not casein intolerant). Cocoa will act as an "extender" for the small amount of lactase that is being produced, so that if you are producing any lactase at all, adding cocoa to milk may allow it to be properly digested. Most people, (but apparently not all), still produce small amounts of lactose, even though their production potential may be way down. This research report verifies that:

http://www.ajcn.org/cgi/content/abstract/49/5/840

YMMV, of course, but I believe that it usually takes at least a year for the gut to substantially heal from gluten and casein damage. I had a fecal fat, (malabsorption), test done at Enterolab, over a year after I achieved remission, (over two and a half years after beginning the GF diet), and while it did not show severe residual damage, it did show that I still had a significant amount of residual damage. I believe that GI docs in general, are not aware of this, and they typically assume that the gut heals quickly.

This is also borne out by endoscopic examination, (with biopsies), of the small intestine of celiacs, long after they achieve remission. A reasonably high percentage of kids under the age of 14, will show normal histology, but a very high percentage of adults, will still show villus atrophy, contrary to what most GI docs claim, (that the gut heals quickly, if the diet is strictly followed).

http://www.ingentaconnect.com/content/b ... 4/art00008

I also believe that it is fairly rare for someone with MC to ever show completely normal histology, once the disease develops. The histology will be improved, of course, after remission, but I doubt that it will ever return to normal.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by faithberry »

Thank you, Tex. I have the same challenge of continuing to experiment to see if there's another food I can eat. But I am finally getting the point of what you have said so many times: it takes a long time to heal the gut! So once you stopped experimenting, it seems like it took about 9 months before you could slowly add foods in small amounts. Gosh, I even have a one-fourth cup of fibrous food and I get problems so experimenting really is not working.

Wow, that's a long time to stay on such a limited diet. Congratulations for your tenancity!

I was looking at a UC board and many people say that eggs and fatty foods are pro-inflammatory. That's what I worry about on my mini-diet (eating 4 eggs a day, 6 oz. of chicken - some lean, some fatty. On the other hand, this is what seems to work for the MC folks. And I can't eat anything else, anyway.

OK, looks like I need to gather the fortitude! Thanks for the input.
Faith

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Post by tex »

Faith wrote:I was looking at a UC board and many people say that eggs and fatty foods are pro-inflammatory.
What constitutes a "pro=inflammatory food" is apparently open to debate. Red meat, for example, appears on some lists, but not on others. For example, neither red meat, nor eggs, appear on Dr. Perricone's list of pro-inflammatory foods, as quoted on Oprah's site


* Bagels
* Breads, rolls, baked goods
* Candy
* Cake
* Cookies
* Cereals (except old fashioned oatmeal)
* Cornstarch
* Corn bread, corn muffins
* Corn syrup
* Crackers
* Croissants
* Doughnuts
* Egg rolls
* Fast food
* French Fries
* Fruit juice—choose the fruit instead
* Fried foods
* Flour
* Granola
* Hard cheese (except for feta and grating cheeses, such as Romano and Parmesan)
* Honey
* Hot dogs
* Ice cream, frozen yogurt, Italian ices
* Jams, jellies and preserves
* Margarine
* Molasses
* Muffins
* Noodles
* Pancakes
* Pastry
* Pie
* Pita bread
* Pizza
* Pasta
* Popcorn
* Potatoes
* Pudding
* Relish
* Rice
* Sherbet
* Shortening
* Snack foods, including: potato chips, pretzels, corn chips, rice and corn cakes, etc.
* Soda
* Sugar
* Tacos
* Tortillas
* Waffles

http://www.oprah.com/article/health/nut ... flammatory

The trend in current research seems to be contradicting long-held beliefs about the dietary effects of animal fat. Apparently, it is not the source of all of the world's health problems, as was once claimed, by the powers that be.

http://blog.nutritiondata.com/ndblog/20 ... cused.html

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by faithberry »

I definitely don't eat any of those foods!!!!!! Thanks, I'll check out the links. I am managing to get between 1100-1200 calories, which is fine for me. I small. With this amount I don't have hunger attacks at all. Now I'm eliminating foods over 2 grams of fiber. So I'm going to stick with my spare foods diet and see how it goes for the next few weeks.

Thanks for you help.
Faith

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Post by faithberry »

Do you think the cucumber seeds could be a problem?
Faith

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Post by tex »

I have no idea, and a quick search didn't turn up anything, either. :shrug:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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