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Asked my gi doc to refer me to a dietician, hopefully one who is knowledgeable about cc. Question is do think there's any point? Considering i've learned a lot
more regarding diet from our own forum members who know better than any dietician. I thought I would just check it out and see what help they can give. i Guess I'll have to wait a long time for a referrel. I was wondering, has anyone had any success in this area or have you never bothered with a dietician?
Dietician....any point?
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Dietician....any point?
Angy ;)
Angie,
My cardiologist really wanted me to get some weight off and my cholestral down and suggested I see a dietitian. I called me GI and got two names. I knew my insurance wouldn't pay for it.
When I met with her I explained that I had LC, which she seemed to know what it was, and then she proceeded to tell me to eat all these raw veggies. I agreed (which I shouldn't have). After two days I had baboon butt and went back to what I was eating. When I saw her a few days later we again went over what I felt I couldn't eat. Anyway, she continued to recommend things I knew I couldn't eat and just encouraged me to try.
In other words, I felt like I wasted my time and my $ for something that didn't help at all. Now, if it had been someone like Mary Beth I might have gotten some good ideas.
Just my 2 cents worth.
Jan
My cardiologist really wanted me to get some weight off and my cholestral down and suggested I see a dietitian. I called me GI and got two names. I knew my insurance wouldn't pay for it.
When I met with her I explained that I had LC, which she seemed to know what it was, and then she proceeded to tell me to eat all these raw veggies. I agreed (which I shouldn't have). After two days I had baboon butt and went back to what I was eating. When I saw her a few days later we again went over what I felt I couldn't eat. Anyway, she continued to recommend things I knew I couldn't eat and just encouraged me to try.
In other words, I felt like I wasted my time and my $ for something that didn't help at all. Now, if it had been someone like Mary Beth I might have gotten some good ideas.
Just my 2 cents worth.
Jan
While you are proclaiming peace with your lips, be careful to have it even more fully in your heart. - Saint Francis of Assisi
Jan srry you had to suffer with those food recomendations. Now that's what I'm thinking too, cos I'm getting this feeling that if I see one their going to tell me to eat fruit and veg and if I did that I'll have the baboon butt too. It's seems your dietician isn't clear about the fibre that gives us the D, well rough fibre that is(skins). It has been discussed in the forum elsewhere about fruit and veg and it's effect on most of us, pity health professionals don't see it our way. I'm only 9 stone so don't need to lose weight.it takes me all my time to maintain that level. By the way we have nhs so I don't have health insurance. Waiting list are lengthy though approx 12 weeks.
Tonight I ate loads of roses choccys from my birthday lol! God I'm gonna suffer tomorrow,
Tonight I ate loads of roses choccys from my birthday lol! God I'm gonna suffer tomorrow,
Angy ;)
Can't say what dietitians in Scotland know, but here in the US, the vast majority of dietitians won't know much about MC and food sensitivities. They are behind the learning curve just like physicians. You might have better luck with a dietitian that specializes in celiac - they seem to be more aware of non-celiac gluten sensitivity and GI problems in general. Since I did the MRT and found it helpful, I also think dietitians who specialize in this might be able to help. They are called Certified LEAP Therapists (CLT) and you can contact Signet to find one in your area.
Mary Beth
Mary Beth
Hi Angy,
I just started with a dietitian. He is much easier to talk to than my GI doc and seems genuinely open minded about how best to treat MC. It helped that I give him my Enterolab test as well as saying right up front that my gut in its present state reacts to fructose and cannot deal with too much fiber.
He has emphasized balancing my T cells Th1 and Th2. He gave me an analysis that showed that people with Crohn's disease have a different issue with these T cells than people with Ulcerative Colitis There seems to be no similar research on CC and LC - i wonder if any exists......
Best, Ant
I just started with a dietitian. He is much easier to talk to than my GI doc and seems genuinely open minded about how best to treat MC. It helped that I give him my Enterolab test as well as saying right up front that my gut in its present state reacts to fructose and cannot deal with too much fiber.
He has emphasized balancing my T cells Th1 and Th2. He gave me an analysis that showed that people with Crohn's disease have a different issue with these T cells than people with Ulcerative Colitis There seems to be no similar research on CC and LC - i wonder if any exists......
Anyway I will stick with my Dietitian. I sense he is really trying to find the answer with me to my problems. Maybe I struck lucky (of course I will not get this on insurance)Int J Immunopathol Pharmacol. 2009 Jan-Mar;22(1):63-71. Links
Immunomodulatory effects of 1,25-dihydroxyvitamin D3 on TH1/TH2 cytokines in inflammatory bowel disease: an in vitro study.
Ardizzone S, Cassinotti A, Trabattoni D, Manzionna G, Rainone V, Bevilacqua M, Massari A, Manes G, Maconi G, Clerici M, Bianchi Porro G.
Gastroenterology Unit, Department of Clinical Science, L. Sacco University Hospital, Milano, Italy. samari1@tin.it
Crohn's disease (CD) is associated with a higher type-1-helper T cell (Th1) cytokine expression, whereas ulcerative colitis (UC) appears to express a modified Th2 response. In addition to its classic role in calcium homeostasis, calcitriol, the hormonal active form of vitamin D, exerts immunoregulatory effects such as modulation of Th1/Th2 cytokines. Therefore, calcitriol administration could modify immune dysfunction in CD and UC. Nine patients with UC (M/F: 5/4; mean age 47 years, remission(R)/active(A) disease: 7/2), 8 patients with CD (M/F: 2/6; mean age 36, R/A 5/3) and 6 healthy controls (HC) (M/F: 3/3, mean age 4) were enrolled. Peripheral blood was collected after a drug-washout of 15 days and peripheral blood mononuclear cells were stimulated with mitogens alone or in the presence of physiological concentrations of calcitriol (100 pg/ml). Type 1 (IL-2, TNF-alpha, IFN-gamma) and type 2 (IL-10) cytokine production was assayed on supernatants by ELISA. Compared to HC, TNF-alpha production was significantly higher both in UC (p=0.0002) and CD (p=0.0001) patients, at baseline and after incubation with calcitriol (UC p=0.0003, CD p=0.0009). The effects of calcitriol incubation were: 1) reduced IFN-gamma (p=0.024) and increased IL-10 (p=0.06) production in UC patients; 2) reduced TNF-alpha production in CD (p=0.032); 3) no significant effects in HC. Calcitriol increased, albeit not significantly, IL-10 production in UC compared to CD patients (p=0.09). These results suggest an important modulatory role of vitamin D in the Th1/Th2 immune response. The observation that the effect of this modulation was different in CD compared to UC patients provides an interesting area of research into the pathogenesis and treatment of these inflammatory conditions.
PMID: 19309553 [PubMed - indexed for MEDLINE]
Best, Ant
Ant,
MC has many characteristics in common with Crohn's disease, including the Th1 mucosal cytokine profile:
http://www.ncbi.nlm.nih.gov/pubmed/16775121
Tex
MC has many characteristics in common with Crohn's disease, including the Th1 mucosal cytokine profile:
http://www.ncbi.nlm.nih.gov/pubmed/16775121
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks so much for that information guys...appreciate that.
Mary beth I have never heard of a leap therapist that's interesting, I'll be researching that here in Scotland. I also agree that I should ask for a dietician who also specialises in celiac ,crohns and colitis, hell maybe I'll get one who is good with all three.
Ant that's a lot of good information. I think that uk is probably behind with research compared to us.
Tex thanks for that link...
Mary beth I have never heard of a leap therapist that's interesting, I'll be researching that here in Scotland. I also agree that I should ask for a dietician who also specialises in celiac ,crohns and colitis, hell maybe I'll get one who is good with all three.
Ant that's a lot of good information. I think that uk is probably behind with research compared to us.
Tex thanks for that link...
Angy ;)
Angy,
I have not had a good experience with a dietician. They are all different just like doctors and hairstylists. Ha!
The first dietician I saw just wanted me to get on anti anxiety medication. The second one tried and actually got my GI doc at the time to test me for fructose malabsorption. She really couldn't help me any further.
Good luck finding one and if you do find a good one please keep us informed!
Ant,
Please keep us informed about your dietician.
Pat
I have not had a good experience with a dietician. They are all different just like doctors and hairstylists. Ha!
The first dietician I saw just wanted me to get on anti anxiety medication. The second one tried and actually got my GI doc at the time to test me for fructose malabsorption. She really couldn't help me any further.
Good luck finding one and if you do find a good one please keep us informed!
Ant,
Please keep us informed about your dietician.
Pat